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Nov 18, 2008
annegirl1919
sharlin, mom to aviah, smith and faye (4/08)-dx with acid reflux (mostly silent) at 6 months.
Looking back I suspect she's been dealing with this for most of her little life. She's tried about every formula in the book and is currently on liquid alimentum, which has really helped a lot with her fighting feedings. We also tried zantac, but she became MUCH worse, and so we've been trying to work on helping her through her diet. she's also taking probiotics, and i'm hoping to get her eating some solids more regularly.
variety needed? fruit juice? solids? help!
it seems that whatever we put our little one on, she does better for awhile (what awhile means varies by what we try) but then things always eventually seem to get worse again. like a little over 2 weeks ago we put her on a new formula, and she was doing better on it for about a week and a half, but now the last 4-5 days, she's spitting up more, aspirating once in awhile again (aspirating is when they choke on the spit up and don't breath for a little bit, right?) and fighting feeding more and getting less again. i wonder if it's possible that since she's basically only getting formula-which is the exact same thing every time, if over time it uses up her reserves of certain kinds of enzymes to break down whatever it is in the current formula, and then she starts to have issues again. i keep waiting to give solids because nothing ever seems normal, so i never feel like i'd really know what was going on with them, but i wonder if solids or fruit juice or something more fresh than formula would be good for her system. like maybe some fruit juice once a day instead of formula for all the meals? but once again, i'm afraid to try anything, for fear of making it worse, or not knowing what is causing what. anyone else feel that variety helps? any experience with juice and how it affected the reflux? (it's silent here.) thanks!
Nov 18, 2008
maiam
maia m - GERD. Nissen Fundoplication w/hiatal hernia repair.
Mom to
Son (10) GERD(aspiration pneumonias, apnea, tracheomalacia), Food allergy, Asthma
Daughter (6) GERD, Heart Murmur, Food Allergy, Asthma, Mold allergy
Juice is a big no no for my kids' reflux. Have you tried elemental formula? Have you tried reflux meds -- other than Zantac? If your little one's tummy is not doing well, I wouldn 't add solids to the mix -- been there, done that, and the reaction was severe. Have you seen a Ped GI?
Nov 18, 2008
annegirl1919
sharlin, mom to aviah, smith and faye (4/08)-dx with acid reflux (mostly silent) at 6 months.
Looking back I suspect she's been dealing with this for most of her little life. She's tried about every formula in the book and is currently on liquid alimentum, which has really helped a lot with her fighting feedings. We also tried zantac, but she became MUCH worse, and so we've been trying to work on helping her through her diet. she's also taking probiotics, and i'm hoping to get her eating some solids more regularly.
she was on neocate, but still had some eczema, and was eating worse than now, when she's on liquid alimentum. i think it was the corn. she wasn't horrible on it, but was definitely doing better on alimentum. (probably still is, at this point, but it's heading downhill.) we had an appt for a ped. gi, but we really don't want to go that route unless we can't cope. we aren't thrilled at the thought of the barium swallow (required before we can see him), and so if she isn't in too much pain and will eat a decent amount, we aren't going. our main issue with her is fighting feedings, but she's still usually getting 30+ oz by the end of the day. her pain and symptoms got so much worse on the zantac, that i am not trying another med with her unless it gets unbearable. i have never been so tormented in my life, to see my little one just gagging and growling and choking and trying to stuff her hands down her throat and fighting, fighting feeding-pretty much constantly. we feel like it's manageable at this point, but it stresses me out when things start to go back downhill. so when do reflux babies start eating solids? (she has had some, just not consistently). i haven't noticed any real bad reactions to it, but haven't done it enough to see any worse reflux patterns or anything. are there just times when the reflux is worse for no apparent reason, and then it gets better again? and if my kid is a normal reflux baby and outgrows it by a year, will it start to get better before a year, or is it like a light switch at a year? thanks again!
Nov 18, 2008
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
Why do you have to do a barium swallow just to see the GI? That doesn't sound right.
Nov 18, 2008
annegirl1919
sharlin, mom to aviah, smith and faye (4/08)-dx with acid reflux (mostly silent) at 6 months.
Looking back I suspect she's been dealing with this for most of her little life. She's tried about every formula in the book and is currently on liquid alimentum, which has really helped a lot with her fighting feedings. We also tried zantac, but she became MUCH worse, and so we've been trying to work on helping her through her diet. she's also taking probiotics, and i'm hoping to get her eating some solids more regularly.
that is the requirement of the only ped gi around here. he won't see you if you haven't done it. apparently that's not normal?
Nov 18, 2008
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
I have never heard of the test pre-requisites. That is kind of odd. The Barium swallow isn't too big of a test. We have had to do two. I know it seems horrible but if there is something wrong it might be a useful tool to tell you if something isn't working anatomically speaking.

