Posted By Posting
Dec 02, 2008
Renee, mother to Nicholas, born 4/18/08 with silent reflux, moderate laryngomalacia, Sandifer's Syndrome& suspected MSPI. On Neocate, Simply Thick and Prevacid. Also mother to Nathan, born 12/06/06, who had mild reflux the first few months.
Hey guys. Anyone know exactly what "cobblestoning" of the oropharangeal tissue is?? The pedi said Nicholas had this. I understand it is a specific appearance to the tissue but unsure exactly what has happened to the tissue. Is it scarring?? Permanent or temporary damage?? He has had a cold for three to four weeks now. It is my understanding that it can be from post nasal drip but I'm thinking it could also be from the reflux. Anyone have a clue??
Dec 02, 2008
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
The tissue hasn't changed - basically, lymphoid tissue has left streaks on the oporpharynx. This is very common with nasal drip and isn't scar tissue - this tissue is just an immune response. Shouldn't be permanent. Also may be related to reflux, but not generally, since there is no immune response per se to acid.
Dec 02, 2008
mom to 4 kids with probable
Mitochondrial Disease
Dealing with Fundo, J tube feedings,Severe Dysmotility,Aspiration,Asthma,
Connective Tissue Disorder,
Visceral Hyperalgesia, and more
Many meds
Yes, in that area it is generally from post nasal drip. It is temporary. Brent has cobblestoning in his airways on his last bronch, this is from acid reflux damage .
Check with your
doctor first!