|Oct 22, 2008|
Alex was dx with silent reflux at 3 weeks old. Previously on Prevacid SoluTabs 15mg daily, now on trial of no medication. Was thought to have oral aversion, saw feeding specialist who says he's just not interested in food--no aversion at all. Slowly coming around to food. 15 months, 19lbs, 7 oz.
Thank you to Rory's Mom, Elysabeth's Mom and Zack's momHi Ladies! I just wanted to thank you so much for your words of encouragement. It's been a very long and tough year for us. Somedays it takes all I have to "be happy" during Alex's meal times. I am reassured by your own personal stories that I am NOT crazy! Ha! We have an appt tomorrow morning for us to meet with the oral aversion specialist who will hopefully help us turn things around for Alex. Please keep your fingers, toes and eyes crossed.
Rory's Mom--thank you for sharing your story. It really touched me and made me feel better. I agree that I do take his lack of eating as failure and inadequacy. I can't help it but I am working on that. Please feel free to get on your soapbox anytime! Sometimes I just need to hear it from another mom who has been through it and has seen the light. I am so happy that Rory is eating better. I'm glad you got the stomach/pectus excavatum thing under control.
Elysabeth's Mom--I, too, have been guilty of yelling and banging. Sigh. The books you mentioned seem interesting. Do you recommend one for oral aversion kids? I saw in a previous post, you mentioned other books by Ellyn Slatter
Zack's mom--Big hug to you! I am also pretty sure that my behavior has not helped with the oral aversion. I think this is also why I feel so much guilt when he doesn't eat and I do take it very personally. It just becomes a bad cycle. Sigh. How does Zack react when other people feed him? When my mom fed Alex, he seemed to eat better (which just reinforces the idea that it is ME! Too bad she lives out of state, otherwise I would beg her to come over for every meal).
|Oct 22, 2008|
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
|I wanted to wish you luck at your appt tomorrow. Be prepared to answer a ton of questions. One thing they will probably tell you is that there isn't a quick fix. It is going to take lots of determination, hard work, and consistency, and a considerable amount of time to see really good results. But just having someone listen, a professional, who can offer you tips and coping skills for you both...is worth it's weight in gold. They won't just be trying to change Alex's behaviour, they'll most likely want you to change yours too, or adapt it, kwim? I just want you to be prepared for that. It is sort of weird to be told when you are doing something "incorrectly", or how to do it "better" especially when it's trying to feed your own child, but they should know what they're talking about, so just go with it. Of course, if you feel strongly about a particular issue, you must always go with your mother's instinct. It trumps. GOOD LUCK!!!!! Let us know how it goes. HUGS|
|Oct 22, 2008|
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
|I think feeling like it's your fault is part of the greiving process. I was for me at least. I felt like the world's worst Mom...:( But after a whiel I fugured you know what this is the hand I've been dealt. I put on my big girl panties and life marched on...LOL|
I really hope they can give you some GREAT suggestions tomorrow. Can't wait to hear how it goes. Good luck!!!!!
|Oct 22, 2008|
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
|Yep, yelling and banging started happening around one year old....before that I would just cry! |
Just take a bite by Lori Ernsperger is good. it is written by an OT and probably goes into more detail than you need and I feel it is more geared towards older kids but some of the ideas ARE good for little ones just starting out. Right now i am reading Poor Eaters by Joel Macht. This one has a very detailed table of contents, maybe check amazon and see if it lets you look at it. There are parts of this book that talk about infants and toddlers but i have not read much of it yet. The next one i have is Food Chaining by Cheryl Fraker....it teaches you how to take a food your child already eats and change it little by little to "chain" it to new foods, thus varying your child's diet. it looks really good too, and there is even a chapter on "pre-chaining" which is supposed to help prevent food jags in the first place, for infants.
I also took a feeding class online and have 2 more lined up (I am a speech therapist so I am *qualified* to do feeding therapy...but we don't learn much about it in school so I am learning all I can now!)
And don't feel bad that he eats better for your mom...it is typical of poor eaters to do better with one person than another, and if you analyze the way the other person does it sometimes you can find differences in the way caregivers feed the child that make the situation more ideal to the child. Even something as simple as being in a highchair with a footrest to rest their feet as opposed to having their feet dangling can make a difference! In our case, Elyse always drank bottles better for dad and grandma...we tracked it down to me being altogether too tense and stressed about the whole eating thing! She still eats better at gma's!!
|Check with your