Posted By Posting
Dec 05, 2008
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Jazzy update
I took Jazzy to her Ped yesterday to throw another tantrum on how I never get anywhere with her GI team and Jazzy suffers...She called my GI nurse and asked them to come up with a new plan for Jazz by today!!!! She also said "no more pH probes please" since mom knows that she is refluxing again!!!!!!!!!!!! Then she said " and we need a better plan for her Eos. dis. so let's do something please" So I'm waiting for the call, but what a great Ped!!!

I'll update as soon as I can.

Dec 05, 2008
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including,,, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
I am sorry that she is not well by now. I know it is oh so tough, but u r strong and u r such a good mom to keep doing whatever it takes to get somewhere with her.
Dec 05, 2008
ethan's mom
Mom to Ethan, born 4/23/08. Diagnosed with Reflux at about 1 month, started medicating with Zantac, which wasn't helpful for us. At about 2.5 months, we started on Prevacid, twice a day, and that is working much better.
Ethan is breastfed and has a few solids that he is enjoying very much.
How great to have a pedi who supports you so much. Hopefully the GI team will listen to another doctor and have a plan for Jazzy. :)
Dec 05, 2008
seamus mama
Seamus was diagnosed with Silent Reflux at 3 weeks. Now he is 14 months, on Prilosec and avoiding dairy,soy,egg. Still nursing. A lot !!!
That is awesome to have a pedi on your side who can advocate for you!!!
Dec 06, 2008
PAGER Volunteer Services Coordinator
Melina 7/24/02 now reflux free!!
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
YAY for your pedi! Any new news?
Dec 06, 2008
mom to Mila 2-20-2007
and Robby 4-22-2004
Mila is on Peptamen JR 30 cal by NG tube. Open Heart Surgery 2/08/08. Captopril, Zantac, Losec, Lasix.
Hope the GI figures something out!
Check with your
doctor first!