Posted By Posting
Dec 07, 2008
Scared Couple
If anyone could check out my story and let me know if you have the same problems with your child or know someone who has a similar case would be greatly appreciated thank you!!! Any ideas or comments are welcomed we will take all the advice we can get get we are running out of options.
Dec 07, 2008
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
My son did exactly the same thing. It took me many months to get our pediatrician to take our concerns seriously. Although we still don't have any definite answers, we know that he has Obstructive Sleep Apnea, that he has apnea episodes when he is awake, and it is believed that they are the result of a combination of reflux and low muscle tone around his trachea and esophagus.

FYI Zantac is only an acid blocker, it does not, in and of itself, prevent reflux episodes from happening, although there is sometimes an apparent relationship between high acid levels in the stomach and refluxing, so it can minimize the episodes. It is, however, extremely weight sensitive, so you may need to see about having her dose increased if it was helping for awhile but stopped being effective because she gained weight.

You will find lots of support and information here. I suggest that you arm yourself with as much knowledge and information as you can and go to your child's doctor with specific questions and requests about proceeding with a diagnosis and treatment. Sometimes you really have to stand up and advocate for others in this medical system. Hang in there, welcome to a truly life saving source of support and information, and I wish you the best of luck!

Dec 07, 2008
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
I would agree with pp. The zantac may not be enough especially since it is so weight sensitive. I wonder why they have not put her on a PPI which would stop the stomach from producing acid in the first place. Prevacid seems to be a great option for a great many little ones on this sight.

I would ask your doctor about a PPI.

Dec 07, 2008
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
We didn't have the breathing issues, but the refluxing through the nose is pretty common with these kids unfortunately.

Zantac is what's known as an H2 blocker (like Pepcid and Axid.) Most of the gerdlings need a daily PPI (proton pump inhibitor) like Prevacid, Prilosec, or Nexium. I also agree with both other posters that Zantac is VERY weight sensitive, so the dosage needs to be adjusted EVERY time they gain weight, so you can imagine how many trips to the MD that takes! ;-) Also may not hurt to ask about using Maalox or Mylanta for breakthrough pain.

Not too much helps with the vomiting, unfortunately. There are meds out there for DGE (delayed gastric emptying) but there are usually some serious side effects, though some kids have no issues and do great on them (These would be Reglan or erythromycin)

Is she BF or formula-fed? If BF, have you tried an elimiation diet to see if there's something in your diet that she's not tolerating? OR switching to a hypoallergenic/elemental formula? My dd has no allergies or intolerances, but for the first 6 months, she did best on Nutramigen, since it's fairly broken down.

Never feel like your options are limited!!! We've all been in the ring battling it out with the MD's. You're THE MOM - you have all the control in the world to help her, but just get a good pair of boxing gloves ;-)

There are a few things you can try at home - smaller, more frequent feedings, making sure she's upright for at least 30 minutes after eating, elevating the head of the crib, using a swing/bouncy seat to keep her elevated and give your arms and back a break.....If you haven't already, I recommend seeing a pediatric gastroenterologist who knows that GERD is not something to be shrugged off. HTH!

Dec 07, 2008
seamus mama
Seamus was diagnosed with Silent Reflux at 3 weeks. Now he is 14 months, on Prilosec and avoiding dairy,soy,egg. Still nursing. A lot !!!
I agree with what the other women said. I think the most important action to take is to make an appointment to see a GI ASAP, then determine your course of action. Welcome to a very special support network.
Dec 07, 2008
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
I'm sorry that you are dealing with this. I know how hard it can be to watch your dd struggling to breath. My dd has had apnea since she was born, now 18 mo. She is still dealing with it. I would say that you need to push for an apnea monitor but since she is nine months old she won't like the monitor. Around 10 months old was when Adriane started pulling hers off. My dh and I just depend on ourselves to make sure she starts breathing again.

I agree with the pp on the zantac and perhaps getting her on something for dge. We did Reglan for a little while but we had some side effects and decided that it wasn't worth the risk. Although so many others have had great success on it.

Have they tested to make sure that it is reflux that is causing the apnea? How about sleep studies, swallow tests, etc? I know this is a lot to take in but I am just throwing things out there. If you know in your gut something more is going on then you have to fight. You are her only advocate and from experience mom's intuition is a powerful thing. I hope you get some good info and know that we have all been there. -Amanda

Check with your
doctor first!