Posted By Posting
Oct 27, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
emi update
well we never had to drive down to all children's so that was a relief. She had a horrible morning yesterday morning and she just wasn't very happy all day. She couldn't even run around outside with her best little girl friend. She had diarehea with gobs of mucous again, but no more blood. i think the carafate is working. cause she is eating and drinking more. but it is only a upper GI med so i think it only takes care of half the problem.

the GI is going to call today and let me know what they are going to do. I didn't want to do the stool samples again b/c it's the same round of tests that we have already done twice. And all results from those tests were negative, so what is it going to tell us new? in my opinion, nothing. In my opinion i think that they should have already proceeded to the next step b/c this is definitely a reoccurring thing. the last time just 3 months ago. Emi is up for the morning, i need some coffee and do school work.
Oct 27, 2008
daniejo
Mom (Danie) to Adam (9-4-03) & Nate (3-7-07) Nate was diagnosed with silent AR at 2 months old. He was on neocate, prevacid 30mg per day and couldn't start solids till he was almost 8 months old. He started cow's milk at 14 months and is currently off all meds!! So far so good :) PIC: Disney trip 2008. Nate didn't know Piglet was there, he didn't like the characters too much.
UGH...I agree with you, they should have taken the next step months ago. I would not want to go thru all the hassle to get a stool sample for them to say it's negative yet again :-( I am thinking of you and your little girls Kat...I hope the GI has some really good advice...take care.
Oct 27, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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OMG!!!! I must have missed the post. I'm sorry that you are going through this again! My goodness. I also hope they can figure it out. I'm pretty sure that you have been keeping her diet sugar/starch free, right? Maybe sometimes her body can handle and sometimes it can't. I hope the GI figures it out soon. Poor lil booger. you should keep stool sample cups at all times for stuff like this. -Sarah
Oct 27, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
that is SO true, i should ask for extras- but i never know when it's going to happen, which means i would have to line her diaper with plastic wrap every day, how fun! LOL
Oct 28, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
That is so frustrating. We had stool sample after sample that told us nothing and I was continuously told those are normal bf stools. 10 diapers a day is not normal. Funny thing is as soon as I did the diet, the diapers changed. Don't think it was normal. So sorry. Hope you can get something figured out and she starts feeling all better! Hugs. How is audrey doing?
Check with your
doctor first!