Posted By Posting
Dec 04, 2008
mely
Amalia 11/1/06, Silent reflux- Weaned off prevacid in the summer- back on again 15mg. Back on lactaid. Atalia- 6/17/08 DX with GERD and colic at 9 days of age. Appears to have mild MSPI. Upper GI. On Prevacid 22.5mg. Successful transition to whole milk! Eats everything!
Pic. Amalia and Atalia having fun at home.
Just a thought that I hope may help someone through a rough day- or many =).
These past few days have been tough with my girls. It seems at times I do not have time to eat, take a bath, let alone keep the house halfway descent. Today after I put Amalia for her nap, had no taken a shower, or had lunch.. I was trying to do the dishes when not even 2-3 minutes after she was already complaining and almost crying. I knew what it was (teething- with my Amalia it has been special- you can look at her story if you want to know more=)). I turned down the monitor and I said the usual "I can't wait until she is done teething!" phrase and wanted to at least get the dishes done and then turn on the monitor and see if she had fallen asleep. She had not. I go upstairs, walk into her room and see her sitting in her crib. I tell her "What's the matter?" and she looks at me like "You know what it is mommy." I tell her, "Mommy has to eat sweetie, lay down and I'll stay here until you fall asleep. Try to sleep a little please." I rub her back and see her make the painful teething faces (it took me back to when she was 8, 9 months old), trying to scratch her gums with her tongue, and she does this until she fell asleep. Then I realize how blessed I am and thanked God because He gave me such a special gift- the gift to be able to sooth my children. How much worse would it be if she would just scream and push me away when I tried to soothe her? How awful would it be if my babies could not find comfort in their mommy? And as I type this I gotta go because Amalia is crying- the teething. And this time feeling extremely fortunate that I can soothe her- because I know some moms here have gone through the experience where they can not soothe their children (because of the medical condition has not been discovered or how bad it is/etc...) and I am very humbled and thankful to God because even when there were no meds or the meds were not working- God in his mercy has allowed me to be of comfort to my girls. God Bless.
Dec 04, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Mely-there's a teacher at mmo that lost her husband a couple months ago. She has a 6yr old dd and an 11yr old son. Her dd started having problems with her tummy and she throws up all day. Literally sometimes 15-20x a day. They did tests and just yesterday did the pH probe...just to make sure.

I saw the teacher this morning and asked her what they found. She started crying and said NOTHING, UNFORTUNATELY. She feels what you're talking about. She can't do anything for her dd to make her feel better except hold her and love on her. Her dd goes to school and within 2hrs wants to go home. She throws up and cries. She can't handle it without her mommy beside her.

Your story just made me think of this. How moms must feel that can't console their children when they're hurting. She feels both...she can console her but she can't fix it. The only thing that will fix it is time and God's grace.

Your words are so helpful for moms here :)

Dec 04, 2008
stickybean
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
wow! well said. I am in tears. It is so true. I can almost always sooth Joslyn...... It is a blessing to have that ability! Thank you for putting it that way!
Dec 04, 2008
mommy2max&lucy
Patti, mom to Max (3/04) with EE and chronic sinus issues; Lucy (6/07) with reflux
You really hit the nail on the head, Mely! Max was always in pain and screaming as a infant and toddler, but he was always able to calm himself down after being held by me or my husband. Our daughter, however, finds absolutely no comfort in being held or touched...even though her reflux and GI issues don't compare to the severity of our son's, it seems so much worse because we can't comfort her...she literally has to scream until she can't scream anymore. Holding her or touching her makes it so much worse.
Dec 05, 2008
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Mely - I thought that was such a sweet posting & oh, so true. I'm glad you are enjoying your two little girls, even though you are really busy with them at this stage of their lives. My girls are almost 10 & 15 and they are complete joys. It gets so much easier as they get older (well, the teen thing is a little tough!!). But, Eric has been very difficult (he'll be 3 in March) & I never bonded with him like the others because he pushed me away in pain over and over. It does make a difference when you can comfort them. Of course, I now know that it was all allergies/e.e./reflux, but it doesn't help with the time that we lost. Take Care & all the best, Ellen
Dec 05, 2008
mely
Amalia 11/1/06, Silent reflux- Weaned off prevacid in the summer- back on again 15mg. Back on lactaid. Atalia- 6/17/08 DX with GERD and colic at 9 days of age. Appears to have mild MSPI. Upper GI. On Prevacid 22.5mg. Successful transition to whole milk! Eats everything!
Pic. Amalia and Atalia having fun at home.
I thank God that I can be of some help- that's why everytime He talks to me or teaches me something I like to pass it along. Maggiemom- how awful. Did the death of her daddy trigger all of this? Has mom thought of that being a possibility? MAybe explore that idea with children Psychologist? I will pray for the little sweetheart and her mommy. Love maggies' pic! Blueleopard- you are the first mom that I thought of when I posted this. Also babyquinn. I am so happy your son's issues are being discovered, sad that they are more complicated that I'm sure you would like but glad there is an answer to all those months of crying, etc.. Did he ever need a g-tube? Is he tolerating any solids? I hope you find what he can and can not tolerate soon. How's your tummy (gallbladder?)? Mommytomax- I will pray for your little girl. I am so sorry - I can not imagine not being able to soothe my girls. I will pray she outgrows this reflux thing soon. God bless.
Dec 06, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Yes, Mely. I think her mom knew that this was the problem, she was just ruling out reflux or something else and I guess kind of hoping it was something that could be fixed with meds. She said they are going to start counseling. So sad.
Dec 06, 2008
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Thanks for asking about us. Eric is still undergoing testing at C.H.O.P. - big test this Fri. (patch that stays on over the weekend to look for delayed food allergies). Monday we return to have it removed & then they will tell us what to feed (or not to feed him from there). It is a very long process, though, to get the e.e. under control. They will need to do repeated endoscopes w/biopsies. No tube yet, as he drinks the Neocate & takes certain solids right now. I pray that we never have to take that route. Believe it or not, I'm still having health issues. The gallbladder function test was off, but they couldn't find any stones. I am scheduled for an endoscope Jan. 9. If nothing shows they will probably chalk it up to REFLUX. No fun, whatever it is. Take Care, Ellen
Check with your
doctor first!