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Dec 02, 2008
kcharlie
Mommy Kaden 5/17/07 Dx with Lactose Intolerance at 17 months. On Lactaid; and Mikayla (reflux baby) 10/16/08
Dx with reflux at almost 3 weeks. On Prevacid 15 mg solutab...not working. On Gentlease formula mixed with rice cereal, sort of helping spit-up. Breathing issues, contant hiccups, pain and crying during feeds, constant small feeds thru day, yadda yadda yadda. First visit to GI on 12/4/08 since the pedi has deemed DD's case as severe. DH and I also suffer from reflux, albeit mine is right there with DD's. DS escaped it like a bandit (for now).
Introducing myself
Hi everyone! My name is Krystn and my DD Mikayla was dx with reflux at 2 weeks old. She will be 7 weeks old on Thursday. She is currently on Prevacid 15 mg Solutabs (half in morning and half in evening) but they do not work. She constatntly has hiccups, she constantly spits up ( saturating at least 4 bibs a day) and she squels when she breathes. She also has all kinds of sinus issues. The pedi has referred us to the GI specialist and I'm patiently waiting for the referral to schedule her appt. before my maternity leave ends next Thurs. and she starts daycare (in-home, at my aunt's house). She is on Gentlease formula mixed with rice cereal. I just started adding the cereal yesterday and it's helping a bit. After I finish this can, I think we will switch to the AR instead. I knew Mikayla had reflux right off the bat when she was spitting up so much on the breastmilk. My DS never did until he started on formula, so I just knew something wasn't right. She still feeds constantly from 12 noon- 5 pm, when I think her reflux is at its worst. I think she eats so much 1) to satisfy herself, and 2) to attempt to soother her throat. She will only drink 1.5-2 ounces when she's doing this though and cries constantly. I pretty much leave her sitting in the swing all day to calm her down. I feel absolutely terrible for her because I suffer from reflux. I know exactly what she's feeling. I take 40 mg Protonix daily, but my OB quit filling it since I'm no longer preggo, so now I'm without it. I need to get myself to the GI too, but Mikayla is first priority. So for now I am taking Zantac 150mg daily and chewing Maalox like candy. My DH also suffers from reflux, but his is mild. My DS spit up more than the average baby, so I'd say he had a VERY mild case as well, but he was easy. Mikayla and I are the unlucky ones. I have an AngelCare monitor for Mikayla to monitor her breathing. She sleeps swaddled on an incline in her own crib. I moved her from the bassineete because no one was sleeping. This is working better for all of us. I just hope we get somewhere with the GI doc. I feel terrible for my baby. I know milk flares up my reflux, so I can only imagine how bad she feels being that she only drinks milk. Looking forward to some good advice here. Makes me feel less alone knowing all of you are dealing with tough situations too.
Dec 02, 2008
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
Hi there and welcome. There are so many amazing and knowledgeable moms on this sight. I know you will get the help and support you need.

I am glad that you are going to see a ped GI. It is best to get a specialist for this sort of thing.

I feel for you. My daughter was the same. She was in so much pain and never slept. In her case she took prevacid and zantac together at your daughter's age. But we really didn't see a huge improvement until we put her on a hypoallergenic (spelling???) formula. We used Nutramigen.

Hang in there. I promise it will get better.

Dec 02, 2008
abbysmom
Andrea: Mom to 3 crazy girls!
Jackie (3/01)
Payton (9/03)
Abby (4/06) Prevacid 7.5mg (evening), MSPI, goats milk (currently trying to wean off Prevacid)
Photobucket
Welcome! Sorry to hear that almost everyone in the family is dealing with AR! Yuck! First I would be careful about adding the cereal to her formula. The cereal on an immature digestive system can make things worse. If you want to thicken the formula you might want to ask the GI about Simply Thick. Abby was on Nutramigen for 4mos and then we switched to Neocate. A lot of babies with AR also have a milk soy protein intolerance or allergy. Abby had MSPI and the Neocate helped a lot. So you might look into trying a hypoallergenic formula.

You want to make sure that when you give the Prevacid you give it on an empty stomach and wait 30mins to feed. If the meds come into contact with formula, food etc it can break it down and it will be less effective. I hope that you can get into the GI quickly and that he/she is helpful. We had to go through two different ones to find a good one.

Dec 02, 2008
kcharlie
Mommy Kaden 5/17/07 Dx with Lactose Intolerance at 17 months. On Lactaid; and Mikayla (reflux baby) 10/16/08
Dx with reflux at almost 3 weeks. On Prevacid 15 mg solutab...not working. On Gentlease formula mixed with rice cereal, sort of helping spit-up. Breathing issues, contant hiccups, pain and crying during feeds, constant small feeds thru day, yadda yadda yadda. First visit to GI on 12/4/08 since the pedi has deemed DD's case as severe. DH and I also suffer from reflux, albeit mine is right there with DD's. DS escaped it like a bandit (for now).
gosh, i hope we don't have to switch to nutramagen! that stuff is so expensive! we have done the zantac/prevacid combo too, but she gags on the zantac. guess it tastes pretty bad, so i cut it out. the girl doen't need anymore torture in her life. the cereal is helping with the spit up, but she's having issues pooping now, which i knew would happen, so i will mention all this at her appt, which is thurs at 1030am. and no one told me anything about doing the prevacid on an empty stomach! wth is up with that?? thanks for telling me!
Dec 02, 2008
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
I know what you mean about the Nutramigen. My doctor called it Liquid Gold. I would have taken out a second mortgage to keep her on the stuff. LOL!
Dec 02, 2008
seamus mama
Seamus was diagnosed with Silent Reflux at 3 weeks. Now he is 14 months, on Prilosec and avoiding dairy,soy,egg. Still nursing. A lot !!!
Hi and welcome. I hope you can see a GI soon. I recommend keeping a log/diary of all your observations which you can bring with you to the first appointment. It is so tiring to have a reflux baby so writing helps alleviate the time warp of exhaustion. It sounds like you are taking some good measures to help out your little one. Is she drinking Gentlease formula and breast milk? When you said she only drinks "milk" I assume you were speaking of breast milk? If you are nursing, you many want to consider an elimination diet, where you eliminate possible reflux triggering foods from your diet. This is a wonderful forum and I'm glad you found it. I don't know what I would do without the support and wisdom that I have experienced here.You are not alone and it is SO true..Things will get better.
Dec 02, 2008
engin117
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I am sorry u r dealing with the reflux monster. It is a tough road and makes u stronger to say the least. I have found this forum to be so informative and everyone here has been so supportive. A couple things for information more than anything. All infant formulas including elemental contain corn, elemental contain larger amounts. The exception to this is liquid, ready to feed, alimentum. There are medical foods out there than can be fortified to be nutritionally complete but most docs. are not willing, as there are additional risk.

Often, GI's in my area recommend adding rice cereal to babies milk to thicken, but I often wonder if we would have been better off trying something like simply thick. I would ask for elemental samples such as neocate, elecare, ect. The GI should be able to provide them. If there is improvement, I would ask for your doc. to call insurance medical management and ask for an authorization to have the insurance pay for it. You might have to call their 800 # first and speak with someone to find out if they have medical management and what the # is. I have found the less work u make the docs. office do, the more cooperative they are.

Also, I learned from mothers here that the solutab contains I believe milk.

Check with your
doctor first!