Posted By Posting
Nov 05, 2008
DS #1 (7/05) - Just ReDX'd Refluxer! Prevacid Solutab starting 4/8/09. Lots of food and environmental allergies. Autism, Sensory Processing Disorder, Speech Delays, Developmental Delays, Severe Muscle Tone Weakness.
DS #2 (1/08) ReDX'd refluxer. Milk and soy allergies with Soy Lecithin allergies. Oat milk drinker, Rice protein powder, DHA, and vitamins added for bulk and needed nutrition. Weak muscle tone, slightly developmentally delayed, SPD confirmed.
GI Appointment Update
We went today, it wasn't anything monumental. His other GI issue (chronic diarrhea for weeks on end) is all cleared up. After testing, seeing symptoms, seeing how they reacted to different treatments, we have confirmation of a milk/soy allergy. This means Neocate until he's at least 15 months old. We got back, barring any issues, at 12 months old (he's 9 now) for a recheck and to make sure we are on the right path. His reflux wasn't of concern to her at this point. She said we were treating it right, yes, he's still refluxing quite a bit but it seems to be a comfortable and safe reflux, and she doesn't want to revisit treatments yet. Again, barring any new developments, she wants to revisit it in 3 months to possibly try another wean on meds to see where we are. We will make more assessments then on further steps.
Nov 05, 2008
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
Do you need any formula? I am not sure if your insurance pays for Neocate, but I have a case of infant and several packets of the Neocate One + up for sale. Just email me if you are interested and we can work out the details.

Oh ya, you have probably read this and already know but prevacid has traces of lactose in it. My dd who was MSPI could not tolerate it one bit. She had severe diarrhea and vomiting that stopped as soon as we took her off the prevacid. Just something else to think about! Good luck.

Nov 05, 2008
wow. I am glad you have figured out what it is. We have similar babies! What testing did you guys do?
Nov 05, 2008
ethan's mom
Mom to Ethan, born 4/23/08. Diagnosed with Reflux at about 1 month, started medicating with Zantac, which wasn't helpful for us. At about 2.5 months, we started on Prevacid, twice a day, and that is working much better.
Ethan is breastfed and has a few solids that he is enjoying very much.
Sounds like a good visit, and now you have a plan. :)
Nov 05, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Sounds like it went well. Always nice to have a plan.
Check with your
doctor first!