Posted By Posting
Dec 02, 2008
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
A small breakthru
So yesterday, after searching and thinking I finally figured out that Jasmine cannot digest fat. I don't know if this is her only trigger, but it's a biggy. After eating anything fried (all homeade) or fatty (olive oil too) she has major gas and bloating the next day, and then the day AFTER that has horrific bouts of diarrhea, reflux and abdom. pain, sleepless nights, arching...you name it. Also, her poops are always clay clored or pale for a period of time following fat foods. I was always told this was normal for babies, but I am an RN and this always bugged me until I researched everything myself ........for hours!!!

I am going to try her back on some chicken soon and pull her off fats for 2 weeks. If she is symptom free, or at least somewhat better, then at least I will be making a teeny weany bit of progress. We are already up to 1 oz of neocate in 7 oz of dairy free milk, so hopefully by the end of th month I can at least get her drinking half half or more.

My other thoughts on this are that she could have sluggish bile ducts, that can cause these symptoms, or a small bowel bacterial infection. I am afraid to hope almost....

Dec 02, 2008
seamus mama
Seamus was diagnosed with Silent Reflux at 3 weeks. Now he is 14 months, on Prilosec and avoiding dairy,soy,egg. Still nursing. A lot !!!
I hope this gives you some answers! What an interesting development..I hope that Jazzy starts feelin' groovey! Please keep us posted!
Dec 02, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
U work so hard to do right by her. U r a superstar and I admire u for all your hard work like the other moms here. Keep up the good work and I am so happy that u have some progress. It sure makes all the difference in the world.
Dec 02, 2008
stickybean
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
wow I think that is new to me. I have not heard of that. If thatis the issue you are regular Mommy sherlock! hehe.
Check with your
doctor first!