Posted By Posting
Nov 07, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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Not here a lot, but keeping up with you gals!
Hi there, i have not been posting much but I am skimming your posts each day to try and keep up with everyone. Elyse's social calendar is growing, so on my days off she almost always has some sort of "date"!

She is still on her zantac; the other night she threw up again so our countdown went down to zero again (we keep track roughly of how long she goes without throwing up!! I don't think we have ever gotten past 3 weeks but it used to be a million times a day so we're doing okay!)

Sometimes i wonder if this will ever end, but we try not to make a big deal out of it, she gets a bath and wardrobe change and we go on with life!

Some days she won't drink any elecare at all and some days she'll drink 4 ounces, the rest of the time it is water or juice. But her weight is fine. I am still trying to find ways to get good fats into her diet; i checked on omega 3 supplements but you aren't supposed to give them at her age from what i have found. Any ideas? (she does not like avocado, and does not eat much of anything that I could add oil to).

Nov 07, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
Hey Sharon.....I am so glad to see an Elyse update!!!! Is she still mspi?? I also had trouble with adding oils. Dairy is what keeps Rory alive, lol. Cottage cheese, cream cheese, yogurt, cheese sandwiches and Mac n' cheese....STAPLES for us. Dang, it is hard. I would suggest frying most of what she eats...beyond that, I'm not sure. She is still on elecare....hmmmm...and she's a trouble drinker, so the CIB and Cream is out too. I'm stumped, Sharon. But hey, I am so glad her weight is fine. It's amazing, actually, considering how much (or little) formula she is drinking. It's funny how kids can be SO different. Some kids dehydrate so easily, and others are just fine. Some kids can barely eat and still gain weight, others eat great and struggle with weight. Some kids can puke buckets and be totally happy, other kids don't puke and are miserable....it's truly remarkable....but it makes it hard to give advice sometimes, lol. HUGS!!
Nov 07, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
She is such a cutie pie. I love the pic. We are currently trialing Ultracare for kids cherry banana. It is free of dairy, corn, soy, and a few other things. U can google it. I am currently purchasing from drsaks.com

U have to buy 3 for free shipping and email to ask for a code to get 15% off. I used the code health.

It is a medical food, but not elemental. Meggy seemed to like it okay for a while. Her GI has fortified it to have complete nutrition. The bottle does give a warning to only use under direct supervision. It also says to watch for Vitamin A overdose.

Is is possible that she is ready for new taste and boring of the elecare? I just ask because I think that is what has happened with Meggy and her Ultracare.

I hope she starts doing better. Silly question, but if u cut the juice intake does the elecare intake increase. Meggy used to drink juice when she wouldn't take anything else. Then we had a complete break from juice for a whole week. One day Meggy's shipment of Ultracare didn't come and we let her have some juice. It was just 2 ounces. She was so sick and wouldn't eat for 3 days.

Turned out Meggy's juice-her favorite thing- was causing some major problems.

I think of you often and still appreciate all the wonderful care u have shown me.

Nov 07, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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Hi ladies, yes engi she hates the elecare but will not drink anything else milk-like. i have tried everything, and I mean everything. The best I can do is keep offering things that are milk or milk-like, but we waste so much money I hate it! i will buy a soy milk for $4 and pour it down the drain a week later (same with all other expensive milk-like products). Michelle, i will try frying her veggies...I always steam them, never thought of frying them strangely enough. 'course they mostly get tossed in the trash. i do fry her egg in butter.
Nov 09, 2008
camile- twins with reflux
Thomas and Lucas_2
Sharon, will Elyse eat cheese? Have you tried that Spray Cheddar cheese? My twins will not take cheese other way, but "usually" they let me put it on top of their food. Lots of calories there. They also seem to enjoy fried food. I usually give them some fried rice balls (rice, flour, eggs and little parsley). That is not a good one, but has lots of calories: chocolate. Will Elyse have that? I tried many different kinds. The one they seem to tolerate the best are the Lindt Chocolate Milk Truffles. I read chocolate can exacerbate reflux, but honestly, IN OUR CASE, I have not detected one particular food that will make it worse. They just have it pretty bad regardless of what they eat. Let me know if something works or if you find something. She is such a cutie. Camile
Check with your
doctor first!