Posted By Posting
Nov 05, 2008
Mommy of Hunter born 07/16/08. Tongue tied at birth, never learned to bf well. Diagnosed with silent reflux at 5 weeks with barrium swallow. Fed on expressed breast milk. Currently on Gaviscon, Omeprizole (prilosec), Domperidone (Motilium)have yet to see medication have any effect on him. His biggest symptom is his distain of feeding time- he hates it. . Hospitalised for two weeks in September, fed through ng tube.
Second feeding evaluation tomorrow!
So this pedi (God bless her) called this morning and said she pulled some strings and got us a second feeding eval tomorrow. I had been calling the woman who did the first one concerned about the choking and she just stopped calling me back. My GP told me "this is what reflux does" so I pretty much thought I we would just have to live with it. But this pedi told me she thought the situation was not safe!! THANK YOU!! NOW, Im just SO scared he is going to feed perfectly fine tomorrow-like Im REALLY worried about it. He chokes at least once every feed so I keep telling myself it will happen but if it doesnt .... Im totally SOL. Im sure you all know that feeling when you go to the doc and you think "THIS time they might be able to help us" and they never do?? Well, if they can see the choking/coughing episodes they cant let us go without help... Pray for us that he has a good 'ole choke tomorrow around 4PM GMT!!!!
Nov 05, 2008
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site:
I hope you get the proper "performance" LOL Isn't that always the way it is though. Jedd does his BEST when all the therapist are looking.
Nov 05, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
They always wake liars out of us. LOL. Hopefully he will give them a show and they can help you!
Check with your
doctor first!