Posted By Posting
Dec 01, 2008
nk'smom
Mom to Nathan
8/28/08
FINALLY DX with silent reflux 11/20/08
Trying Prilosec...? and hoping for the best!
Anyone else on Prilosec?
Hello there, SO glad to have found you! We're new to the forums, but getting experienced with GERD. Our LO Nathan just turned three months and we just officially got diagnosed. WHAT an ordeal and runaround! We tried Pepcid, Zantac and the doc switched us to Prilosec after an upper GI last week. (He refluxed right there on the table, it was beautiful!) Nathan has been on the Prilosec for 10 days now, and today has been pretty awful. He's a screamer, and we've been in the eat-yell-crash-yell cycle all day. What have your experiences with Prilosec been like? We really thought we were turning the corner - we had a really good weekend. Is this something I should expect? I was really hoping for a meltdown-free baby! (Still using Mylanta, by the way.) Also, any sleeping tips? Our ped said and I quote "just get the medicine in him". We haven't gone for more than 3 hours in a row. Everyone is very tired. We have the crib elevated, started using a heating pad and space heater (it's getting cold here!) and keep him upright for at least 10 minutes after he eats. Sometimes we get lucky, mostly we don't. Thanks everyone, I look forward to getting to know you all!
Dec 01, 2008
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
My oldest dd used prilosec for a while. It seemed to help her but she was dx late, at 4 yo. I don't think hers was that severe. Plus, she was four. I think Prilosec is one that you should see a difference within a week or so. So, if you aren't see much relief then I would talk to the doc about something different. Prevacid solutabs seem to work for a lot of kids on here.

I'm sorry you have to be here but I am glad that you found it. These ladies have great insight and tons of experience and if nothing else lots of empathy and understanding. -Amanda

Dec 01, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Do you get it compounded??? We dod {PRilosec fo rJedd even though it woudl NOT be my number one pick for a reflux med for him. We HAD to ahve a liquid and he needed a PPI so our choices were VERY limited.

If you get it compounded, it can go bad very quickly if it is not made correctly. LIke within two weeks. We got ours made at a children's hosptial so we would KNOW it was made right.

Have you tried Prevacaid??? That is the route we woudl ahve gone had Jedd NOT had a feedign tube. He was completely NON oral all tub efed so that's why we needed a liquid.

Also since you are doing Mylanta, you need to be careflu how you give each of the meds. They cannot be given together. They need to be spaced otu properly or they can negate each other.

We always did the Prilosec about 1 hour befor eating and then the Crafate (like super mylanta by RX only) 30 mins prior. At the end of the day we did the Prilosec agian about 2 hours after the last meal. We had a particularly hard time gettign the doses in because Jedd had night feeds form the pump. So it can be tricky.

That all said, Prilosec worked for Jedd greatly as long as we kept on top of his dose. He always needed a really high dose to keep the pain at bay.

Dec 02, 2008
seamus mama
Seamus was diagnosed with Silent Reflux at 3 weeks. Now he is 14 months, on Prilosec and avoiding dairy,soy,egg. Still nursing. A lot !!!
Hi there Welcome! My son has had silent reflux since birth and now he is 16 months old. He was switched from Zantac to Prilosec at about 10 months old..He is a bad sleeper as well, but is pretty happy all day long.He seems way happier on Prilosec than Zantac. It sounds like you are taking many good courses of action with positioning and medicating. Have you ruled out any foods that may be causing extra discomfort?
Dec 02, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Jedd's mommy is right - any compounded H2 blockers or PPI's usually need to be remade every 2 weeks, though some (like pepcid) claim they're good for 30 days. We had no luck with Zantac, Axid, or Prilosec, but Prevacid and Pepcid have made all the difference for us.

On another note, it generally takes 2-4 weeks to really see the change from the meds (PPI's). And use of mylanta or maalox, or any other med really, within 2 hours either side of the prilosec or prevacid dose can render that dose useless - it inhibits the absorption, so just keep that in mind as well. Sometimes changing the dosing times (when we switched to evenings, things went much smoother for some reason.)

For sleeping, we couldn't do the elevation - my dd's been a squirmer from day one, so we got cautious permission from the ped to prop her on her left side to sleep during the day so I could keep an eye on her. And when your LO gets big enough, I highly recommend an exersaucer - it keeps them upright and frees your arms up!!! HTH

Dec 02, 2008
ama
Mommy of Hunter born 07/16/08. Tongue tied at birth, never learned to bf well. Diagnosed with silent reflux at 5 weeks with barrium swallow. Fed on expressed breast milk. Currently on Gaviscon, Omeprizole (prilosec), Domperidone (Motilium)have yet to see medication have any effect on him. His biggest symptom is his distain of feeding time- he hates it. . Hospitalised for two weeks in September, fed through ng tube.
Hello there and Welcome! We had a similar situation , after two weeks in the hospital and going through all the other meds they put him on Prosilec. Considering it was the "big guns" I expected results! Well, we never really got the results. Eating is a bit better (two months down the line) but sometimes I think thats just because he is older and the reflux isnt at its peak, but Im scared to tak him off it! I know what you are going through- its rough!
Dec 02, 2008
ama
Mommy of Hunter born 07/16/08. Tongue tied at birth, never learned to bf well. Diagnosed with silent reflux at 5 weeks with barrium swallow. Fed on expressed breast milk. Currently on Gaviscon, Omeprizole (prilosec), Domperidone (Motilium)have yet to see medication have any effect on him. His biggest symptom is his distain of feeding time- he hates it. . Hospitalised for two weeks in September, fed through ng tube.
oh and one more thing.. even on the Prosilec he will still have good weeks and bad weeks... I thought he might become more consistant but he hasnt :(
Dec 02, 2008
nk'smom
Mom to Nathan
8/28/08
FINALLY DX with silent reflux 11/20/08
Trying Prilosec...? and hoping for the best!
Thank you all! A few more details to make our situation more clear... our Prilosec is compounded, and he gets 1.5mL twice a day. I didn't realize it expired so quickly and could be an issue - we just had it mixed by our local Walgreens and it says right on the label to only use it for 30 days. We use really small syringes given to us by the doc. We try to give it every 12 hours, usually 8ish am and pm. As for Mylanta and it reacting with the Prilosec, our ped said to allow at least 1 hour before and after the Prilosec - is that not enough time? The pharmacist was especially vague about this topic as well. We're exclusively bf, and it's about the only sure fire thing that will calm him down. I was told that since ds didn't show any additional signs of a food allergy (blood in stool, rash) that it was my choice to try eliminating foods. I haven't done so thus far. He's usually very excited to eat. We've really been very lucky - he's gaining weight like a champ and almost never spits. We're just exhausted and ready to rejoin society with a relatively happy child. Not really sure how we'll accomplish anything for the holidays, but...Thanks again and please let me know if you have any other sleep tips - we're slowly losing our minds. We got 4 hours in a row last night, but in the swing. We'll go broke on batteries if that's the answer! :) Best wishes to all!
Dec 03, 2008
seamus mama
Seamus was diagnosed with Silent Reflux at 3 weeks. Now he is 14 months, on Prilosec and avoiding dairy,soy,egg. Still nursing. A lot !!!
Thats great you got 4 hours in a row! Wonderful! There is a pretty good write up on reflux causing culprit foods on this website, which lists foods that you may want to experiment avoiding if you are nursing.These foods arent necessarily allergens but they can cause flare ups..Just an idea if you are interested.
Check with your
doctor first!