Posted By Posting
Nov 10, 2008
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
swelling w/fevers
I am curious if any of your lo's have swelling in their face, hands and feet when they get fevers. It seems like A always does. I am practically in tears here. She is so lethargic and her wheezing is horrible. No matter how many times we suction her nose is just fills right back up. I have given back to back breathing treatments and the fever is finally starting to come back down. I called the doc on call and she was on the phone with me for less than 3 minutes. Seriously, it took me longer to tell her what was goign on than for her to recommend something. I don't want to overreact and take her in and submit her to that but what should I do.

I told the doc on call about the swelling and she said to try benadryl. What is that going to do? I know it isn't an allergic reaction! We have had enough of those to know what those look and act like. Not to mention she had the swelling last night and the benadryl didn't take care of it then. Sorry to rant.

Nov 11, 2008
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Sorry to hear that...I would take her in to the ER ASAP. It sounds beyond benedryl and should it get out of hand you'll be at the hospital. HUGS!
Nov 11, 2008
amber f
I'd take her in, that sounds so scary. Keep us updated.
Nov 11, 2008
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Meggy gets the swelling too. Her genetic doc. wants to check her for Mediterranean fever and I forget what else.
Nov 11, 2008
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Can you just make an appointment with the pedi? You may get better care if you are sitting in front of her.
Check with your
doctor first!