Posted By Posting
Oct 29, 2008
annegirl1919
sharlin, mom to aviah, smith and faye (4/08)-dx with acid reflux (mostly silent) at 6 months.
Looking back I suspect she's been dealing with this for most of her little life. She's tried about every formula in the book and is currently on liquid alimentum, which has really helped a lot with her fighting feedings. We also tried zantac, but she became MUCH worse, and so we've been trying to work on helping her through her diet. she's also taking probiotics, and i'm hoping to get her eating some solids more regularly.
corn free formulas?
i have my daughter on neocate, but i just can't help thinking that her reflux is coming from something. maybe it's just an immaturity in her digestive system-fine, we are waiting, but since she is allergic (gi issues) to milk and soy, i can't help wondering about corn. so why do formulas like neocate still have corn syrups solids as their carbohydrate when corn is one of the top allergens? does this make anyone else mad? does anyone know of a hypoallergenic formula that doesn't contain corn? thanks!
Oct 29, 2008
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
I'm sorry I don't have any suggestions for you. My dd is allergic to corn and we can't do Neocate either. We are on some weird specialty formula but we have to add and subtract things from it. It costs us more than $60 a week. I hate that they haven't found a better way to make hypoallergenic formulas. I share your frustration.
Oct 29, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
I think I found one for you, but it has other allergens in it (coconut oil, soy, etc...but no corn that I can find.) It's Baby's Only Organic Soy Formula

Ingredients: Organic Brown Rice Syrup, Organic Soy Protein Concentrate, Organic High Oleic Sunflower Oil, Organic Coconut Oil, Organic Soybean Oil, Monopotassium Phosphate, Magnesium Sulfate, Calcium Carbonate, Tricalcium Phosphate, Organic Soy Lecithin, Calcium Ascorbate (Vit. C), Sodium Chloride, Organic Vanilla Flavor, Calcium Citrate, Choline Bitartrate, L-Methionine, Taurine, Ferrous Sulfate, Inositol, Zinc Sulfate, Natural Alpha Tocopheryl Acetate (Vit. E), L-Carnitine, Niacinamide, Calcium Pantothenate, Vitamin A Palmitate, Thiamin Hydrochloride (Vit. B1), Riboflavin (Vit. B2), Pyridoxine Hydrochloride (Vit. B6), Copper Sulfate, Folic Acid, Phylloquinone (Vit. K1), Potassium Iodide, Sodium Selenate, Biotin, Vitamin D3, Cyanocobalamin (Vit. B12).

Oct 29, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
And I just read that your LO is MSPI....helps to read the whole post before popping off to research. I'll keep looking!
Oct 29, 2008
3blues21pink
DS #1 (7/05) - Just ReDX'd Refluxer! Prevacid Solutab starting 4/8/09. Lots of food and environmental allergies. Autism, Sensory Processing Disorder, Speech Delays, Developmental Delays, Severe Muscle Tone Weakness.
DS #2 (1/08) ReDX'd refluxer. Milk and soy allergies with Soy Lecithin allergies. Oat milk drinker, Rice protein powder, DHA, and vitamins added for bulk and needed nutrition. Weak muscle tone, slightly developmentally delayed, SPD confirmed.
I haven't seen anything else that works. My son has milk and soy allergies, so every formula on the market is out. Neocate is the only thing we have found so far. I am so tired of how much it costs. It's killing us. But it works, so far.
Oct 29, 2008
annegirl1919
sharlin, mom to aviah, smith and faye (4/08)-dx with acid reflux (mostly silent) at 6 months.
Looking back I suspect she's been dealing with this for most of her little life. She's tried about every formula in the book and is currently on liquid alimentum, which has really helped a lot with her fighting feedings. We also tried zantac, but she became MUCH worse, and so we've been trying to work on helping her through her diet. she's also taking probiotics, and i'm hoping to get her eating some solids more regularly.
would you tell me what the weird specialty formula is? i'm spending 100-120 per week on neocate, so 60 sounds nice. :) i'm not sure she's allergic to corn, but i just keep wondering why she is refluxing. there has to be a reason!!
Oct 29, 2008
3blues21pink
DS #1 (7/05) - Just ReDX'd Refluxer! Prevacid Solutab starting 4/8/09. Lots of food and environmental allergies. Autism, Sensory Processing Disorder, Speech Delays, Developmental Delays, Severe Muscle Tone Weakness.
DS #2 (1/08) ReDX'd refluxer. Milk and soy allergies with Soy Lecithin allergies. Oat milk drinker, Rice protein powder, DHA, and vitamins added for bulk and needed nutrition. Weak muscle tone, slightly developmentally delayed, SPD confirmed.
I would be interested as well. I spend $139/week on Neocate (a case a week). So $60 would be a blessing!
Oct 29, 2008
nicholasmom
Renee, mother to Nicholas, born 4/18/08 with silent reflux, moderate laryngomalacia, Sandifer's Syndrome& suspected MSPI. On Neocate, Simply Thick and Prevacid. Also mother to Nathan, born 12/06/06, who had mild reflux the first few months.
Oh Gosh-I'd like to know what that specialty formula is too. I was just wondering the same thing about the corn syrup solids in the neocate the other day.
Oct 30, 2008
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
The formula that Adriane is on is actually a mix of several things. It is RCF, which is soy based and A is allergic to soy, but it has to be mixed with a carbohydrate. It is only $60 because our insurance will pay Apria for the base. We pay just for the carbohydrate. Then we add 8 lacteeze drops to it. I'm sure if I was paying outrights it would be more. I don't know why it works for her but the GI says it works for several kids as long as the mix is right. I am thankful that it does because our only other option is TPN, IV feedings. I know that when we paid for the case of RCF itself it was closer to $120 or so a week. Have you guys checked into getting Apria to help with the formula cost. Our ped wrote a script and sent it to them. They contact the insurance for you and then bill you for whatever they don't pay for. It is great. They auto ship 6 cases or more a month! Also, i have some extra neocate if anyone is interested in it. I would only charge shipping!
Oct 30, 2008
3blues21pink
DS #1 (7/05) - Just ReDX'd Refluxer! Prevacid Solutab starting 4/8/09. Lots of food and environmental allergies. Autism, Sensory Processing Disorder, Speech Delays, Developmental Delays, Severe Muscle Tone Weakness.
DS #2 (1/08) ReDX'd refluxer. Milk and soy allergies with Soy Lecithin allergies. Oat milk drinker, Rice protein powder, DHA, and vitamins added for bulk and needed nutrition. Weak muscle tone, slightly developmentally delayed, SPD confirmed.
Apria? What is Apria? I would love to use them if this is something we have access to. If no one took the Neocate (and it has the DHA/ARA in it, I would love to have it).
Oct 30, 2008
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
Apria healthcare systems. They will provide nutritional stuff and bill through your insurance. I don't have any contact info with me but if you talk to your ped they might be able to facilitate things more quickly. if not, let me know and I will make sure that I get all the info to you.

