Posted By Posting
Oct 24, 2008
Renee, mother to Nicholas, born 4/18/08 with silent reflux, moderate laryngomalacia, Sandifer's Syndrome& suspected MSPI. On Neocate, Simply Thick and Prevacid. Also mother to Nathan, born 12/06/06, who had mild reflux the first few months.
Allergy testing
We took Nicholas to the doctor today as his all over body eczema just keeps getting worse. She wants us to get allergy testing. When last we saw the GI, she said that doing allegy testing before the child was exposed to much may show false negatives. We only just started his first solid (peas) yesterday. What have you all heard/experienced with this??
Oct 24, 2008
i have no help for you.. but poor fella!!!!!!
Oct 24, 2008
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
I am not sure. I would def call an allergist and ask. My dd had allergy tests run via blood work but I want to say she was a year old. Sebastian's mom would be a great person to ask tho.
Oct 24, 2008
Connor 11/22/02
Grace 7/2/04 reflux free now!
Molly 7/10/07 the reason I'm here!
Are they going to test him for food or environmental allergies? If he is on neocate already, and doesn't eat anything else I wouldn't think he would need to be tested for food allergies now. If he isn't eating anything I don't think it would be a food causing the excema. Molly had the skin prick testing done at 13 months, but she was eating a variety of foods by then, and having reactions to something. I have also heard that testing for environmental allergies is not accurate in young children, but I don't really know anything about it. My oldest had horrible excema when he was an infant, but he didn't have any food allergies or reflux. We just treated it topically, and occaisonally gave benedryl if he seemed really itchy. It has gotten A LOT better as he has gotten older, but he still has patches of it, and times when it flares really bad. He has seasonal allergies so we give zyrtec now which seems to help with the itching from his excema, too.
Oct 25, 2008
Renee, mother to Nicholas, born 4/18/08 with silent reflux, moderate laryngomalacia, Sandifer's Syndrome& suspected MSPI. On Neocate, Simply Thick and Prevacid. Also mother to Nathan, born 12/06/06, who had mild reflux the first few months.
I believe they are testing for environmental allergies also. I'm with you, I would think the neocate would have handled it if it was formula related. We atarted peas the other day, but the eczema was already there and had been for a few months.
Oct 25, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
From what I have been told from several drs, testing is not accurate this young. i would question putting him through it if it is not going to give you any answers anyway. JMHO
Oct 26, 2008
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Hey there. I just checked in for a second (I am on a pager break) and noticed you had soem allergy questions. I am happy to help you with this - feel free to email me at I think allergy testing is absolutely essential as young as needed - even if your son is not eating solids right now (mine is not), you STILL need to be aware so YOU don't eat anything he is allergic to. For example, my son is extremely egg allergic. According to our allergist (Dr. Robert Wood - Hopkins, awesome), if I fry an egg in my house, Sebastian can have a life-threatening reaction (my house is egg free). If I eat bread around him (I don't) and then kis him, he gets hives. Early reactions = worsened allergies if exposure is not limited.

The majority of eczema is not food related, although the two are certainly linked. Sebastian's eczema has been awful for the last week - I have had to cover him daily in Aquaphor 2 and in the cortizone/Aquaphor prescription creme 1x. He is eating NOTHING but Neocate. I think his current eczema is caused by the cooler temperature and the drier air from me running the hear. Ragweed is through the roof right now, so I know that isn't helping. I know our dog is always a culprit, too.

My advice is DO NOT LISTEN TO THE GI WHEN IT COMES TO ALLERGIES. OUR GI TOLD US MY SON'S PROBLEMS WERE NOT CAUSED BY ALLERGIES AND THAT HE HAD CELIACS. My son is absolutely affected by allergies and is has been formula only since July because of extensive inflammation. Stupid GI. Unless your GI is an exception, GIs are NOT allergists. Listen to your doc. Oh - you have a 5% chance of having a false negative on the RAST test. We had almost all negatives on the skin test initially but lotsof reactions AND positives on the RAST. TO me, reactions trump reactions. Same goes for a good allergist...

Feel free to write me any time!!

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