Posted By Posting
Oct 30, 2008
bellaria
(Maria)Mommy of 2 beautiful boys
Raymond(3) Severe Trachialmalasia, very mild Cerebral Palsy, and Reflux. Currently only unsing neb and doing well w/o Prevacid!
William(2) Reflux, MSPI, severe food/seasonal/environmental allergies. Currently on Prevacid, Zyrtec, and very limited diet.
Picture:William just turned 2!
Will 2yr old
People Rant!!!!
A friend brought up her son's Reflux issues on another mommy board, looking for advice on what to do next. (I told her to come here.lol) Her and I are the only 2 with major reflux kids on that site... Everyone else acts like we're bad moms for medicating our children....look what this one lady wrote.............. "My second child was like yours. I breastfed, so it wasn't the formula. I NEVER medicated. I have mixed feelings about all the meds given to infants for "reflux" to solve crying/ sleeping problems. I would STRONGLY suggest as she did to see a specialist. I know peds often think the can fix everything but it's just not true "..........She puts Reflux in quotations like its something we're making up! Like we medicate our children just because we are too lazy to stay up with them 24/7 GRRRRRRRRRR
Oct 31, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
good. i am glad she didn't have a child who needed meds. i am glad she had a child that out grew reflux ( i am in tears writing this btw) but my dd had an endoscopy at 9 months old that showed she had inflammation in her esophagus and small intestine caused by REFLUX our only choice was to keep her on meds and INCREASE them. I never wanted her on meds i still don't want her on meds and if this was something i could solve by her NOT being on meds i would do so in a heartbeat.

But just like emily's case is not as serious as to need a fundo- some kids are not as serious to need meds- i just wish some not so sensitive parents would realize that!
Oct 31, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Well, you just go back over there and tell her that I said "I care enough about my child to put aside my selfish misconceptions about medication." You can also tell her that I said her breastmilk may be causing the problem. And add in quotes: "put that in your pipe and smoke it". LOL-I guess it takes all kinds. It's really irritating to know that someone is trying to play the "I can handle crying and not sleeping and that makes me a better mommy card" when in reality it makes her a more tired and irritated mommy that probably doesn't feel like doing anything with her kid while she's awake.

Ugh

Seriously tell her that she needs to come over here and learn about kids that have real "reflux".

Oct 31, 2008
3blues21pink
DS #1 (7/05) - Just ReDX'd Refluxer! Prevacid Solutab starting 4/8/09. Lots of food and environmental allergies. Autism, Sensory Processing Disorder, Speech Delays, Developmental Delays, Severe Muscle Tone Weakness.
DS #2 (1/08) ReDX'd refluxer. Milk and soy allergies with Soy Lecithin allergies. Oat milk drinker, Rice protein powder, DHA, and vitamins added for bulk and needed nutrition. Weak muscle tone, slightly developmentally delayed, SPD confirmed.
Obviously someone that doesn't understand it at all. My first son was a refluxer that just needed Enfamil AR and an elevated bed to be OK. This one, well, he's the farthest thing from that normal! If I hadn't seen my friend's son that was, well, he looks like your pumpkins all the time, I would have never known reflux this bad existed.
Oct 31, 2008
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
Yeah that makes me sick. You can tell her about me. I was so happy to have Katie off meds that I completely ignored all symptoms that it was back when she was 2. Well, by the time I was able to get her some help she had damage in her esophogus and stomach. I feel guilty every day and wake up with anxiety every morning wondering if her stomach will hurt.

I am so grateful that there are medicines out there that can help our little ones.

GERD is a nasty disease but when you tell people your child has it they think it is no big deal.

Oct 31, 2008
amber f
You said it all so well. She is blessed to not have to use meds. GOOD FOR HER! God Knew she couldn't handle a "real" reflux child.
Oct 31, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
This is the same problme I deal iwth at church. I am tired of explaining to them the difference between plain old Relufx that alot of kids have and Jedd's (and the kiddos here)severe GERD.

Once "reflux" starts affecting your life and requires meds. it is no longer relfux it is GERD. That's a whole different ball game.

You know what else is interesting....I have run into a lot of adults in public (that I do not know) who have really bad heartburn/GERD/reflux. They all tell me they can't imagine a child going through that kind of pain :-(

It's interesting the response difference of those who have waled in OUR shoes verse those who have NOT.

BIG HUGS it is responses like that that has caused me to grow thick skin. But it still hurts. ( esp when in my case it is normally form church members I have known for a long time.)

