Posted By Posting
Oct 22, 2008
natalie
Frustrating Feedings
Hello. I am new to the group and in need of some moral support. My baby girl is now 6 months old. She was diagnosed with reflux around 3 weeks based upon her feeding behavior (arching back, pulling of bottle and screaming, etc.) She was put on Zantac which didn't seem to do much of anything. A few weeks later we changed formulas to Nutramigen and began her on Prevacid. Within a day her overall disposition changed from fussy and uncomfortable to happy . . . thanks to the Nutramigen. I'm not really sure that the Prevacid has helped at all. Basically, I'm just exhausted and unable to find a solution. She is incredibly active and bright and the doctors just keep telling me she'll outgrow it. She has gained weight nicely ( from 5 lbs 10 oz at birth to about 14 lbs now). She is long and lean and very strong. However, every feeding is a challenge. She seems to just hate eating. Somehow I can manage to get food into her but it is never easy. She takes down the first ounce or two pretty quickly and then the rest of the bottle (if she finishes it) is a constant game. She takes a break, sucks on the pacifier, drops it, I try to get her to take more, etc. I'm afraid that I'm setting up an unhealthy feeding relationship. Also, she seemed to be really interested in solids and tolerating them well since about 4-5 months. Then within the last couple weeks she has no interest in them. I think some of the recent battle is teething related. Has anyone had an experience similar to this? Am I missing something that would make feedings more enjoyable for her? Any insight or guidance is greatly appreciated!
Oct 22, 2008
stickybean
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
Joslyn is 6 months as well (4-11-08). She can eat really well and then not well at all. I have not found much that can make her enjoy feedings everytime... unless it is mashed naners!!!!!
Oct 22, 2008
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
Zack is a year and I struggled with this for a long time...now he takes his bottles without fuss...actually cries when he wants one, but he thows them up on a regular basis... My personal thought...feed her less amounts more often...when she stops sucking and starts messing around drop it for a half hour or an hour, then come back to it. Some kids are just going to need to be fed all day long. I know mine is..he never increased his intake much, so he never switched to 4 8oz bottles. I still feed him at least 6 x's per day...
Oct 22, 2008
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
My son, although breastfed, has always been a "short" feeder...nursing for a few minutes, popping off and then wanting more a short time later. I don't know if your daughter's approach to the bottle is similar, but I do know that a lot of active kids have a hard time really settling into eating. Do you have any "mam instinct" sense about its cause? If you can confirm with the help of her physician that there is no medical cause for it, it might be helpful for you to put it in the context of what healthy eating habits are now understood to look like -- grazing, or many small meals, and high activity levels are an outstanding combination for health.

My son, who is also very active and has (almost) always grown very well, was really excited about solids at first, but quickly changed his mind and then didn't really eat solids again until he was 14 months old or so. I guess my suggestion is that you speak with her doctor about it to help determine how much her reflux and/or teething are playing a role, and if they aren't the cause, let her be your guide. Again, active kids generally seem to do best when they eat lots of small meals rather than larger ones at more distant intervals. Best of luck! It's great, I think, that you're thinking about her long term relationship to eating at this point.

