Posted By Posting
Nov 18, 2008
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
Meridith - Ethan's mom
My own physician has taken her daughter to Kansas City for GI issues because the same ped GI that A goes to wasn't getting anywhere. I have heard great things. I am thinking that we are going to have to go to CO because NJ for kids has the best allergy, asthma, and excema hospital and docs in the nation, not to mention a great neuro team at Denver Children's. These are probably more important issues for us right now. At this point I feel her reflux and MSPI is pretty much under control. I think anything that is left is secondary to the allergies and everything else.

If you hear of any good things in those dept. I am willing to look. We will pay whatever we have. The sad thing is that she is double covered on insurance. She has my husband's and mine and we are still going to have to pay that much just because we don't live in the state. I think that is ridiculous. What do you do when you are out of resources in your own state? I just feel like someone has kicked me in the gut or pulled the rug out from under us. We had some hope and now we have to figure out where the $ is coming from first. Let me know if you hear of anything else in KS. Thanks! -Amanda

Nov 18, 2008
ethan's mom
Mom to Ethan, born 4/23/08. Diagnosed with Reflux at about 1 month, started medicating with Zantac, which wasn't helpful for us. At about 2.5 months, we started on Prevacid, twice a day, and that is working much better.
Ethan is breastfed and has a few solids that he is enjoying very much.
I figured that you had probably thought of everything already, but wanted to put it out there, just in case. I fortunately, or unfortunately, depending on how you look at it, don't know anything about the other specialties there. I will keep my ears open however.

I wasn't sure where NJ was, so I thought maybe this would be closer, thus saving some expense.

You have probably already looked into this, but is there an appeal process with your insurance company? I know that I can appeal decisions on mine, though I haven't ever had to do so, so I'm not sure if it works well or not.

If there is anything that we can do to help, please let me know. Maybe there is a charity or something out there that could help. . .

Check with your
doctor first!