Posted By Posting
Nov 19, 2008
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Anyone know eher I can get some elecare samples?
They don't sell this in Canada, but I wanted to try some unflavoured and mix it up a bit......Any ideas? I also don't want to buy a case until I can get her to try it!!!
Nov 19, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
have you tried e-bay? i know you don't want a case but some times you can find cheap individual cans... i hope the others can come up with some better ideas!
Nov 19, 2008
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Good idea...Thanks!!
Nov 19, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
I don't know if the MD's do this up in Canada, but our ped gave us a sample can of every formula suggested...can you ask to see if they could give you a can? Or maybe ask a pharmacy if they have any about to expire that you could try.
Nov 19, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Sometimes the formula websites themselves will send you out a sample if you give their customer service center a call.
Nov 20, 2008
mommy2max&lucy
Patti, mom to Max (3/04) with EE and chronic sinus issues; Lucy (6/07) with reflux
Elecare (made by Ross) will send samples...we got samples of unflavored and Vanilla Elecare. I also had my mom and my best friend call for samples to be mailed to their houses. A bit shady, but at $40 a can, I was willing to do whatever to try it before buying a whole case!
Nov 20, 2008
refluxmama
Cassandra Lynn 10/23/06. Former 29 Weeker Preemie. Reflux since birth. Prilosec Liquid 2 mls am. and pm. Elecare formula 30 cal per ounce. Severe oral aversion/complete bottle and solids refusal! NG tube fed since birth, G-tube Placement on October 3rd 2007, very DGE and motility issues, FTT, developmentaly delayed,
Hypotonia. Recieves Speech therapy for feeding problems, Physical Therapy for muscle weakness and delayed gross motor also has Developmental teacher and soon will be attending a feeding clinic. She's on a continous 24 hour feeds. Except for when I give her a break :) She's tolerating 40-45 mls an hour with some vomitting, can not tolerate a bolus at all, not even a 2 ounce over 30 min :( one . ~Picture: My baby is a big girl now :(
I actually get 13 cans a month from ins. so I usually have some left because I have been giving Cassie baby foods through her tube during the day. I can spare like 3 cans, so if u still need some I will send them to u for free. We never actually found out if Cassie was mspi but we figure she is not or maybe it is just not as severe but this formula really helped for her dge because it was easier to digest. Let me know if u want to try it email me at- cassiesmama1023@yahoo.com
Check with your
doctor first!