Oct 22, 2008
abbysmom
Andrea: Mom to 3 crazy girls!
Jackie (3/01)
Payton (9/03)
Abby (4/06) Prevacid 7.5mg (evening), MSPI, goats milk (currently trying to wean off Prevacid)
Photobucket
What is her dose of Prevacid? And what type is she on (solutabs, liquid)? Abby was on Nutramigen and she also seemed better on it but would also fight us when she ate. It seemed like she wanted to eat but would stop and cry out, arch etc. Then would drink alittle bit more. Her GI said that this was a formula issue b/c she was already on a good dose of Prevacid. So we tried Neocate which she did so much better on. No more crying out when she ate or arching. And it greatly decreased her spitting up. Are you seeing a pedi GI?
Oct 22, 2008
ama
Mommy of Hunter born 07/16/08. Tongue tied at birth, never learned to bf well. Diagnosed with silent reflux at 5 weeks with barrium swallow. Fed on expressed breast milk. Currently on Gaviscon, Omeprizole (prilosec), Domperidone (Motilium)have yet to see medication have any effect on him. His biggest symptom is his distain of feeding time- he hates it. . Hospitalised for two weeks in September, fed through ng tube.
Boy Natalie, I could have written that post myself. My LO has gained weight well, but feeding is exhausting. I too am afraid that Im setting up bad habits, yet my doctors arent too supportive because hes gaining wait. If hear one more doc tell me to "perservere" ..... I tried Nutarmigen aswell, though only for a few days and didnt see much difference , so put him back on breast milk. I can tell you the onlt things that have made any difference (and not that much) 1. Gavsicon in his bottle to thicken the feed (I dont know what they call it in the States) and 2. oddly , feeding him in different places around the house.. he will like our bed one week... then he will like his bouncer another week.. then he will like his ply gymn etc etc.. Girl, I tell you, I truly feel your pain.
Oct 22, 2008
ama
Mommy of Hunter born 07/16/08. Tongue tied at birth, never learned to bf well. Diagnosed with silent reflux at 5 weeks with barrium swallow. Fed on expressed breast milk. Currently on Gaviscon, Omeprizole (prilosec), Domperidone (Motilium)have yet to see medication have any effect on him. His biggest symptom is his distain of feeding time- he hates it. . Hospitalised for two weeks in September, fed through ng tube.
omg .. did I actually spell "weight" as "wait"??
Oct 22, 2008
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
ha ha, we did this, too...still do sometimes...kitchen floor is the magic spot one day...next day it's the boppy...he went through a period where the front porch was magical...that was fun when he puked...just HOSE it down! Howdy neighbors!
Oct 22, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
Hi and welcome. Is this a recent behavior? At around 5-6 mo. old very active babies become more interested in the world surrounding them and begin to "play" at the breast or bottle. This is normal behavior. Try making bottle sessions quiet and comforting. Do you feed on demand or on a scheudle?

It is even worse @ 1.. i feed coyle on the kitchen floor, the living room, all over! we save "mealtimes" 3 times a day at the kitchen table and snacks can be anywhere. i have a friend who finds this ridiculous but the more moms i speak to and the more reading i do it seems that this is normal.. it is called "hunter-gatherer" i think...

however, if feeding has been a constant struggle then there is a whole other set of answers.

lorenzo's mom. I love what you said about "what healthy eating habits are now understood to look like -- grazing, or many small meals, and high activity levels are an outstanding combination for health" where did you find this information? it makes me feel GREAT and i would like to have a source to cite when talking about this issue.
Oct 22, 2008
natalie
thank you!
thank you, everyone, for your words of encouragement and sharing your experience. this is my first baby and i just feel like i am missing something! she is on 1 ml of 7.5 mg prevacid (in an oral suspension) twice a day. the doctor said this a pretty standard dose. like some of you have shared, given that her weight gain has been good the doctors don't really seem to be concerned with her frustration during feeding . . . i should have them try feeding her for a day and then see what they think?!?! i appreciate the suggestions about feeding in different places. it seems from brith her favorite place of eat is when i'm holding her in my arms bouncing gently on a big exercise ball. you'd think i'd have betters abs by now?!? i have noticed that she eats best when she is falling asleep. her feeding before bed and in the middle of the night are effortless. today at "lunch" she drank 2 ounces pretty quickly and then refused more. i waited 30 minutes (as zack's mom suggested) and sat down with her on the bouncy ball and she drank the rest of the bottle as she started to doze off. so maybe i need to settle into more of a grazing pattern with her and at least then feedings won't be a drawn out battle. sorry for all my rambling. i'm not very forum-savvy! thank you to all for your help!
Oct 22, 2008
natalie
mom2coy, in answer to your question. feedings have been an on again off again struggle. i'd say more often a struggle than not. however, the last month has been pretty rough. i've been told this could be related to teething. she sure loves having everything in her mouth - except her bottle. it seems like out of the blue i'll have a week with her where she is eating like a champ and pounding through her bottles without much fuss at all. i start thinking we've turned a corner and then it seems like we're back to square one again.
Oct 22, 2008
ama
Mommy of Hunter born 07/16/08. Tongue tied at birth, never learned to bf well. Diagnosed with silent reflux at 5 weeks with barrium swallow. Fed on expressed breast milk. Currently on Gaviscon, Omeprizole (prilosec), Domperidone (Motilium)have yet to see medication have any effect on him. His biggest symptom is his distain of feeding time- he hates it. . Hospitalised for two weeks in September, fed through ng tube.
Oh yes, the beloved "dream feed" . I think Hunter would have withered away by now if I hadnt discovered this. Also , you might have already done this, but I also get a good amount of success with having him get comfortable sucking on his binkie then doing a quick switch-a-roozie with the bottle. Some times he catches me out and gets mad but others he just goes on sucking away at the bottle. Def worth a go.
Oct 22, 2008
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
Zack never refluxed the sleep feeds, either...he feeds MUCH better when he's sleepy. I guess he thinks about it less and everything is more relaxed...who knows.
Oct 22, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
coyle never refluxed during his middle of the night feedings either. less distraction and i held him for at least an hour after until he was about 10 months old.

