Posted By Posting
Nov 26, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Biopsy results
I spoke with the GI nurse today. They still do not have his probe study back yet, but they did have the biopsy results and it showed reflux damage. They will be switching him to nexium 10mg 2x daily, I believe that is the dose. We haven't got the med yet b/c it requires prior authorization and the pharmacy was going to have to order it. hopefully we can get it by Friday. It wasn't our usual nurse so I forgot to ask about the eos count, but since she didn't ment it, I assume it was fine. I am so glad we did the egd now. I can't believe /i ever questioned my decision.
Nov 26, 2008
stickybean
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
poor baby! I hope the rx helps!
Nov 26, 2008
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Nexium really helped Jasmine the most with her reflux. We went thru everything else first, but this seemed to be the best one for her. I hope that's the case with Cooper too. I also liked that it was pretty effective within 3-4 days!!
Nov 26, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Poor Cooper!!! I Pray the Nexium does the trick and gets him healed up.
Nov 26, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Saw the toher posts and thought I add something but didnt' want it missed.

I know with JEdd anytime he goes to the O.R. for somethign it bothers his GI tract as wellas if he is intibated or has anything stuck down him (like the EDG probe) he will be super gaggy and uncomfortable for a bit. For him it all depneds on how long he was out for.

I hope it passses fast. When he had his hypospaidas reapir it lasted jsut over amonth, but that was a much longer sedatin and intibation than Cooper had so hoepfully his will pass fast.

Nov 26, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Thanks Jessica. That does make sense. I think Cooper was only under for about 30 min, but I am not sure how quickly after that that he was extubated. All I know is that he was unable to see him b/c he could maintain his o2 sats for 3 hrs after wards. This is one of the worst flare ups he has had in a long time. He puked all over me himself and his lovey right b4 bed last night. And I am hearing him "gulp" all the time and seeing stuff come up and watch him swallow it back. It is awful.
Nov 27, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
i hope the nexium works well for him and he feels better soon, i am glad you got peace in your decision to do the scope.
Check with your
doctor first!