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Nov 26, 2008
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
jedd'smommy/ Reglan
you were right...GI said Reglan tends to lose it's effectiveness after about a month...bingo...a month to the day...we went up to 2ml 4x's a day...I'll be watching for side effects! We are also going to see an allergist soon.
Nov 26, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Just stay on otp of it...LOL I think the reason they need to do this (maybe) is because well, it is one of those drugs tha tjust needs to be *just right* in order to work so a weight gain calls for an increase. And also, it lessens puking which makes the chidl gain much easier than before....I'd watch the reflux meds he's taking as well. Jedd always needed his bumped when ever had gained well.

I pray it keeps wokring for you. Reglan was on eof those drugs I WISHED we could have kept. It worked soooo sooooo well for Jedd, but he was extremely irritable and we jsut coudl hnot take it anymore... ;(

Nov 26, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
There were things about the reglan we hated, but it was the only thing that kept Cooper breathing for the first few months. I hope you see a difference very quickly!
Check with your
doctor first!