The Neocate doesn't have the DHA/ARA in it. She didn't tolerate it well. So, i have the regular. Several cans (10) at least. If you are still interested. Send me an email and let me know. amandawhite@clevelandtigers.com

Oct 30, 2008
3blues21pink
DS #1 (7/05) - Just ReDX'd Refluxer! Prevacid Solutab starting 4/8/09. Lots of food and environmental allergies. Autism, Sensory Processing Disorder, Speech Delays, Developmental Delays, Severe Muscle Tone Weakness.
DS #2 (1/08) ReDX'd refluxer. Milk and soy allergies with Soy Lecithin allergies. Oat milk drinker, Rice protein powder, DHA, and vitamins added for bulk and needed nutrition. Weak muscle tone, slightly developmentally delayed, SPD confirmed.
Oh phooey. I can't use it. DS #2 can't tolerate the kind without. They say they are identical except for the DHA/ARA, but after tons of research I found a few non-DHA/ARA differences and those small differences are what irritate my son's stomach. Of course because we are the mecca of odd reactions to odd and minute things. So, if anyone else wants it, I can't use it.
Oct 30, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
While Meggy never tolerated any infant formula for very long, we tried Ultracare for kids, a medical food. At first her problems were getting worse and we stopped it, but at the time she was still eating other foods.

Then we took her off of it and her problems kept getting worse. We emailed the doc. to tell what was going on and asked should we try Ultracare back and nothing else. He agreed.

On October 24, 2008 we started giving her Ultracare again. We put a few other ingredients the GI gave us as a recipe to make it complete. We only give her things that are already ingredients in her formula such as rice and canola oil.

So far, her gulping isn't any better. Her spasms are somewhat less, and she is sleeping so much better. The first day we didn't get much into her. Her most consumption till we tried Ultracare for kids only was 14 ounces a day. Yesterday we were up to 32 ounces of ultracare+ 4 ounces of water.

Meggy was in a much better mood today. While I am holding my breath as to if this is the answer, so far things are looking up. Unless something drastically changes, we will be sticking with this diet at least 3 weeks.

Oct 30, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Oh, I forgot to tell u-Prescription and non prescription, the only corn free formula I found was Alimentum Advance liquid only not powder. Of course, I don't know that your LO could have this knowing about MSPI.

Ultracare does have some corn in the Xantham Gum and Vanilla flavor, but not even close to the amount in other formulas.

Oct 30, 2008
annegirl1919
sharlin, mom to aviah, smith and faye (4/08)-dx with acid reflux (mostly silent) at 6 months.
Looking back I suspect she's been dealing with this for most of her little life. She's tried about every formula in the book and is currently on liquid alimentum, which has really helped a lot with her fighting feedings. We also tried zantac, but she became MUCH worse, and so we've been trying to work on helping her through her diet. she's also taking probiotics, and i'm hoping to get her eating some solids more regularly.
how long ago did you start on the ultracare? thanks, too for the info on the alimentum liquid. never thought of looking into different forms of the formulas for no corn!
Oct 31, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
I think we have been using Ultracare for about a month now, though only Ultracare and no other food outside of its ingredient list since October 24, 2008.

Yesterday she made it to 36 ounces, but then today at 3:30PM only to 10. She usually evens herself out. She will eat great one day and not so well the next three.

Hopefully she will be back to eating tomorrow.

Check with your
doctor first!