Posted By Posting
Nov 05, 2008
bellaria
(Maria)Mommy of 2 beautiful boys
Raymond(3) Severe Trachialmalasia, very mild Cerebral Palsy, and Reflux. Currently only unsing neb and doing well w/o Prevacid!
William(2) Reflux, MSPI, severe food/seasonal/environmental allergies. Currently on Prevacid, Zyrtec, and very limited diet.
Picture:William just turned 2!
Will 2yr old
Lactose Questions
Will is lactose intollerant. We haven't had any allergy testing to determin how severe it is, but we can see its bad. He only drinks Nutramigen formula and water. He can eat cheese and loves it but nothing else dairy. He recently switched from the liquid Prevacid to the Solutabs and is on 30mg a day. This past weeks has been hell! Hes just so crabby and unhappy all day....but sleeps better at night. Here are my questions... I know the Solutabs have trace amounts of lactose in them....could that little bit be causing this? I also thought Nutramigen had lactose in it, but no milk proteins....maybe his issue is with the protein and not lactose at all??? I have no clue where to go from here. His Pedi doesn't feel he needs allergy testing...and keeps pushing me to trial milk again and again, but he gets violently ill and has a bleeding booty rash for a week. She I ask again for allergy testing or is it even worth it? You guys are the pros..... what do you think.lol
Nov 05, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
I think you are right about the nutramigen, but I'm not sure. Cooper never did well w/ the tabs though. We have been giving him the capsules for a long time now. We just sprinkle the beads on a spoon of food and he gobbles it right down. It is the only way he can take it.
Nov 06, 2008
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
Our GI says that unless the child is highly allergic or intolerant that there is not enough lactose in the prevacid sollutabs. I'm not sure I believe that but if he is okay with cheese the sollutabs shouldn't be what is bothering him. Not that it couldn't be.

Have you tried putting lacteese drops in his formula? It is perfect but it helps A some. You can usually only find them online but it is worth it if it works.

I would leave him on the nutramigen until you try that or if you think it is a protein thing I have a can or two of Neocate you can try.

Nov 06, 2008
bellaria
(Maria)Mommy of 2 beautiful boys
Raymond(3) Severe Trachialmalasia, very mild Cerebral Palsy, and Reflux. Currently only unsing neb and doing well w/o Prevacid!
William(2) Reflux, MSPI, severe food/seasonal/environmental allergies. Currently on Prevacid, Zyrtec, and very limited diet.
Picture:William just turned 2!
Will 2yr old
I didn't know about the capsules! That would be so much easier....hmmmm... I was looking at the ingredients on Nutramigen...Lactose free. I feel better now, since its a hypoallergenic formula it can be used as a milk substitute for older children with allegies! PHEW Well I'm not going to push anything new on him then. Hes only 13 months old. Of course then I find this!!! UGH! http://www.westonaprice.org/children/msgformula.html MSG in the formula? WTH
Check with your
doctor first!