Posted By Posting
Nov 14, 2008
natasha&weston
I need help!!
Hi, I am a new mom and my son Weston was just diagnosed with GERD. We have had symptoms since he was a week old and he was just labeled as colicky. After 3 months and the symptoms were worse and more frequent we tried Colic Calm. It worked the first time and then after that, it didn't do anything but made me do more laundry because of the black stains and made him worse because of the poop factor. It made his poop really wierd, so I stopped it. About a week ago I took him to the Dr. again and that is when the doc said he had GERD. She gave us Zantac. We tried that twice which made my 3 mo. old's symptoms 100 times worse, like projectile vomiting atleast 20 times. When he started vomiting blood, we took him to the ER. Nothing was done at the ER other than a stomach xray and we were sent home with no answers. So, we tried Baby's Bliss Gripe water, an all natural remedy. That helped the first few times, but now is not helping AT ALL! He won't sleep longer than an hour and wakes up SCREAMING!! I need help. I can't do anything. I can't clean, I can't take a shower, I can't cook! I am a wreck! Am I just supposed to live like this!?!?! I am thinking we should try Prevacid but am scared that his will do bad things as he is so young to be on meds. Weston is breasfed and seriously wants to eat every hour! I really really need help. I am losing it!
Nov 14, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Levsin was our miracle! It really depends if it is really reflux or spasms or gas.

If Dad puts Weston on his shoulder, does he stop crying? I say Dad because their shoulders are usually broader and do a better job than ours. The Fisher price Aquarium swing is a helper too, if your little one will stay in there okay. It is low to the ground and doesn't require a lot of strength. Or, one of the cradle swings.

I am sure u have tried it all, but I wanted to throw things out for in case. Most on this board have been where u r and can offer other sugggestions.

I hope things get easier for you soon. I know how hard it can be when u just can't get anything done or have a moment to yourself.

Nov 14, 2008
natasha&weston
Thanks for responding. I am not sure what it is. The Dr. just said that it was GERD. I had never heard of this before, so I am new to this whole thing. He vomits very frequently and acts upset most of the time. He wakes up a lot screaming and after I burp him, he seems to be better sometimes, but not all of the time. I have tried to keep him upright most of the day and have elevated his crib, bassinet and changing table. We do have a swing and is okay for about 15 mins in there. He seems like he wants to eat all the time too but then he is worse after I feed him. It is like a cycle. Sometimes when he is eating he stops and cries like it is hurting him. He just seems miserable and I can't seem to help him. I just feel so horrible. What is Levsin? The more I know and try the better! Thank you!
Nov 14, 2008
stickybean
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
oh I am so sorry! I can understand your pain... i think we all do!

One thing that helped joslyn was when we got a snuggli carrier. The kind that you wear and your baby can hang in. It kept her upright and close to me. I was able to do house work with her in it. Have you tried Maalox? When your son is having issues while feeding maalox may help. You can prob do 1/4 tsp 4 times a day. That is what our GI Doc said to do. It helped Joslyn a lot!

I wish you a nice HOT shower, a home cooked meal, and a clean home!!

Jacky

Nov 14, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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prevacid was a miracle for us, not that it made her projectile vomit any less, but it did help with the pain and she was more willing to eat. Sounds like your LO is a comfort feeder. i would talk to the doc about trying prevacid and see what s/he says, ask all your questions, ands ee if you feel comfortable. I always talk to the pharmacist too because I like a second opinion on side effects, etc.

is there anyone available like your mom who can come help you? I would not have survived without my mom to help with the mountains of puked on laundry, and to just hold her for awhile!

