Posted By Posting
Oct 29, 2008
seamus mama
Seamus was diagnosed with Silent Reflux at 3 weeks. Now he is 14 months, on Prilosec and avoiding dairy,soy,egg. Still nursing. A lot !!!
we've been MIA. Seamus update, questions
Hi everyone and Happy Halloween We've been away from pager recently because I have been solo parenting for the better part of 2 months and I haven't had much time. Seamus' daddy is still totally in the picture..He has been working far from home lately but he will be back here full time starting next week. Seamus is still medicated for reflux with Prilosec, twice a day. He seemed to be doing very well, aside from his crappy sleep..So the GI had us take him off his morning dose to see how he did. He seemed pretty much the same so we took him off his PM dose, then 6 days later, WHAMMO! REFLUX ATTACK! We put him back on the meds and he was better within a couple days. It made me feel glad that we are taking the right course of action w meds. Since Seamus has been getting his molars in, I have been noticing that lots of times when he wakes up in the night he coughs. He has been sneezing quite a bit at night for quite some time. I have heard that teething can cause more reflux but I have no idea why. Could the coughs and be acid reflux related? Does anyone else out there have a little one who wakes up w coughs? Seamus has been waking up about every 1.5- 2 hours..When we did sleep training back in June he actually slept for 4 hrs in a row which made me feel like his night waking wasn't reflux related. Maybe he is allergic to something in our room..I have no idea..I hope this finds you in good spirits. Peace, Elizabeth Vive
Oct 29, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
From what I've been told, teething causes excess saliva, which kicks up the reflux, as well as diarrhea and coughing. Glad to hear from you and that the little man's doing okay.
Oct 29, 2008
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
We are right there with you in the crappy sleep group! I hope things get better. I agree with the pp on the reflux and teething. That and just about any illness makes A's reflux worse. I think it is the stress on the body too. -Amanda
Oct 29, 2008
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
So nice to hear from you!I've been thining of you two. I'm so happy to hear Seamus is doing better. And I know what you mean about being releived that he is on Meds that he ACTAULLY NEEDS. eases the mind a bit.

Jazz coughs during flare ups in the night, but I've since gotten her used to sleeping on a toddler pillow, which has helped with that. HTH

Oct 30, 2008
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
Hey! Great to hear from you again! I'm glad to hear that the meds are truly helping Seamus. As for the nighttime coughing, Lorenzo coughs a lot at night as a result of nighttime reflux episodes. It definitely gets worse when he is sick or teething (and it takes him MONTHS to push out a single tooth). One thing to be aware of is that coughing to protect the airway from reflux, while good to the degree that it prevents choking, can be an indication of small aspirations, which may not present any immediate (or even long term) problems, but is associated with an increased risk of asthma. Also, since you are in the land of the great fog and wetness...moisture, molds and mildews can cause problems for some kids. I grew up under the redwoods and had a horrible cough for over ten years that seriously sounded like I had TB, and that was believed to be the culprit, since it cleared up as soon as we moved out from under the tree canopy.

Sorry you're still not getting much sleep. Neither are we :( When he wakes up, is he upset, or does he just want to nurse and go back to sleep? Waking at regular intervals of 1-2 hours is fairly typical of breastfed toddlers who nurse at night. Are you still night nursing? Co-sleeping? I came across an interesting article from Dr. Jay Gordon on night weaning for co-sleepers. I haven't used it myself it, though I'm planning to soon, but I know several moms who have and said it worked really well. You can find it at: http://www.drjaygordon.com/development/ap/sleep.asp.

Congratulations on surviving single parenting with a poor sleeper for two months! My husband works 24 hour shifts away from home and I know it is not easy to have no plan B when things are really rough...

Oct 30, 2008
seamus mama
Seamus was diagnosed with Silent Reflux at 3 weeks. Now he is 14 months, on Prilosec and avoiding dairy,soy,egg. Still nursing. A lot !!!
Lorenzo's mama, Hi there.. In response to your questions, he isnt upset when he wakes up..Lately he has let out a shriek, which I think is teething pain..It happens after the cough, then he bolts upright and yelps.He does nurse right back to sleep, except with this teething he refuses to let go of my nipples, which are PURPLE from him sucking all night.. I actually stopped looking at the clock because it was driving me nuts so I am guessing it is about every 1.5-2 hrs that he wakes up..Yes, we are cosleeping and I am still nursing. We have considered doing the Jay Gordon, let your child attack you for several nights in a row method..I am tempted. Seamus is soo stubborn I could imagine it being quite the fight. I emailed you recently but the message was declined..Maybe I have the wrong email addy? Good to hear from you guys. Im glad to be back on the forum. Cheers~~
Oct 30, 2008
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
Haahaa, I have the same concerns about Lorenzo's stubborn ways. I can totally see him just deciding that if I won't nurse him he will just stay awake all night (and since he has done that before, and I have no reserves when it comes to sleep, I'm a little wary of all of it :) )

My email is cristina@MotherSupportNetwork.com (sometimes people put an "h" in the Cristina, which causes it to be returned. I also have one at cristinamarisa@hotmail.com

Too bad you aren't down here in the Bay Area -- I've started a breastfeeding toddlers support group which starts on the 1st and i know there are a bunch of mamas coming who are dealing with the all night Dairy Queen syndrome! If we come up with some good solutions or thoughts, I'll pass them on to you!

Hey, also, I keep meaning to ask, which GI do you guys see at Stanford? WE have our first appt tomorrow with Dr. Bass.

Check with your
doctor first!