Posted By Posting
Oct 24, 2008
ama
Mommy of Hunter born 07/16/08. Tongue tied at birth, never learned to bf well. Diagnosed with silent reflux at 5 weeks with barrium swallow. Fed on expressed breast milk. Currently on Gaviscon, Omeprizole (prilosec), Domperidone (Motilium)have yet to see medication have any effect on him. His biggest symptom is his distain of feeding time- he hates it. . Hospitalised for two weeks in September, fed through ng tube.
popz4120 re: aspiration
Ya know, I think we might be on to somehting here. After I read your post I gave him a bottle without any cereal , and specifically looked out for signes me might be breathing the milk. Sure enough when he started to choke/cough thats exactly what it seemed like had happened; he had aspirated. I cant beleive I hadnt figured it earlier. Is this related to reflux at all? Why do some babies do this? Is thickening the only way to fix it? If I could get his choking under control we might have a mini victory on our hands!!
Oct 24, 2008
stickybean
joslyn did this while at scottish rite. she aspirated into her lungs but nothing "bad" happened because of it. her lungs cleared themselves out and she was okay...how ever she stopped breathing from it......but like the other times she started breathing again once we sat her up.......... it is sooooo scarey!
Oct 24, 2008
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
Photobucket
My dd also did this. We were told to use a slower flow nipple (some babies don't take well to this), feed her upright and stop her often so she can slow down. Sorry my ds just got up but in the meantime I HTH. Have you had a swallow study done. Our GI ordered it and they tested to see which bottle and which nipples and which thickness best suited her needs. Good Luck!
Oct 24, 2008
ama
Mommy of Hunter born 07/16/08. Tongue tied at birth, never learned to bf well. Diagnosed with silent reflux at 5 weeks with barrium swallow. Fed on expressed breast milk. Currently on Gaviscon, Omeprizole (prilosec), Domperidone (Motilium)have yet to see medication have any effect on him. His biggest symptom is his distain of feeding time- he hates it. . Hospitalised for two weeks in September, fed through ng tube.
Thnaks guys! He starts doing this choking thing a good three or four times a feed. He will only stop breathing a second or two, but (and I cant blame him) he doesnt want to continue to feed after it happens a few times It sooo frustrating for us both! When we were in the hospital the docs and nurses listened to his cheast all the time, if he was taking in liquid wouldnt they have heard it? What is a "swallow study"? Hes had a barrium swallow ..I guess not the same thing? It would be so nice to know the correct nipple/bottle to use , Ive just stuck with the Dr.Browns because here in the UK we dont have much of a selection and those are about the best I can get :(
Oct 24, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Cooper was a really bad choker. he still is actually. We had the most luck w/ slow flow nuk orthodontic nipples. He can only take the nuk sippy now or the slow flow bottle. I tried to give him a faster flow nipple just this week, I figured at 10mo he could take it, but he still couldn't handle it. Hope you can get it figured out.
Oct 24, 2008
susiegal
Mom to Charlie - cleft palate and reflux. Meds - zantac, prevacid, mylanta and reglan.
The barium swallow should definitely help you figure out when/if Hunter aspirates. My son Charlie had one and he was so clearly aspirating on regular formula that it nearly jumped off the picture! So we then tried to feed with thickened formula and it was much better. The doctors believe he also aspirates when he refluxes. You can imagine if the stuff comes back up, there is a good chance he can aspirate it when it goes back down (yuck!). He has a cleft palate, so it is wide open between his mouth and nasal area which also leads to increased chance of aspiration. I suggest you get this checked into further with specialists. Charlie had aspiration pneumonia a couple of times and while we caught it and easily treated it with antibiotics, it could have become a lot worse. I do not mean to scare you, it is just good to know what the possibilities are. Good luck! Susie
Oct 24, 2008
ama
Mommy of Hunter born 07/16/08. Tongue tied at birth, never learned to bf well. Diagnosed with silent reflux at 5 weeks with barrium swallow. Fed on expressed breast milk. Currently on Gaviscon, Omeprizole (prilosec), Domperidone (Motilium)have yet to see medication have any effect on him. His biggest symptom is his distain of feeding time- he hates it. . Hospitalised for two weeks in September, fed through ng tube.
Thanks again for all of your suggestions guys! Ive been using the rice cereal today and he is choking less. I think It might be helping (<----------- Did you see that!?! I finally got to say something is helping!!) Im a bit weary about putting it in every bottle. It seems like quite a lot of cereal each day. I talked to the doc and he said as long as its working and he is happy than he wouldnt bother with the feed thickener, but somehting doesnt sit right with me about all those extra calories and stuff. Any suggestions ? Has anyone had more success with the thickener than cereal? Also Id just want to say that you guys are so helpful and I feel bad I cant contribute more to other posts, but Im still new to all this. So thanks again!
Oct 24, 2008
popz4120
Bryson (3/06), former Neocate, Nexium, and Reglan baby. Diagnosed with peanut allergy and asthma. Weaned from meds in Spring 0f 08. Brother, Parker (6/04), was also on Prevacid and Pregestimil (formula) as an infant.
Sorry that I am just now responding to your post. I had to go back to work today as my child's fever was gone. Shucks! :) We used cereal with our son as well, but after his Swallow Study the Speech Therapist suggested Simply Thick to us and I was thankful. I wish I could answer all of your questions,but I am not sure of the answers. I guess I have blocked out that part of his life in someways. They explained it all to me but I can't remember enough now to explain. This was about 2 years ago. There is a part of the throat that is supposed to close to prevent liquids from going into the lungs and on children that aspirate it does not always close. (if i remember correctly). The liquid also pooled in our son's throat and that made the gurggling and rattling sounds after he ate. I wish I could help more! I don't know if your son is aspirating but something in your post just made me think of it. I would definitely ask the pedi more about it. I wish you the best! I am not sure if it would have showed up on a Upper GI test.
Oct 24, 2008
nicholasmom
Renee, mother to Nicholas, born 4/18/08 with silent reflux, moderate laryngomalacia, Sandifer's Syndrome& suspected MSPI. On Neocate, Simply Thick and Prevacid. Also mother to Nathan, born 12/06/06, who had mild reflux the first few months.
Our Nicholas was found to be aspirating early on. We did the swallow study and it was found (according to the study)that he didn't aspirate while eating, more on his reflux. They told us we didn't need to thicken but I question the study as the formula with barium was quite thick and he definitely seems to choke less while feeding and between feeds since we started thickening. The GI wanted us to thicken for reflux sake anyway. We use and love Simply Thick thickener. It has NO Calories and no corn (which a lot can be allergic to). He even spits up less than he did with the cereal. Good luck!
Check with your
doctor first!