Nov 14, 2008
natasha&weston
Hi! I wish my mom was here! That is all I want right now! I live in San Diego, my husband is in the Navy and is gone most of the time and my mom lives in South Carolina. So, it's been really really hard. I live off of about 2 hours of sleep per day and I feel awful! So, the Prevacid didn't help the vomiting? What helps that? Every time he vomits, he cries more. I may try Maalox to see if that helps--thanks!! Yes, he is def. a comfort feeder, but makes it worse in the long run. He just needs to be held all the time and im going crazy! I just called the doc again to get another appt....maybe request a gastro specialist if the doc can't help. Something is making him cry and I want to find out what it is. GERD can be so many different things causing him pain. Thanks for all the help! I appreciate it so much.
Nov 14, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
Hi there and Welcome. I'm sorry you and your little man are here. :( I would definitely try prevacid. The benefits of medication will far outweigh what you and he are currently going through. If he is vomiting so much that he is bringing up tissue and blood, he needs his esophagus protected. My daughter was also a huge vomiter. Her doctor didn't even bother to prescribe zantac, we went straight to prevacid. I have also had my daughter to the ER for vomiting blood. It is from chronic vomiting, and acid damage. Prevacid stops the stomach from producing acid, whereas zantac sort of neutralizes or blocks the acid. It sounds like your son is comfort feeding, to soothe his throat. This is something you should know about. It is an actual issue that makes it difficult for mothers of comfort feeders to get their doctors to listen. If he is gaining fine, doctors seem to not be as quick to see the problem. It is obviously a huge problem, because mom and baby are up all night feeding. Prevacid had a huge impact on our daughter's appetite. There is less acid to break down the food, and thus she felt full longer. In that sense, being on prevacid might give you a break, and get him on a more "normal" feeding schedule. My daughter vomited all the time. It was the most difficult thing I have ever dealt with. There are ways to cope with the vomiting, but first you should ruled out milk soy protein intolerance, lactose intolerance, anatomical issues (usually through an upper GI), and perhaps get a pedi GI on board. Once these issues have been ruled out, understanding that there may be nothing but time that will help with the vomiting, it will be much easier. The worry of "WHY?" is overwhelming. Accepting that he is a puker, protecting him from damage, and finding support and help with how to cope will change your world, trust me. This place has been my life saver. I did not breastfeed long, and hopefully others will pop in on this, but changing your diet may have a big impact. Many moms here have breastfed their refluxers with great success, so please do not give up in that respect. I didn't have a screamer, so I'll let some of the other ladies give you tips on that, but with respect to the puking, here are some things to try:

I know winter is coming, but whenever you can, nurse with as little on as possible, on both of you. The skin to skin contact is great and you will have less to wash at the end of the day. Keep recieving blankets at the ready at all times. If you look online, you should be able to find a wash solution that allows you to soak pukey clothes in a large bucket (with a cover), that you can drain when you are washing. Then, if you don't get to it, it won't smell so bad and you won't feel compelled to get it done if you are exhausted. If you have lovely new furniture (like I did), pick one that you can easily part with in 6 months and feed him there. Maybe go out and buy a second hand, easy to clean rocker. My leather chair literally had nothing left to it after 16 months. I also burped her in the kitchen, because I have carpet, and most of the times burps led to messes, which I could more easily clean off of linoleum. Experiment with burping methods too. We tried thickening her formula briefly, and for us, it did not help. Do you feed him expressed bm at all? If so, you could try to thicken it. It may help to keep it down more.

I won't lie. There's lots to look into. It may get worse before it gets better, but the thing to know is that it DOES get better, and you and he will be much closer in the end, for struggling together. Remember that he is most likely in pain, and he needs you to be strong. Get support where you can. Get a GREAT doctor on board who understands how GERD impacts families. Pry yourself away from him and trust those around you, so you can take a few moments to yourself to shower. I'm not saying that in a mean way at all. I just know how hard it was for me to trust anyone else (even Dad) with my little puker, but I also know that getting puked on constant requires a shower, lol. I'm sorry, trying to make you laugh :) You have to remember to do that and enjoy your little bundle too. It goes by much too quickly. Just last year I was saying "people who say it goes by quickly never had a reflux baby, because this has been the longest year of my life"....but now that my Rory is reflux free and off medication, and in daycare, I see how it happens. Poof! A toddler. Good luck. If you need advice or support ANY TIME, day or night, we will be here for you. HUGS.

