Posted By Posting
Oct 29, 2008
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
Ever have one of those days...
One of those days where you just want to roll up into the fetal position and give up! That is how I am feeling today. I know that it is lack of sleep and frustration, along with the horrible migraine, doing this to me. I'm not usually a fetal position type of gal. I am usually such a strong person but everything is starting to wear me down. I only want to be home with my girls and take care of them. Not be at work teaching or whatever else I have to do. I have such a great support system but even that isn't enough some days. A still has all the hives and excema everywhere and nothing is making it go away. She was horribly gassy last night and her reflux was awful. She went to bed for dad, I had a fb game I had to go to. I no more walked in and got ready for bed and she started whaling. That was around 10:45 and didn't stop until after midnight or later. Could have been 1 who knows. Then at 4 I noticed how cold it was in the house and checked the thermostat and it was 63 in the house. The is on but we haven't set the digital programmer for the winter. BURR!! So, A was right next to me in bed. I finally found DH on the couch and handed her to him and told him I needed one peaceful hour of sleep. It didn't really happen but I tried. Now I have a killer migraine.

Thanks for letting me vent. I'm already feeling better and thinking about getting out from behind my desk and maybe even eating lunch! I'm starting to feel more like my self. Or at least the person that I have become since I had Adriane and all the illnesses took over our lives.

Hope everyone is feeling better. -Amanda

Oct 29, 2008
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
BIG HUGS I know exactly what you mean...I think everyne on here would. My son was doing really well this morning until he threw up (right after I changed him) and then started shoving his fists down his throat to puke more. I just sat there adn cried and yelled at the kitchen sink about how unfiar this is...I'm sure I even said soem not so nice words...but as we moms don;t get to curl up in a ball, I cleaned up Z, refed him and it stayed doen (thank God) and got him to daycare and went to work...all I think about here is him. It sucks and I totally feel for you. We all need a vacation.
Oct 29, 2008
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
I really hate that you can't edit your posts to fix spelling. I'm not an idiot, I swear.
Oct 29, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
I call those days my "funks". I have them for far less than what you're going through! I send you great big hugs and an imaginary spa day ;)
Oct 29, 2008
stickybean
hugs hugs and hugs! Sometimes the only quiet place I can find is in the potty! Sometimes I steal extra moments in there while doing NOTHING!
Oct 29, 2008
sadie
Our 1 year old daughter has silent reflux, hypotonia as well as benign external hydrocephalus. We are currently weaning onto whole milk (we'll see if it works) and she is also on Prevacid 15mg per day.
HUGS!! I tell ya. I stay home w/ Keira for now but even doing that- I'm like Josyln's mommy in that I too find peace in the bathroom! LOL. There are days you I just want one hour (Keira isn't a nap fan) of quiet and relaxation. ;) We're here for ya. That's a cute pic of Adriane by the way. :)
Oct 29, 2008
bobblesmom
I am the Mother of 3 children, Alix, Aaron, and Aidan. Alix (5) had "silent" reflux until she was 5 months old; Aaron(age 2) has had GERD since he was just days old but was officially diagnosed with it at 4 months old and has had many tests to confirm it since. Aidan (8 mos) has no signs or symptoms to date thankfully. I never knew what it meant to have a "normal" baby since I had 2 pukers! Nobody understands how hard it is to take care of GERD babies unless they've had one themselves.
One of those days!
I know exactly what you mean! I'm pretty much up every night with Aaron because he starts screaming after midnight and wants to comfort feed until around 7am. Last night, he peed through his diaper and pjs around 430AM so I ended up having to change him. I didn't even bother to turn on the lights because at this point, I can do it blind! Of course, I tried to go back to sleep, then the alarm went off at 530AM for my husband, who decided to go back to sleep only to sleep through the next alarm--I suddenly woke up at 607AM--realized he was still sleeping--he had a meeting at 630AM! So, Aaron wanted to nurse, I'm half asleep, husband leaves, I wanted to go to sleep--which I did once Aaron was settled down at 7am, only to be woken up again by the phone at 715! My niece was sick and my sister was calling for advice. Told her to get her to the doctor. Got out of bed at 745AM because we were expecting our firewood to be delivered this morning. The irony is that days of all days, both kids were actually sound asleep until after 830--I should have been sleeping but nobody seems to want me to! I say we have a virtual day at the spa. I need to get "depuked"!
Oct 29, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
HUGE HUGS you guys!!! I'm sorry things are so hard right now. Yesterday was one of those "fetal position" days for me. Not on the reflux end (THANK GOD), but I was about to lose it.

Rory threw a temper tantrum on the bus, head-butted me in the mouth, causing me to bleed. My tooth drove into my lip and her head, and she was screaming. It was horrible. This went on for almost an hour. So I burst into the house announcing I will no longer be picking her up after work, that Mike HAD TO DO IT!!!! He calmly announces that the truck (you mean the black one you bought at night less than 6 months ago for $3400 CASH....the one you spent more than $2000 on parts since????) didn't pass inspection!!!!! So he CAN'T pick her up. It's not safe to drive.

Wouldn't have been such a bad Tuesday, except for Monday I got a letter informing me that the tax man cometh! Apparently, in Canada, you HAVE TO file common-law even if you are still married. News to me. I thought that was bigamy or something. I can't afford an accountant. And now I can't afford anything. So much for working my butt of to get ahead. HA! Now I want to rock myself gently in a corner again......but honestly, it still isn't as bad as dealing with a little refluxer who won't sleep. You'd think I would have suffered enough from that one. Noooooooo!

Sorry for venting on your post. Yes, I've had one of those days.....I hope they are few and far between from here on out. HUGS AGAIN!!!

Check with your
doctor first!