i found that once i stopped trying to "force" the feedings coyle did much better. we settled into a routine at that age with the bottle feeding.. what is your daytime schedule like??

anyway, i guess what i'm getting at is as a new mom to a preemie (4.5 ounces @ birth) and one with reflux to boot... i CONTSTANLY freaked out about intake ( i wrote every ounce down for months) and it seemed like i sometimes would try and feed him when he wasn't even hungry. our pedi always says that some babies "like" to eat just to eat and others eat when they "need" it-that is during growth spurts and such. coyle is the latter kind of baby. somedays he eats like a hog and on others hardly nothing.

at that age he drank about 26-30 ounces a day. BUT.. when he started cutting teeth @ 5 mo. we would have days where he would only drink 17 ounces and a couple occasions i recall he drank 41 ounces! i started doing myself a favor by making smaller bottles too :) oh, and do you fortify? coy's bottles are still 24 cal/ounce. (except for his milk in the middle of the day ofcourse)
Oct 22, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
You may want to get off the suspention of Prevacaid and onto the solutabs. The suspension are not as stable and need to be refilled every two weeks to keep them stable. Also that dose seems low. Jedd was on Prilosec suspension. (very similiar) He HAD to have a liquid suspension because it went IN his feeding tube we had NO choice in the matter. Anyways, he was on at his highest 5cc twice per day. He was around 11 months old at that dose and was about 19 lbs at the time. So I think you have some wiggle room in the dosing.

Have you called early interventin in your area to see if they can come out and do a free eval. They can do wonders working with kids with oral issues. They have with DS.

Oct 22, 2008
natalie
thanks, mom2coy! i have been reading a book by ellyn satter in regards to the "forcing" food issue. it is so hard for me not to force it! tabitha was 5 lbs 10 oz at birth (full term just little - but i've always been skinny so she probably takes after me) and i was paranoid from the beginning about how much she ate. i felt like every spit up was throwing her into a downward spiral. the peditricians feel fine about her weight gain and keep telling me to relax, etc. i think she is like coyle - she eats when she needs to but she'd much rather be playing or exploring or interacting with us. maybe that's why sleepy feedings are so good for her . . . she is finally tired enough not to want to do anything else?!?! i definitely feel like teething has to be making this worse. i just wish a tooth would pop out to prove it;-) pardon my ignorance but when you say "fortify" in regards to a bottle what do you mean? i'm assuming you add something but what? the doctor has never suggested anything like that other than rice cereal to help with spitting up (we tried it and it didn't really seem to help). her daytime schedule generally follows this pattern: 7 a.m. wake-up she likes to play for about an hour before eating 8 a.m. offer bottle mid morning offer solids mid morning nap 12 p.m. offer bottle mid afternoon nap 4 p.m. offer bottle 5/6 p.m. offer solids 7/8 p.m. bottle / bedtime then she usually wakes up once (sometimes twice) a night to eat more sometimes i'm not even sure if i'm reading her hunger cues right. but that's another story. between her feedings she is pure bliss. seriously, we have so much fun. i just hate that feedings are so painful for her and frustrating. jed'smommy - i tried the solutabs once during a vacation since the suspension has to be refrigerated (which isn't always travel-friendly). i felt like she never got the "full" dose. there were always undissolved granules in the syringe, etc. also since she is on 7.5 mg twice a day and the solutab was a 15 mg tablet it meant i had to dissolve the whole thing and give her half which again resulted in portions of it not dissolving, etc. am i making this way more complicated than it needs to be? i have been known to spend a couple hours reorganizing a diaper bag so it's very likely my fault! LOL
Oct 23, 2008
ama
Mommy of Hunter born 07/16/08. Tongue tied at birth, never learned to bf well. Diagnosed with silent reflux at 5 weeks with barrium swallow. Fed on expressed breast milk. Currently on Gaviscon, Omeprizole (prilosec), Domperidone (Motilium)have yet to see medication have any effect on him. His biggest symptom is his distain of feeding time- he hates it. . Hospitalised for two weeks in September, fed through ng tube.
In regards to attempting not to force- I too try so hard . On the days he isnt eating much I tend to offer the bottle every few minutes , and sometimes keep it there longer than I should (is this considered forcing??) On bad days do you notice they end up eating the same amount regardless of if you "force"?
Oct 23, 2008
abbysmom
Andrea: Mom to 3 crazy girls!
Jackie (3/01)
Payton (9/03)
Abby (4/06) Prevacid 7.5mg (evening), MSPI, goats milk (currently trying to wean off Prevacid)
Photobucket
I agree with Jedd's mom I would def try the solutabs again. The suspension has to be made right by a compounding pharmacy (not the normal CVS, Walgreens etc) and even then it usually only is stable for 2wks. We started giving Abby her solutab at 6wks on a baby spoon. Just broke 15mg tablet with a pill cutter (saved the other half for later). Then put that half on a baby spoon with a little water, let it dissolve some and fed it to her. We found that this worked better b/c like you said, if you use a syringe some of the granules get stuck in the tip.
Oct 23, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
I can offer a couple of suggestions. Probably what is happening is that she is taking in enough totally in a 24 hour period since she is still eating @ night. At her weight she needs 50*14= 700 cal per day=or 35 ounces a day or 32 ounces plus solids or 29 ounces of 24 cal/ounce formula. That is 5 ounces of water to 3 scoops of formula or 3.5 ounces of water to 2 scoops of formula.. for kids who are low weight or dont drink enough you can bump cals up in formula at your doctors advice. however, since she is 14 pounds that makes her in the 25th percentile or so and considering she was born at the 3rd her weight does seem great! but you can always talk to doc to see if it will help.

