|Nov 04, 2008|
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
|Hi there! What day was David born? Lorenzo arrived on the 25th. I definitely feel your pain where the sleep deprivation is concerned. I started waking up every hour to pee when I was about 6 months pregnant, so I haven't slept more than 3 hours in a row for 2 years. For many months, Lorenzo woke every 10-60 minutes all night long (a night, for him, being about 7 hours) and as often during naps on the rare occasions that he actually took one. He choked frequently on reflux during the night, and I found him not breathing 3 times when he was 8 months old. It took ages to get his pedi to take my concerns seriously, since he was growing well and reaching developmental milestones ahead of schedule, and finally, after 16 months, he was diagnosed with Obstructive Sleep Apnea -- believed to be caused by reflux filling his airway and obstructing the flow of oxygen.|
It was actually his pulmonologist, the one who finally ordered a sleep study and diagnosed the OSA, who recommended craniosacral therapy. He said he had seen hundreds of kids who had trouble sleeping respond well to it, and I figured it couldn't hurt, and might help. Well, it definitely didn't hurt -- our practitioner is wonderful and Lorenzo loves her -- and it certainly seems to be helping. He hasn't experienced any miraculous changes, like sleeping through the night, but he did go from the 10-60 minute wake ups to (typically) 60-120minute wake ups, and when he wakes up, instead of being either distressed or wide awake, he usually just wants to nurse and go back to sleep. It also seems to have had some pretty remarkable affects on his eating, as he went from still not eating any real solids at 16 months, to eating like a regular toddler (albeit one with only 4 teeth...) literally over night, after a session last month. The other most dramatic result was in his overall demeanor, or the way he holds himself. He used to be pretty stiff and not cuddly or willing to lie down, and almost immediately after the first session he was accepting massage, lying down on his own accord, and snuggling up on my lap. I suppose a lot depends on the skill of the practitioner, but it seem to be working really well for Lorenzo.
I think you're right about it being typical for breastfed babies who are allowed to nurse at night waking every 2 hours or so to nurse. That seems to be pretty much the norm among everyone I know. It seems like the normal bf baby wake ups, though, are barely wake ups at all -- just enough to get the milk flowing in the right direction and the tummy filled to satisfaction. I always assume something else is going on if they are unusually fussy, hard to settle back down, not satisfied with nursing or waking up much more frequently or for longer periods of time. It can be so confusing when medical issues have caused frequent wakings, because so many other things can cause them too -- it can be a challenge to discern exactly what is going on. Plus, as you know, when you haven't slept well yourself for years at time...well, the ability to think clearly and logically sort of goes away... :)
Sending long sleep stretch wishes your way! -- Cristina
BTW, my email address is firstname.lastname@example.org. Feel free to email me anytime (but I think it's fine to communicate via the forum, too -- at least we all seem to do it all the time :) )