Oct 31, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Urg. This is so frustrating. If Cooper wouldn't have been put on meds at 5 days, the ramifications would have been awful. It was the only thing that controlled his "blue spells" and stop breathing episodes. Medication saved his life! Also, I breastfeed, and it was a huge part of the problem, it wasn't until I went on the elimination diet that we started seeing a difference, so she can just climb down off of her "breastfeeding high-horse". No parent wants there kid on medicine. Cooper was on so much at one point that his liver stopped functioning properly, but he has to have it. We just tried to lower the dose again and he still can't do it. I also get this kind of "why are you doing that" about Cooper's upcoming EGD and probe. People think he is so much better and gaining weight now, which is true, but he wouldn't be if he were off meds and ate any where close to what a normal kid eats. We do what we have to for our kids. BTW, I LOVE your pumpkins, such a cute idea. You are quite the carver!
Oct 31, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
I agree with Amber - God sends these children to mommies like you and the rest of us rather than people like her for a reason. He knows that we will have the patience, determination and devotion to our kids to do everything necessary to make them feel better - including medicating them. My brother just dealt with a severe bout of GERD a few weeks ago and we were talking about how hard it must be for the los, because he woke up a couple of times in the middle of the night with acid in his throat and he thought he was going to die.

Moms like the ones on that board will never understand, and I pray that she never will have to.

Oct 31, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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So, what does she say about kids who have "seizures" and "breathing problems"? HAHAHAHAHAHAHAHa.
Oct 31, 2008
catherinesmom
Catherine, 24-weeker, released from NICU on Zantac. Soon had NG tube due to FTT and GERD. Increasing oral defensiveness, now 100% tube fed after 4mths at home. Currently on breastmilk only, and still puking all the time. Mom just started Dr. Sears Elimination Diet.

I will have to admit, a couple years ago I probably would have been one of those critical moms like you are all ranting about. My first daughter was easy. Very healthy. I could eat whatever I wanted and still breastfeed with no adverse effects on her. Our main frustration with her was that she was difficult in regards to sleeping. I was proud of myself for not using that awful, artificial stuff called "formula".

I attended a breastfeeding support group at that time. There was one mom that insisted that her baby's stools were greenish when she included milk in her diet, and that it went away when she avoided milk and milk products. I had heard our family doctor say something along the lines of, "It's not what goes into your stomach that matters, it's what gets into your blood," when I discussed maternal diet's effect on breastmilk. So, I figured that other mom with the green-stooling baby was just overly concerned and inconveniencing herself.

I remember being concerned about a couple "large" spitups with my first daughter. I asked the family doctor about whether she had trouble with reflux! LOL! He said that all babies have some reflux, and this wasn't anything to worry about. In regard to most healthy babies, he's right, I suppose. They spit up a tablespoon or two of breastmilk or formula during the day, and there is nothing to worry about.

Then my world changed with our second daughter. Now I have a whole new understanding of things. As one of you said, those who have walked this difficult road respond much differently than those who have not.

In defense of people like the old me and the critical moms out there, there would be much less condescension in their hearts if they hadn't been "informed" by the medical world like my family doctor. (BTW, I still really like this doctor and we still use his services, but I know he's wrong in this area.)

The breastfeeding community is also distributing the wrong information. The feeding specialist who helps us is also a certified breastfeeding educator; she doesn't really think there's enough transfer from mom's body to mom's milk to affect the baby. She didn't think it necessary for me to take anything out of my diet other than milk, chocolate, and garlic. Well, now I think she's wrong, too. My little refluxer is doing better right now, and I credit the improvement to the total elimination diet I just started.

Maybe one of us should get a book published on the subject. In our spare time!

