Posted By Posting
Nov 01, 2008
jolexas
Lastly, how much does your reflux infant cry from pain?
Ours does not sleep during the day, so it is a desperate attempt to get her to stop crying from pain. She does not cry when resting and eating. I find minutes here and there in the swing and with white noise to get her to stop crying. So, majority of the day she would cry and does cry, but I do what I can to soothe her. What about yours? How do you soothe yours? How do you keep yourself from getting mentally tired?
Nov 01, 2008
ethan's mom
Meridith
Mom to Ethan, born 4/23/08. Diagnosed with Reflux at about 1 month, started medicating with Zantac, which wasn't helpful for us. At about 2.5 months, we started on Prevacid, twice a day, and that is working much better.
Ethan is breastfed and has a few solids that he is enjoying very much.
We are past the stage of crying for most of the day, and I think that you'll get there soon. :) The good news is that mommy amnesia kicks in and you won't remember very clearly how long was spent crying. I can remember what we did to sooth Ethan.
We basically followed the "Happiest Baby on the Block" philosophy. I can mail you the book, if you are interested, just email me at dshepherd11@kc.rr.com . I know that you have about 30 seconds of peace and quiet each day, so I'll summarize the key things.
1. swaddling -- the tighter the better. We swaddled Ethan most of the day until he was about twelve weeks old, then every nap and sleep time after that until about five months old. I'd advise you not to worry about this causing motor skill delays. Sometimes those delays come along with severe reflux, and they are physiological, thus there is nothing you can or will do to cause them. As much as we swaddled Ethan, he is right on track with his development in motor skills. Basically, what I am trying to say is don't worry that swaddling will cause these delays.

2. Shushing -- This is like the white noise that you are using. The key to it is to meet her cries with the same intensity of shushing. You can just "shh" her over and over, or you can run a hair dryer, vaccuum cleaner, etc. As she calms, lower the intesity, and she will likely go off to sleep. If she gets louder, just get louder again.

3. Swinging -- This again should be done at the same intesity as her cries, just make sure that you are supporting the head. Pick something that works for her and you, whether it be a baby swing, rocking chair rocking, holding her and swaying back and forth. Whatever works.

4. Sucking -- This is described in the book as the icing on the cake! Do the other three first, then give her a bottle, a pacifier, a finger, etc.

Basically work on these things until you find a set of two, three, or four that work for your daughter, then do that to sooth her. In combo with the medicine and other reflux things like positioning, you should be able to keep her relatively calm.

I know this was long, but it worked wonders for us. I hope it helps you guys too.

Nov 01, 2008
jolexas
Thank you so much. Unfortunately, as much as we love HBOTB, these strategies only work for a few seconds. Goodness. They are such fab strats. We find that showing her different things to look at does help.
Nov 01, 2008
ethan's mom
Meridith
Mom to Ethan, born 4/23/08. Diagnosed with Reflux at about 1 month, started medicating with Zantac, which wasn't helpful for us. At about 2.5 months, we started on Prevacid, twice a day, and that is working much better.
Ethan is breastfed and has a few solids that he is enjoying very much.
We also did better outside. Depending on where you live, that may help.
Nov 01, 2008
jolexas
Thank you so much for your help. I appreciate it :)
Nov 01, 2008
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
Mine cried all the time when he wasn't upright. I also cried all night and while eating. I wore him non-stop in a moby wrap sling or I wore him in my baby bjorn. It is incredibly hard to not get mentally drained when dealing with a crying baby 24/7. Get out and take lots of breaks if you can. Also, the only thing that helped us was time and the right meds. So keep pushing for optimal dosage in meds if the current ones aren't working.
Nov 01, 2008
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
Sorry I meant to say he cried all night and while feeding. I cried some too but not that much! LOL! Hang in there it will get better.
Nov 01, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
emily cried all the time as well, it was very hard to keep from getting mentally tired- even on the RARE occasion i could get my hubby to watch emily so i could take a shower alone (in the upstairs bathroom as far away from her as possible lol) i would STILL hear her crying; in my head.

anyway like meridith said, emily did much better outside. we went for long walks with her in the bjorn. the bjorn was the only thing that she would not cry in for long. so i basically baby wore her until she was 8 months old. maybe you could look into getting a carrier like that- it keeps them nice and upright.
Nov 01, 2008
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
My Katie was the same. Never slept -day or night. The baby bjorn was the best. I could even cook dinner with it on. THe other was the vibrating boucy. I would put her in it and put her next to the oven(of course not during cooking times) and put the fan on. It was so loud that it soothed her.

