Posted By Posting
Nov 26, 2008
stickybean
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
no more apnea monitor!
That is right! The Medical Comp just came to pick it up! Joslyn is free of them machine! She has not even used it in about 2 weeks and ever single download has come back normal. It was only during the day that she had a problem... never at night.

It was such a great feeling to hand that machine to the lady! We said "bye bye" to it and I gladly signed my name! hehe.

The spec at the children's hops said that he wanted jos on it for 6 months and that is what we did. It was not until then did we start getting false alarms due to her beginning to move around.

OHHH HAPPY DAY!!!! Something to be thankful for! One horrific symptom gone....... cross apnea of her list! hehe

Jacky

Nov 26, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
YAY I bett hat sure felt good!!!
Nov 26, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Oh I remember how great it was when they came to pick up Cooper's monitor. It is a great feeling to be rid of it. We did have alarms though, so it was a little hard to sleep with out it at first. KWIM!? I am so happy she is doing well enough to be rid it now!
Nov 26, 2008
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
We dropped ours off today too. Not as happy as you are though. We still have episodes but it is hard to keep an 18 month old strapped onto a machine every night. Thank goodness we stopped wearing it during the day. She would pull it off every time we put it on her. You know what kind of sound those things make when the leads come off. Now I am her only monitor. Which is scary!

I'm so happy for you and Jos. I know that she will love not having the monitor.

Nov 28, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
i am so happy for you guys ever little bit is such an accomplishment and i hope she keeps out growing and outgrowing!
Check with your
doctor first!