Posted By Posting
Oct 31, 2008
mely
Amalia 11/1/06, Silent reflux- Weaned off prevacid in the summer- back on again 15mg. Back on lactaid. Atalia- 6/17/08 DX with GERD and colic at 9 days of age. Appears to have mild MSPI. Upper GI. On Prevacid 22.5mg. Successful transition to whole milk! Eats everything!
Pic. Amalia and Atalia having fun at home.
A letter from your reflux baby
Dear mommy: This is your precious baby, the one that you just can’t wait to see. I can’t wait to see you either mommy. I can tell you that God gave me big beautiful eyes that light up the room, and a smile that will melt your heart. He also gave me something called GERD. It makes it very hard for me to eat mommy. You will get very frustrated with me because I can not seem to breastfeed like all the other babies you have seen. It is painful for me mommy. It’s not that I do not want to be close to you mommy. I want to be close to you so badly, but it hurts to swallow mommy. And I arch and push away and cry- but it’s not at you mommy, please do not think that. It’s the pain mommy. And please, don’t be mad at me when you feed me and put me down to sleep and I am awake 10 minutes later. And I do this over and over, and never seem to sleep. And I always seem to want to eat. It’s not that I do not want to sleep, or that I always want to eat. It’s that the acid starts hurting my tummy and throat and more milk sometimes feels good going down my throat. But then it starts to burn again mommy. I am sorry I can’t eat like other babies, that I make this so very hard on you. I am sorry that feeding me it’s not an enjoyable and bonding experience like you always thought it would be. But I promise you mommy, we are bonding in so many other ways. Because you are the only one that can make me feel better mommy. In your arms, I still feel safe and secure through all the pain. Please let daddy know that when I cry when he holds me it’s not because I don’t love him. It’s that God gave you a special touch, a special warmth, a special presence that only in you I can find. This is why I want you to hold me all the time mommy. It’s not that I do not want to let you rest. It’s that in your arms it’s where I can only find rest. When I grow a little older, and you try to feed me all those wonderful vegetables and fruits you so lovingly peeled and pureed just for me- please do not be upset when I choke and gag on them and spit them out. It’s not that I do not want to eat them mommy. I so wish to be able to eat that special meal you made just for me. It just scratches and hurts my throat mommy. I can’t help it. It fells like sand going down my throat. And sometimes the food starts coming up my throat as I am swallowing it and I have to cough. And throw up. But don’t give up on me mommy. Please try again some other time. It’s Ok if I have to eat cereal again for dinner. I am still little mommy. I will get better, you’ll see. It’s OK if you cry mommy. I know it’s because you love me so much and you hate to see me in pain. But it will get better mommy- I promise. In those very dark days and nights, when I seem to always cry, not eat, not sleep- do not give up on me. In the midst of it all, it makes me feel better that you are there with me. And I thank God so much that He gave you as my mommy. Because not every mommy out there would have the tender love, patience, perseverance and strength to take care of me. Some day I will let you know how very grateful I am for the countless sleepless nights and days, for the rivers of tears you shed. But meanwhile look at my smiles, my little hand grasping your finger, my caresses to your face, the way I look at you when you hold me, my hugs, my kisses as my thanks to you. I may need to be on medicine for a very long time mommy. But don’t feel bad- it helps me mommy. And this is in no way your fault. It’s nothing that you ate that gave me GERD. It’s God’s way of making us closer. It’s God’s way of making you closer to Him. It’s God’s way of teaching us the priorities in life- God, you, daddy and me. It’s God’s way of teaching us to be thankful- for everything. It’s God’s way of teaching us not to take anything for granted. You will cherish every moment we spend together more mommy. You will cherish all my milestones and accomplishments more- and thank God for them. You will realize that it could have been worse mommy, that I could have been born much sicker. And you will have a new appreciation for me and everything God has given us mommy. I hope you still want to see me mommy. Don’t worry, I am scared too. But God will get us through this. He will never leave us or forsake us. With lots of Love, Your beautiful babies This is a letter I wrote from my experience with my beautiful daughters. I hope it helps some of you reading my experience and all that I have learned so far. It's not over yet for both of them. But God is with us. I miss you all very much. God Bless. Melany
Oct 31, 2008
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
Photobucket
Beautifuly put and sadly true!
Oct 31, 2008
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
How beautiful. I am crying. Needed that today because Katie is sick from all the Halloween hullabaloo.

Oct 31, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Mely - I can't tell you how much I needed to read this, especially today. I've been pulling my hair out with a very sick dog and a clingy teething gerdling. I forget (at least try) that my dd has gone through so much pain and only the good Lord knows what my poor dog went through before we rescued her 3 years ago. This has changed my outlook and mood, as I've had a black cloud of irritation and resentment hanging around me today. THANK YOU!
Nov 01, 2008
mommy2628
I am going to email you back tonight. Thank you for the uplifting here. You always know how to make someone smile.
Nov 01, 2008
nicholasmom
Renee, mother to Nicholas, born 4/18/08 with silent reflux, moderate laryngomalacia, Sandifer's Syndrome& suspected MSPI. On Neocate, Simply Thick and Prevacid. Also mother to Nathan, born 12/06/06, who had mild reflux the first few months.
That is so beautiful and so true. Puts everything in perspective. Thanks for writing such a beautiful letter and for sharing it.
Nov 01, 2008
ethan's mom
Meridith
Mom to Ethan, born 4/23/08. Diagnosed with Reflux at about 1 month, started medicating with Zantac, which wasn't helpful for us. At about 2.5 months, we started on Prevacid, twice a day, and that is working much better.
Ethan is breastfed and has a few solids that he is enjoying very much.
I read this last night and it helped me get through a couple of rought feedings. Thank you so much for posting it!
Nov 01, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
I read that with tears streaming from my eyes. I'm going to print that off and save it in case we ever decide to have another child. I appreciate every second I have with my little girl and I'm pretty sure that reflux is at least partially responsible for that.

I absolutely cannot believe how much Atalia looks like her sister! She's the spitting image! Same beautiful smile...they must get it from their mommy.

Nov 02, 2008
mely
Amalia 11/1/06, Silent reflux- Weaned off prevacid in the summer- back on again 15mg. Back on lactaid. Atalia- 6/17/08 DX with GERD and colic at 9 days of age. Appears to have mild MSPI. Upper GI. On Prevacid 22.5mg. Successful transition to whole milk! Eats everything!
Pic. Amalia and Atalia having fun at home.
I'm so glad this helped some of you. God bless you all. Keep praying for us!
Nov 02, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
I've been wondering about you and the girls. I just decided to open this post today. Good to see y'all are still around.
Nov 02, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
How sweet! So sad, but put in such an honest way.
Nov 02, 2008
stickybean
wow.... I am in tears! Wonderful job
Nov 03, 2008
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
Yep, that is perfect. Exactly right. :( So sad but nice to know other people "get it".
Nov 03, 2008
hydsterg
Baby With Reflux
Great story - with tears in my eyes...I am with you and can't believe it could last longer....take care! :' (
Check with your
doctor first!