The thing is, is that it does just take time. Not only for the prevacid to kick in but each month they get a little more developed and they seem to do better.

I really did not think I would make it through those days. But I did and you will too. Hang in there - I used to count down the months because it did seem like each month got a litttle better.

BTW when she was a baby we did both Zantac and Prevacid.

I sure wished I was rich so I could have hired a night nurse.

The only way to not get mentally tired is to have someone allow you to get some sleep. Hubby or mom or whoever. A good sleep every now and then will keep you sane.

Nov 01, 2008
nicholasmom
Renee, mother to Nicholas, born 4/18/08 with silent reflux, moderate laryngomalacia, Sandifer's Syndrome& suspected MSPI. On Neocate, Simply Thick and Prevacid. Also mother to Nathan, born 12/06/06, who had mild reflux the first few months.
Nicholas cried almost constantly from about one month to three months (until we got the Prevacid working). The thing that worked the best for us was the Bjorn carrier. I literally laced up my sneakers first thing and had him in it all day. He liked when I went up and down an aerobic step and did squats. I had to keep moving. (Amazingly, still haven't lost all the baby weight!). Even in the carrier, occasionally, he would start to cry and always had a pained look on his face, even when he seemed to be sleeping. It seemed more like meditation as if he was trying to mentally block out the pain. We also bought a white noise CD and used this at times when I just had to put him down and also used it in the car. He didn't like the swaddling, but many do. We even used to try driving around in the car, but this only worked occasionally. Once he went into "sleep mode" at night was the best. He awoke a lot to eat and had to be rocked to sleep, but he didn't cry in pain then. Those were some very long days. When you're in them, it seems they will never end. They will. I still think of Nicholas as a difficult baby, but when I think back to those days, he's a piece of cake now. Best of luck to you. Know you're not alone!!!
Nov 01, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
The vibrating bouncy seat was a lifesaver for us...Halley spent most of her life in it up until about 3 or 4 months of age (including sleeping at night). She hated the swing. I agree that the carriers are helpful...they seem to do better when they are near their mommies. I guess I would too if I felt like crap all the time. Try to give yourself a break from time to time - even if it's just to run out for coffee. You'll feel better for yourself and you'll be a better parent. hang in there...
Nov 01, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
When Maggie was going through reflux...she cried every day from 6pm till whenever--sometimes 10pm or even midnight. NONSTOP-ENDLESS CRYING! Once we got her on medication and elevated her bed, she did much better. I also put her on her tummy at 6wks without the consent of our ped. I was desperate. (don't do it on my advice, talk to your ped) When she cried, we walked her up and down the hall, played music that she liked, and just tried to keep our sanity. We passed her back and forth. It's so hard to think back to that. I didn't think it would ever end, but it did.
Nov 02, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Until we got the right meds, nothing helped Allie's crying. It was 24 hours a day for 4 months, and there really wasn't much you could do to block it out. Even her ped told us Allie was the loudest she'd ever heard in 30 years of pediatric medicine. I fell into severe PPD and just hated life in general for a long time. My dd did not sleep (swaddling, rocking, swinging, singing, car rides, etc, etc...) Nothing ever got her to relax enough to go to sleep. We could usually get her to calm down for about an hour or 2 each day and that's when we'd try to sleep.

I know this doesn't offer much hope, but she did eventually stop once we got our meds and dosages right and they had time to kick in. At around 6 months she slept, for the first time, 3 hours in a row by herself in the bassinett. I didn't know what to do by myself first!

Check with your
doctor first!