Posted By Posting
Dec 09, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
We went to the pedi office for a general check up for preschool and they checked her o2 sats and they were 93%. Pedi said to call the pulm to see if she needs to be on o2 because they like to see it at 94% and up and this was just a spot check. WE still don't have a pulse oximeter so it's not like i can monitor this closely. I'm just waiting on the pulm to call me back. What would you do? Should i just put her on 1/2 a liter continuously for right now? -Sarah
Dec 09, 2008
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
Sarah, I am so sorry you have to deal with this again. I probably would go ahead and give her some for now. It could just be a bad read at the time but better safe than sorry. Let us know what the pulmo says! -Amanda
Dec 09, 2008
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site:
I would for now. It can't hurt. Ask at P2P there is a Mom there who knows TONS about o2.
Dec 09, 2008
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including,,, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Sarah, If it were me, I would put her on it for now. At least that way you would feel better and hopefully she will too. Have u looked into local assistance to obtain a meter. I just found our babies can't wait and other local people have equipment loans.

It might be worth checking into if you are concerned.

Check with your
doctor first!