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Oct 21, 2008
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
Alex's Mom
aren't those mesh bags the BEST? Zack loves them, but doesn't like anything in them except ice cubes...we have tried other things. I'm going to try freezing fruit juice and se if he'd like that. He didn't like fruit in them that's for sure! Anyway, have a couple of those things on hand...if he takes to it, it'll get you through almost anything!! :)
Oct 21, 2008
alex's mom
Alex was dx with silent reflux at 3 weeks old. Previously on Prevacid SoluTabs 15mg daily, now on trial of no medication. Was thought to have oral aversion, saw feeding specialist who says he's just not interested in food--no aversion at all. Slowly coming around to food. 15 months, 19lbs, 7 oz.
I totally forgot about the mesh bags until you mentioned them. Thanks for the idea. I have tried freezing diced peaches and Alex didn't like that. In my crazy mind I have thought of freezing pediasure, whole milk and other things, hoping he might start sucking on them. I haven't tried it yet. How is Zack doing? I think about you and Zack everyday because I feel like we are in the same situation. I just got back from Costco and cried all the way home. Stupid, I know. But I cried for the both of us, for our sons who don't like to eat. I was looking at all the food at Costco and thinking if he would just eat, I'd make anything and buy anything. I was so jealous of the other little kids trying all the free samples. Sigh. I feel like I'm losing it today. Alex wouldn't take his bottle or eat any food for lunch so I don't know if that set me off. I'm just so scared and stressed out everyday that he doesn't eat. My husband thinks I'm too neurotic about Alex's eating. How can I NOT be? I've been praying so hard that this aversion "will just go away" but I'm afraid that this is gonna be such a long and tough battle for my little guy and I just worry that it won't get any better despite OT. Sigh. Just had to put everything out there. I'm feeling so alone in all of this. We just relocated to the Pacific NW and my husband works a lot so that I can stay home with Alex. We are afraid that any day care wouldn't spend as much time trying to feed him and Alex would be worse off. I hope that Zack and Alex both have better days tomorrow. If you ever just need to talk/vent, email me and we can exchange numbers - thaimonkey77@yahoo.com
Oct 21, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
Hi Ladies....I have been eager to chime in to you both, and finally got Rory to bed. I can really feel your pain and frustration in your posts. I have soooo been there. The tears, the worry, the less than understanding hubby. The not eating is so stressful, because you have to repeat it over and over each day, every day. I can tell you it does get better, but having been there, I know it won't make an oz of difference. Rory weighed 17lbs 7oz at 12 months, Alex's Mom, and she's only 19lbs 8 oz at 19 months. And she is thriving. Very smart, lots of energy, talking, etc. And trust me, this kid lived off of 16 oz a day until she was 8 or 9 months, never ever dehydrated....she barely touched food and lived on 24 oz a day of concentrated formula up until she was 16 months, when we could finally say she *ate* a satisfactory meal. And boy does she eat now. I, too, was so worried about daycare, and now I don't have to be (though I still send a bottle with a doctor's note) ;). I guess what I'm trying to say is that even though you are going to worry regardless, don't beat yourselves up about the eating thing. I swear to you, I also cried in the baby food aisles, when I ran out of types to try....I tried everything, homemade, processed, frozen, heated, chopped, diced, mashed, pureed.....and honestly, do you know what I realized one day. If I'm making the meal....if I'm offering the four food groups every day, if I'm trying the cup, if I'm trying different spoons.....IF I'M TRYING, IT IS NOT MY FAULT. And with that, my anxiety seemed to lift, I became happy with small accomplishments, and I fought to get Rory scoped and to the feeding clinic so that I KNEW I had done EVERYTHING I could. Even if you don't believe it, what you are feeling is a sense of inadequacy from rarely feeling the reward from satisfying one of your baby's most essential needs, so I'm telling you now....It's not your fault. You are doing great. Your boys will be okay. Use all the resources you have at your disposal. Feeding aversions affect families, so do not be afraid to ask for help for yourselves as well. Don't be afraid to be vulnerable. Try not to worry TOO much. Okay, I'll get off my soapbox now. I just really feel your pain, and want to assure things will get better. HUGS
Oct 22, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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AMEN, SISTA! Listen to Michele, she is right about everything. I am a SLP and it still feels unmanagable to me having a kid who goes thru periods of not eating/drinking...I don't specialize in feeding so even though I know a lot about it I don't even feel competent about my own kid! I think the emotional aspect of it plays such a HUGE role in that...you can know all the right things to try but even still, implementing the strategies can backfire when you have a kid who shuts her mouth, shakes her head no, and thrashes to get away.

When Elyse was on babyfoods, she did GREAT, we were thrilled thinking that even though it was HELL getting her to drink anything, at least we could get her to eat. Around 12 mos that all changed and it became a daily BATTLE as she subsisted on around 12 oz of elecare and cheerios and a cheese stick on a great day. I remember a time when she would eat an entire yobaby yogurt in one sitting...and now it can take up to 4 sittings to get thru a carton's worth of yogurt.

And although it is no consolation to a mommy whose kid won't eat ANYthing, remember that at this age, food is no longer a top priority to the child...they have much more interesting things to do and start asserting their independence more and more. This will make things much worse before they get better, in my experience! They start fighting you on everything. Try to make meal/snacktimes as relaxed as possible (I know this is difficult...I have scared my DH and DD more than once as I got frustrated enough to start throwing things and banging bottles down on tables!!). TRy not to place too much focus on what or how much your los are eating. There is a great quote by Ellyn satter about how the parent's responsibility is done once the food is on the table...if force/bribery is used it will only make it worse.

I just read a great book called "just take a bite" and it is full of tips; if you have any questions I can give you some info from the book. In the resource section they actually listed PAGER as a resource, i thought that was pretty cool :) Hang in there!

Oct 22, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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BTW, I thought I had tried everything to get Elyse to try any milk-like product...but I have never tried freezing it and putting it in a mesh bag....
Oct 22, 2008
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
Thank you so much ladies...it sounds like you really DO know what I'm dealing with. Last night as I was crying because Z was sticking his whole fist down his throat to puke up the bottle he just ate, my husband told me I had to stop taking it so personally...was he serious? I know he is as scared and frustrated as I am, but I really do take every defeat to heart. I am doing everything I can...I am in feeding therapy, we have a GI and we're getting an allergist soon. There is going to be no easy fix. On good days I try to remind myself that he will eat a happy meal someday and there will be no turning back. I'm just sad that I can't ever look back and remember cuddling my sweet baby and giving him a bottle where I'm not trying to force it down his throat or covering him with towels and freaking every time he gags...I am SURE I've made this worse, but he didn't come with a manual. It's been a rough few weeks and I would like to tell the reflux monster that he can SUCK IT. P.S. I tried freezing yogurt and other things in ice trays and giving it to Z, but he only wants ice cubes!
Check with your
doctor first!