Many times I was told to cut it out and that it is "bad" to feed your babies at night. My personal opinion is that it is okay as long as they are not associating eating wtih sleeping. That being said if you want to continue to bottle feed thru the night (we did until 11 mo. and even still sometimes when he wakes up I give him a bottle-he is 12.5 adjusted) then maybe you can consider giving only 4 ounces instead of 5 or 5 ounces instead of 6.. you know, just decrease the amount a bit.. then i'm sure you'll see her eat more during the day.. but, if this makes her puke more then there is really no sense in that, kwim?

also what might help is changing up her day schedule (if it is not working good for you that is)... You might try, for instance, 7am wakeup try solids

play for a bit (solids do stay down better for most kids-not mine until around 10-11 months) 8 or 830 am 6 ounce bottle feeding-hold for quiet time

9 am-nap

6 ounces bottle feeding upon wakening-then put in exersaucer, swing, whatever you have to keep her upright for 30-45 min and give yourself some lunch

afternoon nap around 2ish 6 ounces bottle upon wakening-hold after bottle or put in exersaucer or whatever

try solids about an hour after that bottle bath after solids.. 7-8 ounce bottle 30 min. before bedtime-hold after bottle. feeding on demand thru nightime.

does she nap well for you?
Oct 23, 2008
natalie
thanks for the suggestions on the solutabs. i think i'll try them again. also in regards to how much she eats in a 24 hour period . . . i really struggle with this and think it is what drives my anxiety. she has never eaten the amount she is "supposed to" according to the calculations in a day. i've been told you can't follow those standards strictly because every baby metabolizes differently, etc. that the baby knows how much he/she needs. she averages between 22-29 ounces per day which is the highest it has ever been for her. since she is hating solids right now - i offer them at just let her play with the food to at least have a fun association with it - the formula is all she takes. she doesn't act hungry, lethargic, has a daily bowel movement, and plenty of wet diapers. she is very active and does well with 2 approx. 60 minute naps per day. it's so hard for me not to obsess and just trust her . . . and the doctors who thinks she is doing fine and will just outgrow this. i really think teething i playing a role now, too. any experience with this?
Oct 23, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
teething sucks. my son refused to eat while cutting teeth and hes been teething since 5 mo. old. now cutting all his molars. he'll not eat while cutting them and then pig out after it is thru. makes reflux worse too!
Oct 24, 2008
natalie
thanks again to you all for your input and suggestions. sometimes it feels like i'm the only mom going through this and it is so helpful to know i'm not alone.
Check with your
doctor first!