Posted By Posting
Nov 05, 2008
Milk/Soy Protein Intolerance
Google searching briefly turned up nothing that looks promising to get more information on this. What are you favorite articles that you could recommend me reading? I am mostly curious in:1) how does the child get it-genetics? 2) is it lifelong? 3) if so, how to deal with it.
Nov 05, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Not sure if it is genetic link, but I know that it is something they usually outgrow. sorry I don't have a link for you.
Nov 06, 2008
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
I don't have any links, but....usually they outgrow it, but the age varies. elyse could not tolerate ANY soy or milk until after a year if i remember right; now she can do trace amounts of soy and mozzarella, cheddar, cottage cheese, yobaby yogurt without issues. Other yogurts and usually ice cream will make her throw up still. Soy was way worse for her. You just have to play it by ear, and for awhile you will have to read every package at the grocery store and keep well-meaning relatives from feeding your lo! When you are ready, ask us about finger foods, etc that are "safe"...many of us have several things that we relied on for awhile.
Check with your
doctor first!