Posted By Posting
Nov 02, 2008
jolexas
Any of your babies not tolerate cows' milk period?
Thanks to you guys, I think I might be closing in on what the prob with my little one is- some kind of cows ' milk intolerance. The pattern is: new formula, one week later, reflux. Repeat. With the start of the new formula, she is great and happy, but once her body gets used to the formula, bam. I don't like Soy but am giving it to her to tide her over and see for sure if it is the formula- I will know with just a few feedings. If she is calm tomorrow, it HAS to be the formula. What do doctors do when a baby cannot tolerate cows milk but the parent does not want them on soy? Formulas we have been on: Enfamil Lipil, Gentlease and Alimentum. Even the Alimentum was too much for her it seems. :(
Nov 02, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Hi! There are some here that didn't tolerate cow's milk at all. Some don't tolerate soy either. It's called mspi for short (milk/soy protein intolerance).

Can I ask why you don't want her on soy? That would be the first choice if cow's milk is the problem.

One thing to keep in mind is that it can take as much as a week or two to get the cow's milk proteins completely out of her system. If the soy seems to do better, I'd give it a good 2 weeks before switching again. There are amino based formulas like neocate and elecare but they are extra extra expensive so you don't want to go there unless you have to!!

I breastfed for 8mos and my dd did worse if I drank milk or ate yogurt. But her reflux didn't go away when I stopped it, it just wasn't as bad.

Nov 02, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
How old is your little one?
Nov 02, 2008
maiam
maia m - GERD. Nissen Fundoplication w/hiatal hernia repair.
Mom to
Son (10) GERD(aspiration pneumonias, apnea, tracheomalacia), Food allergy, Asthma
Daughter (6) GERD, Heart Murmur, Food Allergy, Asthma, Mold allergy
Elemental formulas if little one is young enough to still need formula: EleCare, Neocate, etc. My daughter is almost 5, and still not tolerating milk, egg, soy. :(
Nov 02, 2008
ethan's mom
Meridith
Mom to Ethan, born 4/23/08. Diagnosed with Reflux at about 1 month, started medicating with Zantac, which wasn't helpful for us. At about 2.5 months, we started on Prevacid, twice a day, and that is working much better.
Ethan is breastfed and has a few solids that he is enjoying very much.
I did discover that with nursing, we have trouble with cows milk, in my diet. I believe that it was a good portion of the troubles that we were having with Ethan's digestion.

When we supplemented with formula, we did Nutramigen, and that seemed successful enough. We also did soy for a while, but the constipation was terrible.

Sorry that I can't be more helpful, but hopefully someone else can.

Nov 02, 2008
ethan's mom
Meridith
Mom to Ethan, born 4/23/08. Diagnosed with Reflux at about 1 month, started medicating with Zantac, which wasn't helpful for us. At about 2.5 months, we started on Prevacid, twice a day, and that is working much better.
Ethan is breastfed and has a few solids that he is enjoying very much.
I did discover that with nursing, we have trouble with cows milk, in my diet. I believe that it was a good portion of the troubles that we were having with Ethan's digestion.

When we supplemented with formula, we did Nutramigen, and that seemed successful enough. We also did soy for a while, but the constipation was terrible.

Sorry that I can't be more helpful, but hopefully someone else can.

Nov 02, 2008
bigdaddy
Liz, mom to Donnie 12/2005
Surgery for Pyloric Stenosis at 5 weeks old
GERD since 4 weeks old
Colic until 13 weeks old
Delayed Gastric Emptying
MSPI
Surgery for Tubes and Adenoidectomy at 14 months old
Anemic since 9 month check
Febrile Seizures
Speech Therapy
MEDS: Zyrtec, Nasonex, Xopenex,
Vitamins with iron, and back on Prevacid as of 12/2008
My son will be 3 years old next month and he still cannot tolerate milk or soy. We had Donnie on Nutramigen when he was a baby and that actually worked well for him. I just did a trial of 2% milk with him and for about 3 days he seemed okay, but on around the 4th day he had stomach pains and diarrhea so I immediately stopped the milk. I hope you find something that will help, but it definitely sounds like you are on to something. -Liz
Nov 03, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
We had a similar experience - I bf exclusively for about the first 6 months and any time I had milk, it was misery for my little sweetie. She did very well on Nutramigen when I weaned her. She hated Alimentum and had mucousy icky poops on soy. I agree with the pps - as hard as it is, try to give formula two weeks before you switch. If Nutramigen/Alimentum don't work, then it sounds like Neocate/Elecare may be your next option.
Nov 03, 2008
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
My daughter could not tolerate the milk based formulas either. Interestingly enough, the soy formulas made her even worse. We ended up on Nutramigen and it worked miracles for Katie. Good Luck!
Nov 03, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
If that's the case, I'd go ahead and try Nutramigen first then Neocate/Elecare if you don't want her on soy. Like meds, it usually takes about 2 weeks to see if the formula really is the case. There are only a few reasons to immediately d/c a formula - rash, hives, eczema, blood...fussiness and gas are usually caused by air intake. What bottles are you using? We had fantastic luck with Playtex Drop-Ins, and other moms here swear by Dr. Browns
Nov 04, 2008
3blues21pink
DS #1 (7/05) - Just ReDX'd Refluxer! Prevacid Solutab starting 4/8/09. Lots of food and environmental allergies. Autism, Sensory Processing Disorder, Speech Delays, Developmental Delays, Severe Muscle Tone Weakness.
DS #2 (1/08) ReDX'd refluxer. Milk and soy allergies with Soy Lecithin allergies. Oat milk drinker, Rice protein powder, DHA, and vitamins added for bulk and needed nutrition. Weak muscle tone, slightly developmentally delayed, SPD confirmed.
My son can't tolerate cow's milk at all. We have since found out he can't tolerate soy either. Sigh. That's bad because you should see the price of the non-cow's milk/non-soy formulas. You might want to reconsider not wanting to use soy. Your price will more than triple if you go to the alternate formulas ($13.99 for a large can of soy here, $38.95 for a tiny can of Neocate - half the size of soy can).
Nov 04, 2008
engin117
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Meggy never tolerated either milk or soy. We were sure she was either allergic or intolerant to both. It was not a confirmed allergy till about 14 or 15 months of age when we did skin prick testing.

She was not growing and seemed in pain a great deal of time. We are currently trialing Ultracare for kids. It is a rice based protein powder-not meant as infant formula. It has very little corn.

Check with your
doctor first!