Nov 14, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
sorry, I just read you are alone most of the time. Now I sounded insensitive. You posted before I was done typing. I'm so sorry, that must be so difficult. I felt alone too. I did not have my mom, and my hubby and I were so stressed it was easier not to ask for help. HUGS!!!
Nov 14, 2008
ethan's mom
Meridith
Mom to Ethan, born 4/23/08. Diagnosed with Reflux at about 1 month, started medicating with Zantac, which wasn't helpful for us. At about 2.5 months, we started on Prevacid, twice a day, and that is working much better.
Ethan is breastfed and has a few solids that he is enjoying very much.
Hi, I just replied on the "Colic Calm" post, before I read this.

In addition to what I put on that post, I can also suggest a sling or backpack carrier. I bought a "hotslings" sling, and I tell every body that it was the best $60 I ever spent. Ethan could sleep in there, and I could get things done, go for a walk, whatever.

I can't imagine being totally alone. It is just my hubby and I, and that has been tough, in itself. (hugs)

I can also say that getting a feeding schedule going helped us out. Once Ethan had a decent weight gain established, I started experimenting and found that he did best on nursing every four hours. We do that around the clock, and only do more when he really insists on it. That seemed to help with the discomfort he was experiencing during nursing, and also decreased the volume. He doesn't gain huge amounts, but he has stayed on an upward progression doing that. The other thing that helped me get through the roughest patch was to give him a formula bottle before bedtime. This gave me a little break from another intense nursing session, peace of mind that he had gotten a full good feeding in, and a little fredom occasionally. I did this after some of the reflux was under control, so that then he would sleep a little while.

I am just throwing things out there, hopefully some of them will work for you. Please come here for support as often as needed.

Nov 14, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Hi! I haven't read what everyone else said, so if I repeat, I apologize :)

Has the dr mentioned doing any tests? My dd had the pH probe and upper GI. These are pretty simple tests that a lot of drs use to determine just how much medication the baby needs. The upper GI will also rule out anatomical abnormalities.

It is definitely no fun having a baby that screams all the time, even with help. I truly feel for you going through this alone. (I'm in SC by the way) If you ever feel really frazzled, do you have neighbors or someone you can call on. I really just had to walk outside a few times to get some fresh air and perspective :)

I'm trying to think-have you elevated the head of his crib or whatever he sleeps on? This helped Mags a lot at night. Have you tried cutting out milk products? Cutting out milk and yogurt helped Maggie too. Some reflux babies have difficulty with milk even through mommy's milk. A lot of people use the slings to carry babies in and say that really helps in getting things done. That might help you out but honestly...don't sweat the small stuff. Let some of the cleaning go. It will be there waiting for you :)

That's all I can think of at the moment. Hugs!

Nov 14, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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Natasha, i am in CA too but alas I am 7 hours or so away from you so I can't come help :(

I am sorry you are alone! One thing that helped me a lot was the tucker wedge/sling combo. I could set her down when I really needed to in the sling at a very large angle, and she often took naps in it when she was really little. When we moved her to her own room, we put the wedge in the playpen or crib until she got too mobile. I could not put her in a carrier bc she puked so bad.

