Posted By Posting
Nov 11, 2008
amber f
Everyone update here!
Weekly update time:)

I've decided to keep going with the wean one more week. He had a great day yesterday (on meds) and a whiney one today (off meds) I've been giving him mylanta as needed. I'm think he maybe getting some molars but he won't sit still long enough for me to take a peek. The mystery hives are still that...a mystery for my oldest. He came home from school with out a single one and woke up today hive free. I'm hoping it won't happen again.

Now it is your turn:)

Nov 11, 2008
Liz, mom to Donnie 12/2005
Surgery for Pyloric Stenosis at 5 weeks old
GERD since 4 weeks old
Colic until 13 weeks old
Delayed Gastric Emptying
Surgery for Tubes and Adenoidectomy at 14 months old
Anemic since 9 month check
Febrile Seizures
Speech Therapy
MEDS: Zyrtec, Nasonex, Xopenex,
Vitamins with iron, and back on Prevacid as of 12/2008
Hope everyone is doing well!!! Donnie is doing pretty well. We haven't had any stomach issues this week, but now he is very aware that milk hurts his stomach so any time he sees it he says "no that hurt my tummy." He has gotten over his cold and doesn't really have any issues to speak of at the moment thank goodness. We are really trying to keep him healthy because are Disney World trip is coming up in a few days, well a couple of weeks to go but it is getting close, yeah!!!! -Liz
Nov 11, 2008
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
i got a call from GI staff and they switched audrey's status from inpatient on Friday to OUTpatient. She said the only reason why they had her on inpatient stat. in the first place was so she could get a quicker appointment. I told her it was my understanding the GI wanted her INpat. so testing could get reviewed that day. She said no. Ugh! who am I to argue i am just a "stupid" mom.

emily is having a good morning despite diarrhea burning her poor little butt again. The doll house i ordered her for Christmas arrived this morning and hopefully audrey's new bouncy-saucer thing will be here tomorrow. i hope it looks as cool as it did on the internet lol
Nov 11, 2008
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
glad everyone so far is doing well.

Joslyn is doing well (reflux wise) We have lowered her zantac to 2 times a day verses 3 times. She is handling that well.

for the past 4 nights, however, she is waking up wanting to be held and once i hold her she goes back to sleep. The other night was horrific! She woke up every hour. DH had to help me as I had not slept the past 2 days before that.. now this makes day 4 with little sleep. I do not know what is up with her. She cries when she wakes to be held... then when I hold her she immed. closes her eyes..... then when I go to put her down she will wake up (not every time.. maybe half of the time.)

This is all new to us... as she has been an all night sleeper since 2 weeks old. I do not think it is pain......and I can not let her "cry it out." For one.... she DOES NOT STOP!

And 2 I can not handle her crying. It echoes soooooo loudly in my ears and I break down in tears myself. I can only stand for her to cry (really scream bloody H$!!) for 5 mins.

any one have any ideas?

Jacky (aka sleepy momma!)

Nov 11, 2008
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
Aubrey is doing much better. Her eating is picking up slowly. She is still cutting her 2 year molars. The bottom 2 are big holes. one of the top ones is in and I am not about to stick my fingers in her mouth to check the other one.

Hopefully having ds bite her has helped. She has not bit HIM but she did put her teeth on my dh butt to bite him last night. She did hesitate enough and he was able to stop her before she bit down. Oh I was laughing when he told me the story later.

Nov 11, 2008
ethan's mom
Mom to Ethan, born 4/23/08. Diagnosed with Reflux at about 1 month, started medicating with Zantac, which wasn't helpful for us. At about 2.5 months, we started on Prevacid, twice a day, and that is working much better.
Ethan is breastfed and has a few solids that he is enjoying very much.
Hi everyone! We are doing okay here. Ethan had another rough weekend, but was back to normal yesterday! I have several ideas why our weekends get so bad, but I'm trying not to obsess. Ethan and Joslyn must have snuck away and attended the same "sleep" school. lol Maybe it was the no sleep school!

Hope everyone else is doing well.

