Posted By Posting
Nov 12, 2008
DS #1 (7/05) - Just ReDX'd Refluxer! Prevacid Solutab starting 4/8/09. Lots of food and environmental allergies. Autism, Sensory Processing Disorder, Speech Delays, Developmental Delays, Severe Muscle Tone Weakness.
DS #2 (1/08) ReDX'd refluxer. Milk and soy allergies with Soy Lecithin allergies. Oat milk drinker, Rice protein powder, DHA, and vitamins added for bulk and needed nutrition. Weak muscle tone, slightly developmentally delayed, SPD confirmed.
Our neurologist saw my youngest son (9 months old) due to his own little non-reflux issues. We spoke about how cranky he is, ALL THE TIME. He lives with a scowl on his face, cries so much during the day it's a wonder I am not in the corner of the room babbling out of my mind. He has done this since day one of life. After MRI's, testing and so on, he doesn't see anything NEW neurologically (he has sensory processing disorder and "floppy" limbs - most likely weak muscle tone, his legs are able to turn so far out that you can almost turn them 180 degrees to the back of his body- but that's an ortho thing we are now dealing with). He said he might be in pain and gave us Neurontin. That seems like a heavy drug to me. But I asked our pharmacist about it (who is usually pretty spot on with things, I have always respected his take on things) and he said it was a very small dose and wouldn't be too bad. My question is, could this crankiness be from his reflux even though we seem to finally have it under control? He is on Prevacid 15mg Solutab 2 x/day, thickened formula (honey thickness), Neocate formula and has finally even stopped spitting up (but take him off any of those and spit up and all the hysterics return). I don't notice any pattern or rhyme or reason to it. It's just all the time. I hate to give him this medication (which would be a daily medication, all the time) when he's so young. But if he's genuinely in pain, I don't want to ignore that either. I am so torn and not sure what to do. How do you tell if a 9 month old is cranky due to pain or for another reason?
Nov 12, 2008
mom to 4 kids with probable
Mitochondrial Disease
Dealing with Fundo, J tube feedings,Severe Dysmotility,Aspiration,Asthma,
Connective Tissue Disorder,
Visceral Hyperalgesia, and more
Many meds

Brent is on Neurontin, but he is on a very high dose twice a day. He does get drugged, but he is also on zofran and a muscle relaxer. What dose is your son on(mg)?

Neurontin is used to treat neuropathic pain, nerve pain.It wont help if its reflux. Brent has had surgery/anatomical repair that cause nerve damage, plus the colitis/dysmotility stuff, there are other things going on that can cause nerve pain as well

If you see improvement, it may take several weeks, then you know he was having pain.$File/pfcneura.pdf

Nov 12, 2008
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including,,, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Prevacid can cause depression. I would discuss this with your doctor after u have some solid evidence on it. During one visit to the hospital a nurse informed us that their staff relied on and considered advice and info from that sight legit. Otherwise, yes something can be hurting him, but it is hard to know what.

I hope u find some answers soon. I know u must be exhausted.

Check with your
doctor first!