Nov 14, 2008
lanymama
Mom to Eddie 1/07 and Nicholas 6/08. Eddie allergic and refluxer now on cow's milk!!!! Nicholas also a refluxer on prevacid and breast milk. Mom on elimination diet AGAIN!!
Hi I am so sorry you are having such a hard time, I would give the meds time to work zanac didn't work well for my little ones, but once the prevacid kicked in about 3 days some improvement, but in a week we saw major improvement, definitely see a GI, and try a dairy free formula, nutramigen, alimentum neocate or get on the elimination diet if youare breast feeding. BTW if the maalo mylanta helps then you know it is reflux and not colic. Hang in there Elaine
Nov 14, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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I forgot you asked about how to stop the vomiting...some kids seem to be helped with reglan or bethanocol bc it is supposed to srengthen the LES and move food thru faster. It did not work for Elyse and she was on it long term. What did help was time...waiting it out (so NOT what you want to hear right now). She still throws up every couple weeks and spits up several times every other week or so and she is 17 mos, so we are not out of the woods yet. The difference is that the meds make it more comfortable...it still sucks to throw up but the meds make it less acidic so it hopefully won't burn, and perhaps even more importantly it won't cause damage.
Nov 14, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
Photobucket
Oh, forgot to add about the throwing up blood...i did not read all of the other responses, but Elyse's GI put her on Carafate to heal her esophagus when she was spitting up tiny amounts of blood. If weston is puking a lot of blood, he would probably benefit from having some testing done or some carafate.
Nov 15, 2008
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
It sounds like you got a lot of really great advice. I know how hard reflux can be. i don't think any of us wanted to put our kids on medicines but sometimes you have to weigh the risks vs the benefits. For my girls the medicines were literally life savers.

Please check with your DR before trying new meds, even OTC ones. They are the only ones who have your child's entire medical history and can insure no interactions as well as insuring proper dosages.

Please let us know if there is ANYTHING we can do to help!
Nov 15, 2008
keely_and_allie
I find that taking my screaming daughter into a warm bath with me stops the crying. I think the skin to skin contact helps, plus the warm water might remind her of the womb. My daughter is 3 months old too, and I have been exactly where you are! Hang in there! Have you taken your son to a pediatric G.I?
Nov 15, 2008
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
Hi there. You have gotten some great advice here. I would definitely talk to the doc about Prevacid. Even if he still pukes he won't be in pain. If your ped. doesn't seem knowledgeable about reflux I would most definitely go straight to a Ped GI.

Honestly, the right meds can be lifesavers. You may also want to try the elimination diet for the breastmilk. SOmething in it may be causing him pain.

We all know how horrific a screaming baby can be. But to be on your own....you are a strong mommy.

Good luck. There is hope....I promise!

Nov 15, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Welcome! I don't have a lot of time to read all the replies, so if I repeat, I'll apologize now. First of all, I am so sorry you have to be here, but this is a great place to come - it literally saved my marriage and most of my sanity during the time my dd's GERD was uncontrolled. These moms are the best!

I hated the thought of medicating my dd, but I spoke at length to both my ped and GE doctors, and for most of these kids, the benefits DO outweigh the risks (damage, bleeding, trouble eating, weight gain and growth...) And as I was slipping closer to the edge of madness, I had to do something as well. Not much does help with the vomit, unfortunately. There are a couple of meds for DGE (delayed gastric emptying) which are Reglan and Erythromycin. As you seem to prefer natural remedies, I can't say I like either of these meds, but they work well for many kids here. My dd did awful on Reglan, but some do very well.

Here are some suggestions:

1.) Elevating for at least 30 minutes after eating - may help with vomit, though not always. 2.) Medicating - not much of a choice, but if he's bleeding, may be worth looking into. The main ones are PPI (proton pump inhibitors) like prevacid, prilosec, and nexium. The other main ones are H2 blockers (zantac, pepcid, axid). Most of these kids need a PPI, and some of us use an H2 blocker in between the PPI doses. You can also use Mylanta or Maalox for "breakthrough pain" when the meds wear off and it's not time for the next dose. Def worth mentioning to your MD to see if they suggest and how much. 3.)Bouncy seat or swing - our MD's suggested this for sleeping - keeps them elevated and strapped in. Didn't work for us, but many kids do well with it. You can also use a premade sling (tucker), a special bed (Amby) or elevate the crib mattress at the head. Swaddling can also help, but when we did it, we had to leave her arms free.