Nov 11, 2008
(Maria)Mommy of 2 beautiful boys
Raymond(3) Severe Trachialmalasia, very mild Cerebral Palsy, and Reflux. Currently only unsing neb and doing well w/o Prevacid!
William(2) Reflux, MSPI, severe food/seasonal/environmental allergies. Currently on Prevacid, Zyrtec, and very limited diet.
Picture:William just turned 2!
Will 2yr old
We are good here. Just got our flu shots last night. Will is doing well on Almond milk, and doing well with the Similac Sensitive. His poo is different, but not bothering him. He might be a tad more crabby, but hes also down to one 15mg Prevacid solutab a Who knows. Raymond is being a $H!T lately....sooooo trying my patience....grrrrr, but hes 3. I suppose that comes with the We had to fire up the humidifiers today, its getting soooo dry and cold out...ugh But getting stoked for our Thanksgiving getaway! WOOT
Nov 11, 2008
Renee, mother to Nicholas, born 4/18/08 with silent reflux, moderate laryngomalacia, Sandifer's Syndrome& suspected MSPI. On Neocate, Simply Thick and Prevacid. Also mother to Nathan, born 12/06/06, who had mild reflux the first few months.
Well, we've all managed to get the cold that gave Nathan double ear infections-little Nicholas included. Poor baby has been miserable. He slept through the night last week 2-3 times and now this has him sleeping like poo again. We have the bed tilted, humidifier and flowing vapors going. He seems a little better tonight than the last two days. DH and I are exhausted from lack of sleep and fighting the cold ourselves. We didn't try the soy as planned. With him being sick, I thought it best to wait. I was able to get him an appointment with an allergist on Thursday. Hope everyone else is doing well.
Nov 12, 2008
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Allie's been doing well, except today we had acidic-smelling spit up for the first time in months (I won't rub it in!) I'm hoping it's teeth, since this kid is dragging it out (been teething since 3 months old, at 13 months we have 4 teeth in and 2 more coming, nothing else). She's got a bit of yeast, very light, which generally points to teething for her.

Other than that, she's slowly going to milk, though we're still on formula as well for calories.

On a happy note, some of you may have watched my posts on FB, so I'll update here as well - my dog's out of the danger zone and hasn't puked since Friday morning, and has actually been taking her carafate (I swear, if I could figure out what's wrong with this house and GI problems, I'd be less poor!) DH, dd, and dog are all basically on the same meds....I can't even blame genetics, since we have one non-homo sapien with issues. Hope all is well with everyone!

Nov 12, 2008
I am the Mother of 3 children, Alix, Aaron, and Aidan. Alix (5) had "silent" reflux until she was 5 months old; Aaron(age 2) has had GERD since he was just days old but was officially diagnosed with it at 4 months old and has had many tests to confirm it since. Aidan (8 mos) has no signs or symptoms to date thankfully. I never knew what it meant to have a "normal" baby since I had 2 pukers! Nobody understands how hard it is to take care of GERD babies unless they've had one themselves.
Aaron's update since the PhProbe
Well, since we last were here, Aaron had the PhProbe. What an experience. All I can say is that likely this test is easier on infants who aren't yet mobile and toddlers who are a lot more independent. Aaron is 9 months. He's cruising and very very active but the test was really bad because he kept getting tangled no matter what I did. He "slept" beside me, if you can call that sleeping. Every time he moved, he got an arm caught in the cords. I'd get that untangled then he would flip and catch his leg. Then he wanted to nurse the entire night. Needless to say, it was terrible. They need to come up with a "wireless" approach to this test. It really surprised me at how dangerous this was considering that you are told to keep them away from cords, blankets, etc--and this was now attached to him! Anyway, since then I haven't put him back on his meds. His puking has really gone down considerably but he's still complaining during the night. He seems to want to nurse constantly, more to soothe than anything I think. I don't know if I should put him back on the meds because they didn't seem to make much difference in terms of helping him at night. Any suggestions or ideas? I've also started to cook his meals differently now and that seems to be helping a bit too. My husbnad thinks we should just put him in bed and let him cry it out, but that's not the right solution in this case. Not with reflux. Am I wrong? Anyway, I'm glad that I'm seeing a bit of an improvement and am hoping that he will be able to stay off the meds. I won't know until I speak to the doctor as it is. Hope everyone else is seeing some light at the end of the tunnel? I'm trying to find the light here! :)
Check with your
doctor first!