Posted By Posting
Nov 13, 2008
camile- twins with reflux
Thomas and Lucas_2
Does anyone run after their kids so that they will eat?
Nov 13, 2008
camile- twins with reflux
Thomas and Lucas_2
Sorry. I posted without a message. As some of you may know, my boys are terrible eaters. Reflux has really spoiled their relationship with food. As babies, I could only give them the bottle when they were asleep. At some point that stopped working and they would only take 2 OZ or so before waking up. That is when we had to start trying many different techniques and places. That continues to the present. If we left it up to them, they would rarely eat. So we distract them...they have their breakfast walking around the neighborhood, have lunch and dinner with lots of distraction. Boy, I hate that!!! But it is also the only way we found so that they will eat. Does anyone go through the same? Camile
Nov 13, 2008
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
Oh yes. For the longest time Katie ate breakfast and lunch in the car with the TV on. SHe still eats lunch in front of the TV. Her brothers distract her enough to eat dinner at the table. I feel terrible - like she will always be eating in front of the TV LOL. Oh well, whatever works. You are not alone.

We can hope they won't be in college with us chasing them around to eat!!!

Nov 13, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
YES Jedd will only eat in front of a TV.(as per directions form a feeding clinic) When we go out and about we ring a DVD player with us. Jedd will be evlaed by Richmond children's Hospital's feeding program in Jan to see if he would be a condidate for thier intense program. He will also only eat pureed foods and will only drink IF I squeeze the liquid into him. He doesn't self feed at all.
Nov 13, 2008
camile- twins with reflux
Thomas and Lucas_2
Julie and Jessica- I would be glad if mine would eat in front of the TV:-). They demand some serious running after them all around the house. One of them "allows us" to give his yogurt sitting in the bathroom counter playing with the water and foam from the soap. After they are done eating, it looks like a hurricane has swept the house :-). Camile
Nov 13, 2008
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Ditto for us...Sometimes we have all her stuffies at the table so she can feed them too (or throw them around), sometimes I have to case her around the table, sometimes TV, and I sometimes I set a blanket on the floor and we play pic nic etc... It's crazy!
Nov 13, 2008
alex's mom
Alex was dx with silent reflux at 3 weeks old. Previously on Prevacid SoluTabs 15mg daily, now on trial of no medication. Was thought to have oral aversion, saw feeding specialist who says he's just not interested in food--no aversion at all. Slowly coming around to food. 15 months, 19lbs, 7 oz.
Thank you for posting! I'm not the only crazy one! :) Haha! I totally understand! Our therapist thinks that Alex has behavioral oral aversion meaning that his silent reflux is under control but that he needs to be distracted to eat. I went through a period where he didn't eat at all so now I'm just happy he is eating! Like you, I have tried everything! As a baby, I had to put Alex in his stroller and literally go for walks 4x/day for him to take his bottle (which wasn't very much, sleepy feeds were best). Then that started to not work so then I had to put him in his bouncer (I have 2, to switch back and forth -so he is not bored). He is 1 yo now, so I have only recently gotten him to watch cartoons so he will at least sit and take his bottle (but I have to hold it for him, otherwise he doesn't want it). Also, for solid foods, I literally give him everything to play with in his highchair. No joke, my husband gets upset but as long as Alex will eat, I give him whatever he wants (nothing sharp of course). The odd thing is he doesn't want real toys, he wants kitchen items...some of our recent "toys" have been the coffee filter, soap dispenser, bottle brush, spray bottles (I know, horrible but I supervise). You are not alone! I'm glad you asked because I thought I was the only crazy momma letting my kid play with everything but the toilet brush! Haha! If it works, it works! Have a great, high caloric day!! -Linh
Nov 13, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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We jump thru hoops on and off...sometimes she eats all day and sometimes she barely eats for a week. Elyse is 17 mos and will not drink any kind of milk or milk-like product so her GI wants her to remain on Elecare. Well, she won't drink more than a few ounces in a day, if that. i offer 2 bottles a day (she won't do it in a cup). In the morning she will drink 0-4 ounces if I sit in the same chair everyday with Sprout TV on and hold the bottle for her. At night I still offer it, but she almost never drinks any anymore. We will drop the night bottle this weekend if she continues not to drink any. At night we have to be in the rocking chair in her room with the light off and her ocean waves CD playing, and she has to hold it herself with a paci in the other hand. Wierd, huh? They create these routines!

With food, she basically is offered it all day long. We let her eat wherever she will...in highchair, on recliner, walking around, in the car, etc. TV on or off, sometimes she has to feed herself and other times she will let me "sneak" a bite in while she is distracted. The amount she eats fluctuates, and the foods she likes fluctuates. A lot of this is normal toddler behavior to a degree, but there comes a point when it isn't normal anymore! For us, her eating is not nearly as much of a problem as her drinking, and eating only becomes a real problem now and then for a week or two and then she is back to eating an amount that is "normal" for her.

Nov 13, 2008
camile- twins with reflux
Thomas and Lucas_2
Thank you!
Thank you ladies for your responses. Like Linh said, it helps to know we are not crazy:-). BTW, here are a few crazy places where I have tried to feed the boys: going up and down the elevator with a plate of soup, inside an old school bus while the pretended to drive it, letting them "ride" our neighbor's motorycle, letting them open and close the refrigerator's door, playing with water (in the sink, in the pool), etc. I have also lost count of the number of times I have asked for strangers to help me in the street. I would be trying to feed them, without success, then I would look at someone close by and ask "would you like to see him open wide?"And they would take a bite. Crazy, I know. But I will say it over and over again....whatever works. As long as it stays in I feel like I have won my day. The hardest thing is when after all that effort reflux will bring it all back. Camile
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