This is starting to get really long, but we're here for you - we've been there, covered head to foot in vomit, to tired to bother eating or even trying to shower, and hauling around a screaming mimi and not really wanting to do anything but make them shush. On a side note, my dd has been on some type of medication or another since she ws 2 weeks old...started Prilosec at one month and switched to Prevacid at 2 months after the endoscopy. It seems to harsh to medicate them, but I can tell you it was night and day once the meds started to work. I hated motherhood for the first 6 months; now I can manage to block out many days of those hellish months.

Nov 15, 2008
nicholasmom
Renee, mother to Nicholas, born 4/18/08 with silent reflux, moderate laryngomalacia, Sandifer's Syndrome& suspected MSPI. On Neocate, Simply Thick and Prevacid. Also mother to Nathan, born 12/06/06, who had mild reflux the first few months.
Sorry to hear you are going through this but you're not alone. We use the prevacid and have since Nicholas was about three months old. It has made a huge difference for him. No one likes having to use meds with los but you have to think of the pain the baby is in and the damage that may be caused without the meds and weigh the options for your child. The bjorn carrier worked wonders for us with him in the beginning when all he did was cry. White noise helped some and a vibrating bouncer. He seemed to like the vibration. I honestly thought it would never get better. Don't get me wrong, we are stilll dealing with things, but overall, he is a much happier baby now. Hang in there!
Nov 15, 2008
azmom
Mom to Ian, 3/1/07
Used Zantac - 1.0 ml twice a day
Weaned at 1 year
Back on Zantac at 15 months
Sounds familiar. I stopped breastfeeding at 2 months just before finding out about GERD. Some ladies have had good luck with elimination diets. Trying to avoid milk and soy products and gassy vegies, etc. We switched to Gentlease formula and it was much more consistent than whatever was in my milk that made one feeding fine and the next a nightmare. It was a hard choice for me, but it gave us more quality time together. Walking outside helped Ian sometimes. I think the temperature change helped the gas. Also, sitting in the bathroom with hot steamy shower on worked sometimes too. (I know that's for croup, but it worked on cranky baby too). Staying upright as much as possible will help him. Good luck!
Nov 16, 2008
natasha&weston
Thank you all so much for your support and suggestions! Weston and I had a very rough few days: couldn't even get on the computer long enough to write. He is finally sleeping! So, I have a moment. I requested that I be referred to a Pediatric GI Dr....supposed to hear back something on Monday hopefully. We just can't leave him like this. I have tried the elimination diet thing: but seriously I start starving b.c there is nothing that I can eat. I haven't been eating cheese, milk, yogurt etc.. since the beginning: afraid that it may be causing him pain. Still, he was hurting and upset...but i didn't completely cut it out. There is milk, eggs, cheese in everything!! So, I cut it down..but not out..so maybe I need to try formula..I will check with the Dr. to see what he/she suggests. Weston is almost 4 mo. now..so we will c what he says. Last night I did eatt a piece of pizza and he seemed to be worse..so it may have had an effect or it was just a bad day; its hard to tell. Some days are worse than others. I pumped a lot of the milk out and saved it so that if the Dr. wants to test it, we have some. Ugggh! This is so difficult. I never thought parenting would be like this. You think: "Yay, I'm pregnant..I can't wait for my cute little baby to be born!!" I never thought I would be going through this!! AZMOM- Did the Dr. suggest you stop breastfeeding or did you just do it? How difficult was it to just switch like that? Was Ian worse at first due to the change in diet? Did you slowly switch? How was the switch for you? How did you stop producing milk? Sorry so many ?'s, but I would really like to know. Where did you find Gentlease formula? How much is it? ....Weston also likes outside; we try to go for walks twice a day. He has always liked the bathroom too:) Thanks for all your suggestions! They are helping A LOT! -Natasha-
Check with your
doctor first!