|Nov 10, 2008|
Update I am sorry that I posted and then didn't check back in. Michael started moving my computer center into the office and then didn't finish running the cable when he got hurt so I am without a computer unless I get Mom's laptop.
Something is up with Mr. Braddy. Since his surgery he wakes up every night screaming. After I give him tylenol and it starts working he will drift back off. I don't want to give him Motrin every day since it tears his tummy up. Also his breathe is rotten! He has vomited and I mean vomited daily for the past 4 or 5 days. I am not sure what is up. I am going to call the ENT in the morning to check with him. It may be just a virus but to me his breathe shouldn't smell that way and then to vomit for 4 or 5 days straight just isn't right to me. It isn't like his reflux vomiting. I will keep you updated.
Avary has his PT eval on Tues. The developmental pedi said on Wed that he should be progressing faster than he is. Since he was preemie she wants to start any therapy before it gets too much later. I feel OK with this but I still feel that he will catch up. I personally think he does what a typical 9 mth old would do but since he is almost 11 mths and his muscle tone is so weak she thinks he will develop slower. With therapy she thinks he will catch up within 5- 6 mths.
Both boys are growing so big. They are both now 19 lbs. We are going to start weaning off of the Zantac. I think they have out grown a majority of the reflux since they are more upright and eating less at a time. I am also mixing half formula and half milk but it isn't going well. They are having bad diarrhea with every bottle. I am going to try mixing Soy with the formula and if that doesn't work I am up a creek. They will not touch a bottle now that is just plain formula. They just throw it and scream. LOL They like the taste of the whole milk I guess.
I have to have another surgery on my back from the wreck on the 19th and then they are having to do a hystrecotomy on Dec. 5th. The sx on the 19th isn't that bad but I am dreading the 5th. Pray for me Please. Carla
|Nov 10, 2008|
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
A Few ???What was the initibatino for??? How long was he intibated?? Was it a rough or easy intibation???
Jedd was eating purees and sucking up liquids pretty well and then was intibated (easily) for a surgery for about 4.5 hours. Just the throat irritation caused him all sorts of oral issues post op.
He had lots and lots of extra vomitting for about amonth afterwards. It was awful. Really awful, I feel your pain. any little cough while eating or just eating sometimes caused lots of vomits. We lost ground that we have yet to gain back.
Prior to he was doing good with some textured purees, he won't do it now. And he was sucking up his own liquds, he won't do that consitantly now. I squeeze a lot of it into him.
He was also intibated for ear tubes and did the same thing. He obviosly was not intibated for that one. So we just aren't sure why Jedd does this after being place dunder but he has done it twice now.
It is only after he became oral. When he was on tube feeds it was the same after surgeries.
Also after Jedd's heart surgery he had "night terors" they were horrible. He had them for about 2 weeks. They said it was the "trauma" from tryign to come out of sedation whiel still have the intibatino tube in place. It is a common occurance I was told with children who were intibated for much longer periods of time. He was intibated for about 2 days that time, maybe three. It's been a while...memory gets foggy...LOL
I hope YOUR surgeries go well. I knew someone who had a hysto. and they said the anticiaption was worse than the surgery itself, for her anyways. She had it done laporascopy. So for her the worse was the gas build up inside.
|Nov 10, 2008|
(Maria)Mommy of 2 beautiful boys
Raymond(3) Severe Trachialmalasia, very mild Cerebral Palsy, and Reflux. Currently only unsing neb and doing well w/o Prevacid!
William(2) Reflux, MSPI, severe food/seasonal/environmental allergies. Currently on Prevacid, Zyrtec, and very limited diet.
Picture:William just turned 2!
|Oh my, so much going on!!!! I will definitly send some prayers up for you guys!!!|