Posted By Posting
Nov 10, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
Breathing Video (Rory)
I know I've been a total post hog about Rory lately. You know how it is when you get something in your head that you can't stop worrying about, lol. Anyway, this is a video of her breathing. She DOES have a cold, going on 6 weeks, but she has been doing this long before she got it. My concern is whether it is causing her to burn her calories, which would explain why she is not gaining now that she is eating. OR, it could be nothing, like the doctor thinks. Should I be pushy, or is it nothing? Oh, and the pic is her eyes before I put her to bed, Day 4 of medication. :(

Hope this works.

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Nov 10, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
I wish I knew what to say. I will say that even with colds, Maggie doesn't sound like that, but they're all diff. Also, a cold shouldn't last that long. Do they have anything to say about that?
Nov 10, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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If it was just a cold, i could understand the breathing. Quinn does this often, but i agree with maggiemom. a cold should not last that long.
Nov 10, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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Allergies can last that long though and present as cold symptoms. Is she on allergy medicaiton? My little nephew has to take allergy meds other wise he sounds exactly like Rory.
Nov 10, 2008
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
I agree with the PP, has she ever had tonsils and adnoids check out? She's so cute BTW!
Nov 10, 2008
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
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I will say that my ds and dh sounded like that. They both had a ct scan of the sinus' done and that is where the chronic sinus infection was discovered. I would ask about having that done if she has been on ab for the cold already. Ds and Dh had both been on a round of ab and it was not clearing it up. HTH. I would def get her looked at. Poor baby.
Nov 10, 2008
camile- twins with reflux
Thomas and Lucas_2
I think you have a good point in that hard breathing could contribute to burning more calories than normal. I thought it also made sense that Sarah brought out the possible food allergies. BTW, Rory makesme laugh when she starts saying "Daddy, daddy" in the video. What a sweet girl. I am sure she made a dad very happy that day. She seems so happy to see him. Keep us posted. Camile
Nov 10, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
Thanks ladies. I've been fighting about allergies with the docs. They say no. But just so you don't think I'm totally overreacting, here is a link to a video I posted on her blog on July 10. You can hear her doing the breath holding starting at about 1:10. I KNEW I wasn't nuts. So, maybe it is just her weird thing. What else could it be? I'm taking her in tomorrow.

http://lifewithrory.blogspot.com/2008/07/rory-goldfish-crackers.html

Nov 10, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
I can't believe I'm saying this......*could it be reflux?*
Nov 10, 2008
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
I don't really have anything to add but when I initially started listening to the video I thought I was listening to Adriane. She has breathed like that her whole life. It is ten times worse right now with the ear infection and stuff. I think I would have to look into allergies like the pp mentioned. A is on Zrytec daily and it helps some. Does she take nebulizer treatments? that could help for now. at least while she is fighting a "cold". What kind of cold last for 6 weeks?

If you get a definitive answer please share. I would like to know if there is something I can do to help A with her breathing.

I smiled so big when she heard daddy come in. It was so cute. She is adorable! -Amanda

Nov 11, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
awww so cute! the red eyes make me think allergies too, may not be food allergies, maybe environmental; dust pollen ect? Could you try benedryl and see if it makes it better? if it does then i would be pushy about allergies. if not then still be pushy breathing is a serious issue maybe you can see a ENT or someone who specializes in lungs and breathing. it might have something to do with the pectus thing.
Nov 11, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Megan saw the video and thought it was her LOL!

I would be more prone to thinking allergies, looking at those little eyes, but If u r seeing and allergist Maybe they can look into primary immune deficiency too just as a precaution. I will try and make a clickable link. Hopefully it will be successful. Primary immune disorders

Check with your
doctor first!