Posted By Posting
Nov 18, 2008
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
Changes! - OT
I was just sitting here thinking about the difference in my life after I had the second child. I'm not sure if it is the second child or the second child with special health issues. Either way, my life is totally different. When I had Morgan I still did stuff with my friends, took her everywhere, tried staying at home but perferred working. I needed the social time and interaction with adults. Now, I think I need to be home and some weeks spend more time at home than at work. I hardly ever see my friends, I'm sure part of that is because they all have multiple children not to mention we live in a different town now. I feel pretty isolated.

We used to keep in touch on myspace. Now I am on facebook and only look at it every once in a while. I used to check myspace every morning when I woke up and every evening before bed. Now I am on here checking in with you guys at those times. It just seems foreign to me. I'm done rambling. I just think the differences in my life just two years ago are like night and day. I hope everyone has a great day. -Amanda

Nov 18, 2008
amber f
I totally understand what you are going through. Before Nolan I had joined a gym and that helped a lot. Now that Nolan is doing better I might do it again. It forced me to get out of the house a few nights a week and have some time away from the kids.
Nov 18, 2008
amber f
Oh and I am on facebook and so are a lot of the mom's on here. If you find one of us you'll find the rest:)
Nov 18, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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Yeah, i totally agree. I"m a single mommy. Sometimes, i envy other single people who don't have the kind of responsibilities I have. I get invited out often. i get invited to stay up all night and play World of Warcraft with some of my friends in town. As much as I would LOVE to just have a day without responsibilities like this, it's not feasible. Quinn is getting better. She does still have all her meds, her oxygen, and etc, but i don't feel like we are walking on thin ice anymore with her health. So it has given me some extra time to think about other aspects of my life. Hopefully one day, you will have that same kind of relief with Adrianne and it will give you some extra time to focus on your social life. For two and a half years, Quinn and getting her healthy and safe was all I could think about. Now, she is doing better and I am able to put some attention into my friends and my boyfriend. (Quinn is still my number one, though) -Sarah
Nov 18, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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amber-f... i'm laughing at your last post because you are right about that!
Check with your
doctor first!