Posted By Posting
Nov 12, 2008
keely_and_allie
pH Probe and treatment
For those of you whose children have undergone a pH Probe or scope, how did these tests change your treatment plan? My daughter is 3 months, and we have been trying to treat her reflux since she was 2 weeks old. We have tried Zantac, prevacid, Nexium, and Erythromycin. She is not responding to any of the meds or med combos. We have tried switching formulas to see if she has an allergy, but she does not. She has blood in her poop, so her Dr. thinks the reflux is burning her esophogus until it tears and bleeds. She really wants to do the pH Probe and possibly the scope. From what many of you have said the probe doesn't sound too bad, but I'm wondering where these tests will get us....
Nov 12, 2008
maiam
maia m - GERD. Nissen Fundoplication w/hiatal hernia repair.
Mom to
Son (10) GERD(aspiration pneumonias, apnea, tracheomalacia), Food allergy, Asthma
Daughter (6) GERD, Heart Murmur, Food Allergy, Asthma, Mold allergy
For us, we knew we weren't dealing w/ EE, Celiac, etc. after scope. We knew it was SEVERE reflux, and medicated accordingly. Blood in poop is a common sign of food allergy/intolerance, or also Milk/soy protein intolerance, too. What formula(s) did you try? Did you go to hypoallergenic (Nutramigin, Alimentum) or to elemental (even more broken down - EleCare or Neocate).
Nov 12, 2008
camile- twins with reflux
Thomas and Lucas_2
You have a good point. I am not at all against medical testings but sometimes when PH Probes, scopes and other reflux tests were mentioned, I questioned myself (and the doctors) which difference they would make in the treatment. The answer was usually a change in medication or on its dosage, things that we were already trying somehow. The doctors could tell how hard my boys refluxed (they would usually vomit and cry in pain during doctor´s visits) so we decided we did not need something to prove they had reflux or how bad it was. That was obvious. I am not saying your daughter does not need a PH probe, I just think the question "how will it alter her treatment" is a very valid one. Camile
Nov 12, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Our ped did the pH probe and upper GI before doing anything for Maggie. I honestly think he thought I was crazy and was just doing the pH probe to prove me wrong. Boy were they surprised! Any way, since we hadn't done anything before, nothing changed. He said the pH probe was necessary to see the level of acidity in her reflux.
Nov 12, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I think you cold get more" bang" with the scope. They an vislually SEE what is giogn on, KWIM.....and with the syptoms liek that, youwill NOT want to go the week with out meds. It woudl be tourture. We did an EDG WAY WAY befor eoding a Impendance (like a PH) It was the 2nd test we did after an UGI. The scope would have ben first except Jedd couldn't go under at that young because his heart had not been repaired yet. As soon as he was post-op far enough, we did one.

Also the scope can tell you if other htings are going o like, EE or sever allergies. Both fo which can Mimic reflux to a tee

Just my 2cents.

Nov 13, 2008
keely_and_allie
Thanks for all of your comments. I think we are going to go through with the tests, we are just trying to make sure it is really needed.
Check with your
doctor first!