Posted By Posting
Nov 04, 2008
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
How were all the GI appts today?
I think there were at least two other people going to the GI today. Aidan went today as well and the GI thinks his wrap may be undone or too loose hence the symptoms still so we are going to do an upper GI to rule out an undone wrap and if that comes back normal then he is getting another Upper Endoscopy with impedence probe off of meds to see where we are at and check for damage post Nissen. Hopefully, between the two events we will get some more answers. I feel like it was a good appt but just more of the same if you know what I mean. We drove 3 hours for a 10 minute appt. but at least we have a new action plan other then wait for 3 more months and see again. Hope everyone elses GI appts went well. I was thinking of you all today.
Nov 05, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Goodness, sorry he has to go through the test again. i hope you get some answers and that there is no new damage. I so understand the drive for a 10min appt. Happens to us all the time. When will he be having the ugi and egd?
Check with your
doctor first!