I will agree with the pp about the juice. A and M both had a hard time with juices. M is 5 and she still doesn't drink too much and when she does it is still diluted. A is only on formula still, at 18 months. I think if I were you I would not introduce any solids to her until everything else seems to calm down. Then I would try them for two weeks at a time. We are doing that. Granted A is older and has several different issues but it is just easier to pinpoint the offending food if you really trial it by itself.

I hope that you get some answers and things get easier. -Amanda

Nov 18, 2008
seamus mama
Seamus was diagnosed with Silent Reflux at 3 weeks. Now he is 14 months, on Prilosec and avoiding dairy,soy,egg. Still nursing. A lot !!!
Hi..Have you considered seeing a different GI for a second opinion?
Nov 18, 2008
annegirl1919
sharlin, mom to aviah, smith and faye (4/08)-dx with acid reflux (mostly silent) at 6 months.
Looking back I suspect she's been dealing with this for most of her little life. She's tried about every formula in the book and is currently on liquid alimentum, which has really helped a lot with her fighting feedings. We also tried zantac, but she became MUCH worse, and so we've been trying to work on helping her through her diet. she's also taking probiotics, and i'm hoping to get her eating some solids more regularly.
actually, it was her regular dr. that diagnosed her, and as far as i know, the gi he was going to refer us to that requires the barium swallow before seeing him is the only ped gi around here. :(
Nov 18, 2008
annegirl1919
sharlin, mom to aviah, smith and faye (4/08)-dx with acid reflux (mostly silent) at 6 months.
Looking back I suspect she's been dealing with this for most of her little life. She's tried about every formula in the book and is currently on liquid alimentum, which has really helped a lot with her fighting feedings. We also tried zantac, but she became MUCH worse, and so we've been trying to work on helping her through her diet. she's also taking probiotics, and i'm hoping to get her eating some solids more regularly.
also, last week i was giving her some rice cereal to help with some diarrhea that i suspected was coming from the new formula. is it possible that it irritated her system and it will take several days (or longer) to get her back to normal, or should it have cleared up pretty much as soon as i stopped giving it to her. (also, if it is the problem, it didn't cause a problem until several days after starting it.)
Nov 18, 2008
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
Okay, if the rice cereal is a problem then it is probably an intolerance or an allergy. Allergies usually show up immediately, at least with the rice they did for Adriane. The intolerances, which means that her belly couldn't take it, usually showed up after several days of having it. What brand of rice cereal was it? Some have milk or soy in them. If she can't tolerate those it could be that or the rice itself. Yes, it can take up to a week or more to get their bellies healed after giving them something that doesn't agree with them. This is my experience anyway.
Nov 18, 2008
annegirl1919
sharlin, mom to aviah, smith and faye (4/08)-dx with acid reflux (mostly silent) at 6 months.
Looking back I suspect she's been dealing with this for most of her little life. She's tried about every formula in the book and is currently on liquid alimentum, which has really helped a lot with her fighting feedings. We also tried zantac, but she became MUCH worse, and so we've been trying to work on helping her through her diet. she's also taking probiotics, and i'm hoping to get her eating some solids more regularly.
thanks for your thoughts. it was beech nut-the one with out the milk or soy stuff. i couldn't believe when i looked at the labels how many had a lot of stuff besides rice!!!
Nov 18, 2008
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
If he is truly the only ped. GI around I guess I would go ahead with the test. If your little one is having troubles it is so important for them to be seen by an expert. Reflux/GERD is really not something to be taken lightly.

