Posted By Posting
Dec 07, 2008
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
Anyone figured out how to
sleep sitting up with the child on them. I mean really sleep. I try lying down and she screams (we don't have a recliner.) It has been bad lately. I put her to bed and she only screams when she lays down. She will cry and whimper just sitting in the corner of her crib. She has been on her upped dosage of zantac for over a week now. She seems to get a little better with maalox and tylenol but how often can I do that? Her heart rate is still up and I'm just not sure that that doesn't have something to do with this sleeping issue.

On a happy note, my oldest, Morgan, had a stomach bug before thanksgiving. My stepmom got it the weekend after Thanksgiving, James and I came down with it on Tuesday, as well as my mom and stepdad. Then the kids at the babysitters got it thurs and friday. She hasn't gotten it so far. We hope that she doesn't. I worked on thurs. and friday to sanitize everything and she is still doing okay. No throwing up or diarhea! This is big for us. Normally she would have gotten it and been in the hospital. This happened last year 4 days before Christmas. Anyway, I am hoping this is a sign that her immune system is finally kicking in. She has still had several infections and viruses but the one that always get her inpatient is stomach issues. sorry so long!

Dec 08, 2008
seamus mama
Seamus was diagnosed with Silent Reflux at 3 weeks. Now he is 14 months, on Prilosec and avoiding dairy,soy,egg. Still nursing. A lot !!!
I guess that I have been so desperate for sleep that I have figured out a couple ways to have Seamus sleep on me..My goasl was for him to be upright-ish on my body, which meant I had to be upright-ish as well. One thing I have done is put a couple blankets and a pillow under my knees so my legs are partially bent..Then of course more pillows behind my back and folded blankets under each arm..It is pretty much a set up where my arms and legs are propped such that muscular strength inst needed to "hold" the kid in place. Somehow I have slept like this..Not all the time, but when he has reflux flares it lets us both rest. I hope things are better for you tonight!
Dec 08, 2008
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
I have done something similar to Seamus' mama, stuffing pillows and blankets all around, and also used a sheet (before I had a Moby Wrap, then I used that) to strap him to my torso. I've slept sitting up in bed, as well as sitting in a reclining chair with him this way. It's never great sleep, because he wakes up every time he wants to change positions and finds that can't move so freely, but frankly sleep is never great for us, so what's the difference!

I'm glad her immune system seems to be doing its thing, and I hope sleep visits you soon!

Dec 08, 2008
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
There's a product similar to a moby wrap called sleepy wrap. It's VERY stretchy and easy to tie. I think the stretchy-ness gives it more of a womb-like feel. It is the only thing that will calm Isobel - pop her in and go for a walk. I'd bet you could get yourself comfy in the recliner while wearing her. www.sleepywrap.com I love it so much I bought a bunch extra and sell them to the curious from my trunk!
Dec 08, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
I'm so sorry. I slept in my recliner but I don't think I ever actually reclined it. My dh would prop me up "just so" with pillows and stuff so we wouldn't fall over :)
Dec 08, 2008
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Someone had suggested an Ikea product a while back that we just ordered. It's a bed frame that goes inbetween your matress and box spring. You can adjust the head to totally upright, to barely upright. I figured with this Reflux thing rearing again for us, I'd like to be prepared. Jasmine ends up sleeping intween my legs, on her side with her head on my thigh, while I try to maintain that position....impossible. So I figured we'd buy the product. It would come in handy for coughs and colds too. It's called Sultan lerback and the other is called lovene. They are 110-170$ depending on the model.

Otherwise, I did the pillow thing too. I actually used my pregnancy pillow to help prop us up......I hope you find a solution....

Dec 08, 2008
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
Thanks guys! The Ikea products sound like a great idea. I have reflux too and am supposed to have two by fours under my head or something weird but haven't done it yet. So, this should help me too.
Dec 08, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
OMGosh Jedd slept on my chest for the first 3ish months and would sleep no where else.

Dh was always worried he would roll over on him. He's a very hard sleeper He hears NOTHING at night...LOL

Anywasy I propped myself up with about 3 pillows then put a big pillow on both of my sides. Then I held Jedd with the pillows holding up my arms and off we went to sleep....;The bassinet was on my side of the bed so that held the pillow form fallin goff the bed.

Hey, he was sleeping I was sleeping, we were happy. We finally figured out a way to gethim to sleep IN the bassinet, we had no choice once he hit aobut 9.10 weeks as he had the tube and could sleep with me anymore...:(

Dec 09, 2008
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
I told James that we should take a pic and post it to facebook. You should have seen us last night. She was screaming in pain. I got her up and then she was wretching and arching her back and just plain wallering me. It was not good. We had several pillows in the middle of our queen size bed and DH slept on the couch. We even had couch pillows propping up my feet. I put her back to bed for a little while but she would scream and cry in pain every 5 minutes or so. Then cough until she almost threw up. So, back to the pillow bed! She finally went to sleep sitting straight up with me holding her and her head on my chest. She slept like that for a while and then start wretching and writhing again until she made her way to the end of the bed. Then I put her back up again. She continued this all night.

BTW - DH has never been able to tell when she relfuxed before. Lately, it has been so bad that he has noticed it and last night she refluxed while we were watching Charlie Brown Christmas and from across the room he commented about it. Then he looked at her and almost threw up himself because I'm pretty sure she was chewing her carrots that she had for dinner. YUM! Calling the doc again today.

Check with your
doctor first!