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Nov 15, 2008
sadie
Our 1 year old daughter has silent reflux, hypotonia as well as benign external hydrocephalus. We are currently weaning onto whole milk (we'll see if it works) and she is also on Prevacid 15mg per day.
Keira/Sedation Part 2
Thanks for all your experiences and thanks about what to expect during sedation itself! And I know that there are many of you that have had your little ones go through FAR more invasive tests and even have needed multiple surgeries and that to you this MRI thing is nothing compared to that. I've not been down that road yet but my heart truly goes out to you and I admire your strength. I think some of the reason I'm upset is years ago my niece had an MRI at the same place for a different reason- to check her "growth plate/s" or something. The sedation did not go well and they had an awful time during the MRI as she was still somewhat alert and kept trying to squirm and such. I think they had to give more sedation and we saw all this through the window. She was older than Keira but still... If Keira was having an MRI of her knee that'd be one thing but when it's of her brain because the "white matter in her brain has decreased" it's a little upsetting you know? Anyways thanks for all your experiences and such. :)
Nov 15, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
I hope it goes so well and that you never have to do it again. It is so hard to know your lo is going through something and you can't be there with them. The first time Cooper was put to sleep, we got to go to the or and hold him until he was almost asleep. Since then they have changed the policy and we will have to wait in the waiting room. I am dreading that!
Nov 15, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
I have been thinking a lot about you lately. I'm so sorry that you and Keira are going through this. Sending HUGE hugs!!!!
Nov 15, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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Hi, I meant to mention on my other post to you that although it is super scary to hand your baby over to a stranger, the one time that I held Elyse while she was being sedated it was really freaky. It made me really uncomfortable. It reminded me of when I had to put my dog to sleep a few years ago and is something I never want to see again.
Nov 15, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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I just read the other responses to your first post and saw others had added that it is scary to watch them being sedated too! Trust me, you don't want to see it! i think that is why they don't let loved ones into the OR typically!
Nov 15, 2008
sadie
Our 1 year old daughter has silent reflux, hypotonia as well as benign external hydrocephalus. We are currently weaning onto whole milk (we'll see if it works) and she is also on Prevacid 15mg per day.
Oh- they do have you in there during sedation. But then they take them into the actual MRI room and that's when you stay put in her room. It takes an hour and dh isn't going so it'll be one heck of an hour. The good news is that I thought the neuro said it would take five or six days to get the report but it's three days so I'll have some answers (I hope) this week. (They close on Fridays at 1pm)
Nov 15, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Oh girl, I totally understand! I was a nervous wreck just with Mags getting ear tubes :) Just have faith it will go well. I know that experience in the past must really make that hard for you! Remind us of the day and I'll say some prayers for ya! Hugs!
Nov 15, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
You know...in response to what Sharon said, I don't think I could handle watching that either. I thought about that when Maggie was dozing off in my arms with the lortab they gave her. I didn't like the feeling of her going to sleep forcefully, kwim?
Check with your
doctor first!