Oct 31, 2008
bellaria
(Maria)Mommy of 2 beautiful boys
Raymond(3) Severe Trachialmalasia, very mild Cerebral Palsy, and Reflux. Currently only unsing neb and doing well w/o Prevacid!
William(2) Reflux, MSPI, severe food/seasonal/environmental allergies. Currently on Prevacid, Zyrtec, and very limited diet.
Picture:William just turned 2!
Will 2yr old
I did explain to her that my boys had a upper gi done so they have diagnosed severe reflux with Tracheal issues irratted by the reflux. I also told her by not medicating you can cause MAJOR damage and long term issues....ugh... But like you guys said, she will never get it. and I hope her next baby (yes, shes preggo) doesn't have any of these issues, because no doubt that baby would have to suffer with a mom like that. :o( Thanks for your support ladies...oy They don't realize Reflux is something we deal with 24/7..... it seems like our lives revolve around this sometimes...its not just a little thing our babies have to deal with.
Oct 31, 2008
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
would she like to come hold Zack...right after a bottle?? heh heh heh...Come on lady..."reflux" is easy..."reflux" is no big deal...what's that, you need a hose to clean up all the puke? No, you can't borrow a clean shirt. Bite me.
Oct 31, 2008
ethan's mom
Meridith
Mom to Ethan, born 4/23/08. Diagnosed with Reflux at about 1 month, started medicating with Zantac, which wasn't helpful for us. At about 2.5 months, we started on Prevacid, twice a day, and that is working much better.
Ethan is breastfed and has a few solids that he is enjoying very much.
GGRRRR is right. I agree, let them hold a puker right after a feeding!
Oct 31, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
As I got sick of the critics out there (I was attacked repeatedly for buying formula) I just walked away. I got so bitter at the world always having an opinion and loudly voicing it but I'm not allowed one. I chose formula for a few reasons...reasons that were BENEFICIAL to my kid. I chose to medicate my kid because it was BENEFICIAL to her well-being. I finally let one woman have both barrels in the store one day (PPD, frustration, sleep deprivation, and general anger at the world just overflowed.) This woman came up and started expounding on the benefits of BF and how I was harming Allie by not doing the "natural" thing, and she saw the RX sticking out of my purse and used THAT to prove her point - yes, she took it OUT OF MY PURSE TO READ IT. Quote: "If you took care of your child by BF, then she wouldn't need this medication for such a minor problem...ALL BABIES SPIT UP." I snatched it back, told her that if she really wanted a kid in true pain, then I would take Allie off her meds, and she was welcome to camp out in my house for a week and just sit there and listen to the howls and she could help us empty Allie every other night using an enema and she could do my laundry and make the meals as well.

I got congratulated by the clerk, though it didn't make me feel much better.

Oct 31, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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hehehe, i was "lucky" enough to have a baby who would puke whole bottles in Target 3 hours after eating (we timed everything out of the house to be as far from a feeding as possible), and after she was on solids she actually puked exorcist style 3 times in restaurants...so no one ever questioned me in public! And of course all the spitups on top of that. It still happens from time to time, and she is still on meds and elecare. I did the "right" things by giving her breastmilk as long as possible, only to later try elecare and find that while it didn't make a difference in the puking amount it did seem to make her more willing to eat and more comfortable. To this day i still feel the formula guilt but I try to shake it off. She does not do bottles in public anymore, and our elecare is delivered to our door, so at least I don't have to go thru the guilt of buying it in a store! LOVE the jack o lanterns.
Oct 31, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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oooh, one of the things that did bother me when she puked in public is that I always worried that everyone thought I was deliberately bringing a sick kid out...
Oct 31, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
We went to formula because in all honesty, I was sick and tired of being milked like a cow, with a loud, annoying machine because Rory had hypersensitive gag and couldn't latch. I was tired of having her puke up the golden goodness. "A natural breastfeeder" is what the nurses called me, because my tiny knockers became bursting with milk, to the point that I got a breast infection. The pain was so bad that I needed prescribed narcotics just to convince myself not to jump off a bridge and end the suffering. SO, I have ZERO guilt about going to formula. I hate people that judge without knowing the intricacies of a person's life and why they make the decisions they make. Rory was never a crier, but we medicated because she was a chronic vomiter who retched so bad she brought up flesh and blood on two occassions. Decision made. It's a family's perogative whether they feel the need to medicate for reflux or not. GERD babies need medication because of the complications that are associated with it. I have always clearly defined the difference to friends and family. But unfortunately, some people are just ignorant. HUGS!!
Nov 01, 2008
nicholasmom
Renee, mother to Nicholas, born 4/18/08 with silent reflux, moderate laryngomalacia, Sandifer's Syndrome& suspected MSPI. On Neocate, Simply Thick and Prevacid. Also mother to Nathan, born 12/06/06, who had mild reflux the first few months.
Ok ladies, We all know we are trying to do what's best for our babies. Unless spmeone is knee-deep in it, they really can't understand and should really keep their opinions to themself (but we all know many don't). Just ignore their ignorance. We know better!
Check with your
doctor first!