Posted By Posting
Nov 14, 2008
sadie
Our 1 year old daughter has silent reflux, hypotonia as well as benign external hydrocephalus. We are currently weaning onto whole milk (we'll see if it works) and she is also on Prevacid 15mg per day.
Any Exceptions? :(
Has anyone gotten an exception to be in the same room w/ your child during a MRI or other procedure? I'm so upset as I thought I could be in the room with Keira during her MRI as others have said they could but then they said since they are sedating her then I have to wait in the waiting room. I'm so upset. It's just her and I going. DH has to work. :(
Nov 14, 2008
amber f
I'm sorry that has to be so scary. I'm not sure about any exceptions. If not I hope they let you be with her until she falls asleep and get you before she wakes. When is it? (((HUGS)))
Nov 14, 2008
sadie
Our 1 year old daughter has silent reflux, hypotonia as well as benign external hydrocephalus. We are currently weaning onto whole milk (we'll see if it works) and she is also on Prevacid 15mg per day.
I can be there when they start the sedation but I can't go in the MRI room w/ her. I told the nurse that others have said they could and she said that since she is being sedated then I can't. I can wait in her little recovery room and be there when she wakes but .... I just hate having her be in a room all alone and I'm worried that even if she is sedated- the MRI machine is VERY noisy and I can't imagine it not waking her (you can see I've never been through this with a kid before) and if she did wake she would totally flip out. It's an MRI of her brain too so.... it's not like it's of her knee or something.
Nov 14, 2008
amber f
I'm sure they have to sedate her enough to make it through the whole thing even with the noise because they need her still. I can't imagine how terrified you must be though. I don't get what sedation has to do with you being with her or not. When you get there that day I'd ask again.
Nov 14, 2008
sadie
Our 1 year old daughter has silent reflux, hypotonia as well as benign external hydrocephalus. We are currently weaning onto whole milk (we'll see if it works) and she is also on Prevacid 15mg per day.
I guess they're thinking "IF" something went wrong (with the sedation) then maybe a parent would freak out and interupt incoming help. UH if something went wrong and I could see her through the big glass window....who's to say a parent wouldn't get in that room somehow some way anyway? I don't know it's strange to me. I plan to ask again. This should be the last test she needs for a while now so I'm happy this is coming to an end.
Nov 14, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Do you know how long it will take? I know how hard it was having to wait while Maggie had her tubes put in. We moms just feel like we're supposed to be with them through stuff like that. Pray for God to give you strength and patience and for the ones doing the MRI to have wisdom. It's just one of those things we have to get through I guess. Hugs!
Nov 14, 2008
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
A has had an MRI and I wasn't able to be in the room. They did however let me wait in the hall for her. She was inpatient when she had hers done so I'm sure it is a little different at every facility and every situation. It took them longer to sedate A than it did to do the MRI. She never woke up until they were done. I know how scary these things can be but it is a pretty safe procedure and A was fine when it was over. -Amanda
Nov 14, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
They wouldn't allow us even in the hallway. We were told to wait in her recovery room and not to move. I was terrified. They said if something went wrong, they didn't want us in the room(Major red flag). I said if something goes wrong, I will probably know before you.

I was very frustrated and afraid about it, but she came back okay, of which I am very thankful for. I always count my blessings when Meggy is returned safely to me.

I am sorry that they won't allow u back with her. Our hospital would not make an exception. Just say a prayer on your little one's head if u believe in that and ask God to protect her.

Nov 14, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
Photobucket
Hi! We had to wait in the waiting room too. Elyse's MRI was of her brain also, last September when she was an inpatient. She had a heplock (sp?) since she was inpatient, so they just put the meds thru that and she "fell asleep" in my arms then they carried her in. None of it was fun, but it needed to be done so we were okay with it (she had a subcutaneous hemangioma on her eyebrow, and the drs were worried that it would grow thru her eye socket into her brain, or mess up her eye).
Nov 14, 2008
3blues21pink
DS #1 (7/05) - Just ReDX'd Refluxer! Prevacid Solutab starting 4/8/09. Lots of food and environmental allergies. Autism, Sensory Processing Disorder, Speech Delays, Developmental Delays, Severe Muscle Tone Weakness.
DS #2 (1/08) ReDX'd refluxer. Milk and soy allergies with Soy Lecithin allergies. Oat milk drinker, Rice protein powder, DHA, and vitamins added for bulk and needed nutrition. Weak muscle tone, slightly developmentally delayed, SPD confirmed.
My 9 month old just had an MRI with full sedation. I was only allowed to be there while he was put to sleep. Then I had to leave. I hated it.
Nov 15, 2008
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
We haven't done the MRI but it would have been (it's been suggested) with sedation and w/o us in the room from what I understand. Ava has a CT and we were in the room but that is a quick test...
Nov 15, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
To be honest, my sister's DD had one and she held her DD until she fell asleep. She told me she NEVER wanted to witness that agian, EVER!!! It was the scriest thign she has ever seen. She sai d that watchign and feeling her DD go completely and utterly limp, was horrible.

As someone who has allowed a nurse to take her son from her to the OR 5 times with one time left, you CAN do this!!! I promise.

Nov 15, 2008
3blues21pink
DS #1 (7/05) - Just ReDX'd Refluxer! Prevacid Solutab starting 4/8/09. Lots of food and environmental allergies. Autism, Sensory Processing Disorder, Speech Delays, Developmental Delays, Severe Muscle Tone Weakness.
DS #2 (1/08) ReDX'd refluxer. Milk and soy allergies with Soy Lecithin allergies. Oat milk drinker, Rice protein powder, DHA, and vitamins added for bulk and needed nutrition. Weak muscle tone, slightly developmentally delayed, SPD confirmed.
I will warn you, when a baby/child goes to sleep under sedation, it does look a little odd sometimes. It's not icky or scary like they are in pain. They just get this odd breathing pattern and sometimes a funky snore. It goes away within a minute. But the first time I saw it it kind of freaked me out. The anesthesiologist was very quick to explain it to me. And then it stopped.
Check with your
doctor first!