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Nov 17, 2008
bib3mama
I have 3 boys, youngest has gerd, 18 months of no sleep. Prevacid 2x/7.5 mg thinking of switching to prilosec.
going to see the GI nurse
Hi Mamas. We are going to see the Gi nurse this Wednesday. David is 19 mo. We've been to the GI nurse once (yes, "nurse" appearantly David has to jump through some more hoops before a Dr will see him) and the outcome was wait and watch. David is growing (10%) ok and developing well. He nurses still and all night long sometimes. He woke up this morning at 3am and nursed on & off until 6 when I angrily got myself & him up. I think it is reflux. He has been super gassy the last two days. Now he is slumbering away and I am up with my other two. We homeschool. No rest for the weary. David takes prevacid 2x 7.5mg. I was afraid he'd be on it forever when we first put him on it. The docs said "no worries. He'll be off it in a couple months." Well, that was when he was 3 months. Logically, I don't see how he or any other child can get off the stuff without an acidic flair up, pain, trauma, and more sleepless screamy nights. It's like we have just postponed the "colic" that he was first dx'd. Oh, my.
Nov 17, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
You mena you don't even get to see a GI?? You only see the nurse....at our hospital the GI nurse aren't even Nurse Practicioners.....so how do you go about getting your RXs????

I'd push to see THE GI not a nurse....I've had nurses tell me some pretty dumb things about GERD/reflux. And they worked IN the GI office so they should have known better.

Or are you in Canada, I know they normally have to wait some times to get seen by the GI and have to see nurses or a GP instead.

Nov 17, 2008
bib3mama
I have 3 boys, youngest has gerd, 18 months of no sleep. Prevacid 2x/7.5 mg thinking of switching to prilosec.
We have not seen a GI Dr becz he is doing fairly well. Has no apnea that I know of, is growing, etc. His ped rxs the prevacid. David also had a VSD which repaired on his own at 4 mo. I am going to be more insistent about seeing the actual dr and having him tested. He's not been tested either! We live in the NW, USA. He also has a turned in foot, not really noticable. Is that linked with GERD? (Aubrey's mom- I hope she is doing better today)
Nov 17, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Jedd's legs were kinda bowed a bit. It was noticable. The pedi told us that as long as the hip, ankle, and knees were alinged/straight, then it would grow straight and the bowdness would go away. It has. You really can't tell at all now that Jedd is 2. She did watch him stand before he coudl walk and watched him walk and run in the office halls to see how he was doing and to check the straightness. So for us, Jedd outgrow it, or at least his bones did...LOL

The nly reason I mentino seeing the actually GI everytime is sometimes they think of things because of their training you would never think of and the nurse would never think of putting together. KWIM.....it's book smarts, practice and Mommy instict combined that helps sometimes.

dont' get me wrong, I've passed by some pretty awesome nurses, quite a few. But it all depneds on how long they have been nursing and if they are a nurse practitioner (more years of school and more training, they can also write RXs with out the Dr singing) They also get to tell the residnets what to do and wher eto go...LOL I LOVE that part!!!!!

The heart surgeons nurse stood at the end of Jedd's PICU bed and was barking out order sto everyone and they were ALL jumping!!!!! This was while they wer egettign him settled after his open heart surgery.

I meant literally, he had just arrived iin the PICU and they let us in while still hooking him all up. They let us in fast becasue we had accidentally ran into Jedd coming out of the O.R. It was very scary to se him like that, I think the scariest was he was being "bagged" by the anesthesioligst while unhook form electricity. My son's life was IN that man's hands. God bless him.....I am rambling now...LOL

Nov 17, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Yeah, I would demand to see the dr. You aren't paying high $ specialist fees to see a nurse. Cooper nurses all night when he is teething and/or going through a reflux flare. It is so tiring and he's my only one, so I can't imagine. I hope you can see the dr wed and get some answer and some sleep. Hugs!
Nov 18, 2008
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
Ugh...I hear you with the all night nursing...it can be maddening at times, and yet it can be so hard to know if they are doing it from pain, emotional need, habit or what. And sleep deprivation does not make for the mama we envisioned ourselves as back in the days of peaceful slumber (ie, before we were mamas :) ). So ((HUGS)) to you...I hope some answers, or at least some mysterious resolution comes your way soon. (Also, if you're in the NW, I highly recommend looking into craniosacral therapy for him -- I think I already got on this soap box :) -- there are lots of practitioners throughout the west, and it really can do amazing things for the non-sleepers.)

We're planning on home schooling too! I'm so impressed that you manage to do so with two school age and one sleepless toddler!

Check with your
doctor first!