Maybe push your ped. again for another GI that doesn't have that requirement - never heard of such a thing.

Nov 18, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
Hi, I have a few thoughts. My first reaction is that if she is choking, and stuffing her fists in her throat, she has reflux that probably needs to be treated in some fashion. The extent of the reflux would determine the best treatment. For instance, you could start solids....some babies do better on solids because it helps keep stuff down. BUT, if she is in pain, introducing solids could be disastrous and lead to much worse feeding difficulties down the line. Probiotics do help, and you are doing that. Zantac does not work for all babies. If she was worse on zantac, that is not to say she wouldn't do well on another medication. I understand your feelings in not wanting to medicate, and if you feel it is manageable, that is great. But without the barium swallow or the ped GI, you will not know if it is manageable for her. An infant that fights feedings is not normal....this is one of the few instincts they have, and if they are fighting this instinct it is for a reason. It could be that she is in pain or it could be that she is not hungry. What is her feeding schedule like? Is she demand fed? 30+ oz a day could mean two things: she's fighting cause she is full, or she is wanting to comfort feed to soothe her throat and belly.....hence, she fights it, but still drinks. This is only my opinion, based on my own experiences, but if you truly believe she is in pain, I would do the test and see the GI, and consider a new medication, because the consequences could lead to many more months of fear and frustration for all of you. My impression is that you are struggling with what is best for her, and only you can decide that. It's a tough decision to make with babies that teeter-totter.....it's completely normal for them to confuse the heck out of you with the good-week, bad week scenario....that's why it's called the reflux roller coaster :) Good luck!
Nov 18, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
We did okay with juice, except she choked on it (still does to a degree). The baruim isn't much of a deal - my hubby and I were both with her the whole time. She had it at 7 weeks old. The worst part was the poop afterward, but it passed fairly uneventfully.

I'd say do the test if you can and get into the ped GE - zantac made my dd even more irritable than without (and that's saying a LOT) and it's one of the side effects as well. I had a new kid once her meds were right.

Have you asked the MD about Maalox or Mylanta? Carafate? Is she MPI or MSPI? If not, we had great luck with Good Start NAtural Cultures.

As for formula, if she's MPI/MSPI, then I agree with maybe another elemental like Elecare if the Neocate didn't work for her. You could also look into giving her some digestive enzymes to help break it down further if the MD thinks it's okay - worked for Allie when we started her on milk and she got VERY constipated...again...It sounds like she's eating a good amount. We could barely get Allie into the 20-24 oz range until she was 11 months. Maybe too much formula? I dunno - we did 4 oz every 4 hours for what seemed like forever, and that helped with the vomit and choking to a small degree. HTH!

Nov 18, 2008
annegirl1919
sharlin, mom to aviah, smith and faye (4/08)-dx with acid reflux (mostly silent) at 6 months.
Looking back I suspect she's been dealing with this for most of her little life. She's tried about every formula in the book and is currently on liquid alimentum, which has really helped a lot with her fighting feedings. We also tried zantac, but she became MUCH worse, and so we've been trying to work on helping her through her diet. she's also taking probiotics, and i'm hoping to get her eating some solids more regularly.
the choking and stuffing hands down throat was when she was on zantac. most of the time she isn't growling anymore (and i know some growling is a normal baby thing, but since we've been through this with her, i'm never happy to hear it.) she rarely tries to stick her hands back in her throat anymore, and really isn't having many issues aside from fighting feedings some. never her morning one, and many of them it's just at the beginning and then she does pretty well. but sometimes i know she's hungry, and she fights. so i know the reflux is still there and an issue at times. and i guess it seems like it's more again lately. i had heard, too that solids help lots of babies, but i'm so scared to try anything, and i can't seem to get a full straight good normal week so i feel ready to give solids a good try.) i feel that this is also more frustrating because she's mainly a silent refluxer. i feel like if she just puked all over, it would be nice in some ways because i'd get a more immediate response. instead i have to wait days to tell if any little thing is helping or hurting. :( i probably make all of this a bigger issue than i should. seriously compared to most of you, i have a dream baby, but yet i know she's not just perfectly ok, and it wears on me. thanks all for your thoughts and input. i'll think it all through.
Check with your
doctor first!