Posted By Posting
Oct 27, 2008
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
little OT...know of any grants
I am looking for grants that will help with our travel and additional expenses for when we have to go to Denver. I know there are som out there but I'm not sure where to start so I thought why not ask you lovely ladies. You are full of all kinds of useful info. We are probably going to be able to stay with dh's aunt and uncle. They live in Monument CO so we won't have lodging expenses but we will have flight, food, car rental and whatever testing and medical expenses won't be paid. If you have any ideas or anything please let me know. Thanks! -Amanda
Oct 27, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
you can call the hospital and they will be able to tell you anything that they know of, i know our children's hospital has it on their website.. I know you are not on good terms with your GI but maybe you could ask your Pedi to do some grant searching for you.

have you checked P2P? some ladies there in the motility forum go to specialists and they probably know of grants and such you can get. all i know is that if there is a ronald mc donald house near by you can stay there for free, if you call them they might even know how to get you reduced flights or car rentals b/c they deal with families with sick kids all the time. I'm not saying that they will know for sure, but it's worth a shot to call around.
Oct 27, 2008
jessicalynn
mom to 4 kids with probable
Mitochondrial Disease
http://ourbeautifulchaoticlife
.blogspot.com/
Dealing with Fundo, J tube feedings,Severe Dysmotility,Aspiration,Asthma,
FTT,CVS,Dysautonomia,Resp.Distress
Connective Tissue Disorder,
GERD,EGID,
Visceral Hyperalgesia, and more
Many meds

In our area, there is a foundation that cares for very sick children. Our case was presented to them by our GI/hospital, and they have given us a lot of money for traveling to his doctors appts.Maybe you could check and see if there is some type of foundation like that in your area.

There is always the Ronald Mcdonald House, and I would call them and see if they have any ideas. When we got our info to go stay there, they were very helpful to us.If needed, you can stay there too, but you have to meet certain criteria as far as not being sick or exposed to any illnesses that could be passed to children with compromised immune systems.

Check with your
doctor first!