Posted By Posting
Nov 10, 2008
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
more to it
so i didn't have very much time earlier to write, so this is the conclusion of my prior post.

So it was only a week ago that we saw Dr. I. last week he said he wanted to schedule a colonoscopy and an endoscopy for emily. He said that one of the desk girls would call. I never got a call.

Emily went with Audrey and me to the GI today. as "luck" would have it she ended her streak of "normal" b/m and was having diarehea. At the office, while we were waiting to be seen, she ended up pooping. I was able to show Dr. I. her diaper and he said it seems less like a problem with sugar and more like it could be a problem with her intestines.

I told him about her getting dark circles under her eyes, that i suspected she was in pain, she refluxed a lot more, her mood changes and tantrums all day until it's over. He seemed concerned and i told him i have been telling people (GI nurses and a PA)at his office for months. He said this was the first he heard of it, WHAT!!!???!@!#@# SOOO ANGRY! I am NOT crazy about his new staff, i had a feeling they weren't taking me seriously.

He said those symptoms are exactly why he wanted to do the colo. he asked when our date was. i told him we never received a call. he said he would call with a date this week, they better set one up or i am going to switch practices. THIS will not happen again! would you be as mad too?
Nov 10, 2008
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
holy "bleepity bleep", are you serious???? OMG, people should be losing jobs over something like that! Okay, sorry for the bleeps, but that is TERRIBLE! These are small children we are talking about. I really hope you get a call this week, Kat, and I am praying it is not her intestines. I'm so so sorry for what you are dealing with. Sheesh!
Nov 10, 2008
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Yes, I would be totally upset! I had words with my former ped for the same type reasons...only probably less. His staff turned over at least every 6mos and his latest group was awful!

You def. should call mid-week and ask about the appt to see if they are on top of it. If they don't call by Friday, I'd tell them that you're looking for another GI-just as a warning and see if they take you seriously. At my old ped, we emailed-does this doc do that? I hated it at the old office bc that's the only way you got to communicate with people, but under these circumstances, you might could email the doc if they don't get back to you.

Nov 10, 2008
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
Oh I would be ticked off! I really hope he gets his staff in line at least for "future" patients. I hope now that he knows you can get some results and get her some relief-and you as well!
Nov 10, 2008
camile- twins with reflux
Thomas and Lucas_2
I would be very upset. Let's hope him and his team will make up for it with some extra attention now. Camile
Nov 11, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
Hell yes! I would be SO upset!!! i hope they set up an appointment. Sounds like your GI doctor knows what he is doing and has a terrible staff. UGH!!! That's why I switched Quinn's pediatrician. He was awesome, but the staff was horrible!!! Now, we really don't use a pediatrician at all. I'm Quinn's pediatrician, to be honest. She sees her specialists way more than she sees her pediatrician. lol.
Check with your
doctor first!