Posted By Posting
Nov 03, 2008
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
Feeling kind of down today
I am not sure what it is but I am just feeling kind of bummed about Aidan's situation today. I guess I was hoping for more results/answers post Nissen then we are getting. He is almost 2 and almost 6 months post Nissen now and some days I feel like he is worse then before surgery. How is that even possible? We see the GI tomorrow so I will obviously be asking these questions to him. He hasn't been able to wean off meds or formula two things both GI's thought he would be able to do by now. I think I am feeling a combo of failing him and like I am missing something or that something else might be going on with him. I just don't really want to put him through anymore testing like another scope just because I can't handle the roller coaster ride that is normal with severe reflux. Does anyone understand what I mean? I don't know if I need to just let it go and accept him and all his issues or keep pushing for more answers. I just feel like crying.
Nov 03, 2008
big hugs to you..... cry.. it is okay to let go of the tears.
Nov 03, 2008
Renee, mother to Nicholas, born 4/18/08 with silent reflux, moderate laryngomalacia, Sandifer's Syndrome& suspected MSPI. On Neocate, Simply Thick and Prevacid. Also mother to Nathan, born 12/06/06, who had mild reflux the first few months.
Sorry to hear you're having such a rough time. HUGS
Nov 03, 2008
ethan's mom
Mom to Ethan, born 4/23/08. Diagnosed with Reflux at about 1 month, started medicating with Zantac, which wasn't helpful for us. At about 2.5 months, we started on Prevacid, twice a day, and that is working much better.
Ethan is breastfed and has a few solids that he is enjoying very much.
I'm sorry it is such a down day. Sending hugs and support your way. Hopefully the doc will have an idea tomorrow that may help.
Nov 03, 2008
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
I'm sending hugs your way! I hope you can get some answers at the GI. You've both been through a lot. You can do this, mama.
Nov 04, 2008
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Sorry your feeling bad. I know the feeling. I had so much fun when my daughters were babies/toddlers, but nothing except STRESS with my son who is now 2 1/2. I really thought he would grow out of most of this in the early days. Now, I realize 98% of his problems are allergy related. The reflux, food allergies, e.e., asthma, eye trouble, you name it. People don't realize how horrible allergies can be. If you can manage him on meds/Elecare, maybe that is the best for right now. But, if you see troubling symptoms, you may have to keep testing/looking until you get to the root of it all. In our case, we finally found the e.e. in Aug. Not what we wanted, but at least we can formulate a plan. In any case, hang in there. Somehow weeks turn into months that turn into years. It's gotta get better, right????? El
Nov 04, 2008
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
Some days are just so hard... There is so much that we don't get to know as we try to make decisions about how best to help our kids, and sometimes the mystery of it all is just overwhelming and depressing. Hugs to you...
Check with your
doctor first!